Praying for Parker

Sleep and the child with special needs.

We’ve discovered one benefit of gross motor activities. It’s honestly a bit serendipitous. Gross motor sensory activities help kids learn better, and it seems they help Parker sleep better. Even crashing out in mid-activity. Okay. So maybe...

Published Sun, Feb 09 2014 11:19 PM by Praying For Parker

Filed under: Life With Special Needs, special needs parenting, clonidine, sleep issues and kids with special needs, gross motor activities

The Great Hearing Aid Chase

A year and a half ago Parker had a sedated ABR. The news was surprising at best. Parker’s hearing in his right ear was severely damaged. His left ear not as bad, but still not as good as his newborn hearing test had shown. We were given the name...

Published Wed, Feb 05 2014 7:28 AM by Praying For Parker

Filed under: Life With Special Needs, Frequent Flyin' ar the PCMC, special needs parenting, hearing aid, ear tubes, audiologist, audiology booth, sound booth

Pinewood Derby

Turning 9 years old brings a lot of excitement, not the least being able to compete in the Pinewood Derby. I remember my other boys working to put together a car that had the secret combination to beat all the other cars out there. Unfortunately, Parker...

Published Mon, Feb 03 2014 8:53 PM by Praying For Parker

Filed under: Stuff We LOVE!, down syndrome, Life With Special Needs, kids with special needs, special needs parenting, cub scouts, pinewood derby, boy scouts

Dehumanizing and Marginalizing Kids with Special Needs

What constitutes dehumanizing and marginalizing kids with special needs? The Huffington Post shared a recent blog post, My Child with a Disability is not My Hero, the author of which believes that the tendency of parents of kids with special needs and...

Published Fri, Jan 31 2014 7:24 PM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, Politics of Special Needs, kids with special needs, special needs parenting, special needs blogger

The end of the beginning of my blogging.

Blogging has changed since I first began this site about 8 years ago. It started as a way to keep a journal of sorts about Parker’s life and add in a bit of advocacy as well. As time has gone on bloggers have made pretty successful businesses from...

Published Wed, Jan 15 2014 2:13 PM by Praying For Parker

Filed under: Special Needs Homeschooling, down syndrome, Life With Special Needs, Sensory Tubs, blogging, special needs parenting

God is Able

It’s been a pretty sweet few days. A bit of peace and hope have made their way into my heart. I’ve been reading some excellent books on faith and it’s connection to gratitude. Yup. Gratitude. It’s not just for Thanksgiving anymore...

Published Mon, Jan 13 2014 10:21 AM by Praying For Parker

Filed under: down syndrome, faith, Life With Special Needs, special needs parenting, my one word

Dealing with Food Inflation

One of my big goals during the holidays is to stock up on all the great grocery deals. Well, at least it was when there were great grocery deals during the holidays. It was disappointing to see that turkeys never really went down to the low prices of...

Published Thu, Jan 09 2014 7:03 PM by Praying For Parker

Filed under: frugal living, thrifting, Life With Special Needs, prepping for hard times, paying off debt, inflation

In Search Of Medical Supplies

I posted on our discovery that because Parker is fed a blenderized diet, Medicaid in Utah no longer believes that he qualifies for formula. Because he no longer qualifies for formula, he no longer qualifies for feeding supplies, even though he takes that...

Published Tue, Jan 07 2014 4:09 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, The HIGH Cost of Health Care, Life With Special Needs, Fisher Paykel, Joey Kangaroo Pump, mini one buttons, Shiley cuffed trachs

EPSDT: Early Periodic Screening, Diagnosis, and Treatment

I received a phone call today asking questions about Parker’s feeding needs. I usually get calls like this each month before they send out his formula and feeding supplies. They ask what his height is. They ask what his weight is. Then the conversation...

Published Mon, Jan 06 2014 6:51 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, blenderized diet, Life With Special Needs, special needs parenting, Kangaroo Joey Feeding Pump

Mohawk Mayhem

Mayhem isn’t an unknown commodity around these joints. I’ve prayed for more Calgon Moments that I could ever count. And boy have there been some doozies since people started calling me Mom. The latest bit of time frozen in my cerebral cortex...

Published Mon, Jan 06 2014 8:12 AM by Praying For Parker

Filed under: Life With Special Needs, special needs parenting, haircuts

A Guinea Pig Named Wally

I’ve never been a huge pet person. I always had a cat growing up and even had guinea pigs too. It was great when my mom was there to do the cleaning up. heh. With a house full of kids having another body to take care of simply wasn’t on my...

Published Fri, Jan 03 2014 11:56 AM by Praying For Parker

Filed under: Stuff We LOVE!, Life With Special Needs, special needs parenting, guiena pig cozies, cavy, cavies, pets and kids with special needs, guinea pigs

Alternative Funding Sources for Special Needs

Let’s face it. Kids with special needs are expensive. It doesn’t matter if you have insurance or not. Cause you can pretty much bet that there’s going to be a lot of somethings that your insurance ain’t going to cover. Expensive...

Published Thu, Jan 02 2014 10:00 AM by Praying For Parker

Filed under: The HIGH Cost of Health Care, Advocacy, health care, Frequent Flyin' ar the PCMC, special needs parenting, grants for special needs, alternative funding sources, itaalk.org

Love Is: Special Needs Edition

I recently read that in stressful situations, love has the power to heal. It heals those that receive it as well as those that give it. In our lives we’ll experience negative situations. But there are two truths to get us through the rough patches...

Published Tue, Dec 31 2013 11:40 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, The HIGH Cost of Health Care, Advocacy, down syndrome, Therapy, Life With Special Needs, Hospital Frequent Flyer, special needs parenting, love is, special needs community, ways of showing love

Mosiah 4:27

It’s just me and Parker here right now. My first chance of the weekend to take a deep breath and ponder as I watch the littlest Hodson boy gazing out the window watching the snow fall. This kids LOVES to be outside. And after several years of snow...

Published Sun, Dec 22 2013 4:38 PM by Praying For Parker

Filed under: Christmas, Life With Special Needs, special needs parenting

The Unique Life of a Special Needs Parent

Special Needs Parents love our children. Desperately. We are willing to do anything for our child and often find ourselves doing exactly that……anything and everything. We celebrate milestones you may not realize have been achieved. While you...

Published Sat, Dec 21 2013 11:44 AM by Praying For Parker

Filed under: Life With Special Needs, hope, special needs parenting, medically fragile kids with special needs

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