Praying for Parker

Liquid Hope Giveaway Winners!

Woot! I love giving stuff away! And today Parker and I are announcing the meal replacement Liquid Hope Giveaway Winners! I took all the names, printed them off and then had Parker pick two out two. I tried to get a picture to validate that the winners...

Published Tue, Apr 22 2014 10:09 AM by Praying For Parker

Filed under: blenderized diet, g-tubes, Liquid Hope Functional Formularies, Organic Formula, Meal Replacement, Liquid Hope, Whole Food Formula

Liquid Hope

Parker has had quite a few trips up to Primary Children’s lately. One appointment we had been waiting months for was to the Intergrative Medicine clinic. I’ve had some specific questions that only someone with an open mind concerning Blenderized...

Published Wed, Apr 16 2014 11:32 AM by Praying For Parker

Filed under: blenderized diet, Blenderized Meals, Feeding Tube, Whole Foods Formula, Gluten Free Feeding Tube Formula, Liquid Hope Functional Formularies, Organic Feeding Tube Replacement Meals, Plant based g-tube formula

Anxiety Conference

Last week I was able to attend an anxiety conference at UVU with a sweet friend. It was very serendipitous how it all played out, and for that I am grateful. Cause me and anxiety? BFFs, baby. BFFs. There are several things I’d like to share with...

Published Tue, Apr 08 2014 10:24 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, down syndrome, Life With Special Needs, ptsd, special needs parenting, anxiety

Sleep Cycles in Kids with Special Needs

Sleep cycles in kids with special needs. Yeah. We’re having issues. Never in a zillion years did I think I’d reach this ripe old age and still have a child who is experiencing significant sleep issues. Well, maybe they might be experiencing...

Published Thu, Mar 20 2014 9:18 AM by Praying For Parker

Filed under: Life With Special Needs, special needs parenting, how to get your kid to sleep, sleep cycles

Master teachers come in all sizes.

This is how I picture it in my head. A loving Heavenly Father looking down at his earthly daughter and wondering why it’s taken her so long to learn patience. And contentment. And faith. Especially faith. He thought for sure that by now she would...

Published Tue, Mar 18 2014 9:29 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, down syndrome, faith, Life With Special Needs, lds, special needs parenting, master teachers

Name Activities for kids with Special Needs

There comes such a sense of accomplishment when a child learns how to write their name. That’s one of the reasons I persist in the perfection of Parker’s signature. It’s really no longer a matter of IF the kid can write his name, but...

Published Mon, Mar 17 2014 8:02 PM by Praying For Parker

Filed under: Special Needs Homeschooling, Reading Activities, name writing activities, special needs parenting, fine motor skill activities, hands on writing activities

Montessori Inspired Following Directions Activity

Each week we take Parker to my parents house for his daily lessons. My Mom works with him a lot on OT skills. This Tuesday however she changed it up some and created a Montessori inspired following directions activity. It’s important that Parker...

Published Sun, Mar 16 2014 6:45 PM by Praying For Parker

Filed under: Special Needs Homeschooling, down syndrome, Montessori inspired activities, special needs parenting, homeschooling and special needs

Special Needs Homeschooling

Special needs homeschooling in our family came about because of the fragility of Parker’s health. Sending him to school for two days turned into two weeks of being sick. Then the whooping cough outbreaks began. Plain and simple, a case of whooping...

Published Fri, Mar 14 2014 1:18 PM by Praying For Parker

Filed under: Special Needs Homeschooling, down syndrome, Life With Special Needs, special needs parenting, educating a child with special needs

Blenderized Diet Question

A blenderized diet is receiving more and more respect these days. Instead of a hospital dietician giving you the stink eye when you mention that you create your kids formula, we’ve been met with nods of encouragement when we talk about Parker’s...

Published Thu, Mar 06 2014 7:20 AM by Praying For Parker

Filed under: down syndrome, blenderized diet, blenderized diets, g-tubes, special needs parenting, nutrition and the kid with special needs

St. Patrick’s Day Educational Ideas

I am so thankful for talented people who willing share their hard work on their sites for people like me who home school a medically fragile kid at home. Or any kid for that matter. Anyway, welcome to our St. Patrick’s Day Educational Ideas Round...

Published Mon, Feb 24 2014 8:59 PM by Praying For Parker

Filed under: Special Needs Homeschooling, homeschooling, Life With Special Needs, Reading Activities, Math Activities, Art Activities, special needs parenting, Meeting a kid's sensory needs., Modern Parents Messy Kids, Fun-A Day, Kindergarten Smiles, Second Story Window, Polka Dot Chair, St, Patrick's Day Kids Ideas, 3 Dinosaurs.com, Over the Big Moon

What would you do if you weren’t afraid?

What would you do if you weren’t afraid? If you could transform your fear into strength and get on with your dreams, what would be the outcome? Being afraid, truly afraid, wasn’t a part of my life until I heard the words Severe Pulmonary Hypertension...

Published Sun, Feb 23 2014 7:24 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, pulmonary hypertension, fear, faith, Life With Special Needs, Boyd K. Packer, power of faith

Two Ingredient Playdough!

I am a total playdough snob. The stuff from the store totally creeps me out both texture and smell wise. Even when I purchase the stuff that is supposed to smell good……it doesn’t. So I wind up making playdough for Parker. And it doesn’t...

Published Thu, Feb 20 2014 5:40 PM by Praying For Parker

Filed under: Special Needs Homeschooling, Life With Special Needs, sensory activities, playdough recipes, lotion playdough

I can’t smell skunk, but apparently I can smell Klebsiella Pneumoniae in my son’s pee.

I can’t smell skunk. Seriously. Oh, if we were to run over one and it stuck to the bottom of our car I might be able to make the scent out while everyone else was hurling their donuts. But apparently I can smell Klebsiella Pneumoniae in Parker’s...

Published Thu, Feb 20 2014 7:12 AM by Praying For Parker

Filed under: Life With Special Needs, Frequent Flyin' ar the PCMC, special needs parenting, easy button, fistula, klebsiella pneumoniae, uti, imperforate anus

Dear Masimo, I swear I’m not drunk. Although some days I wish I were.

Back in the days when Parker spent more time circling the drain than the water in my bathtub, a generous representative from Masimo contacted me via this blog and offered us a loaner pulse ox machine. Our pulse ox machine from our DME was straight out...

Published Wed, Feb 19 2014 12:22 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, The HIGH Cost of Health Care, Masimo, masimo medical, pulse ox probes, Masimo Rad 8, pulse ox machines

Special Needs Friendly Valentines Day.

I always have grand intentions for Valentines Day. I have the greatest sugar cookie recipe known to man and I envision myself baking up a storm and piping the clean crisp names of each potential owner on their cookies. Then reality sets in. Oh, well....

Published Tue, Feb 18 2014 7:44 AM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, Family and Friends, special needs parenting, Valentines Day, special needs friendly Valentines day

Syndication

Recent Posts

Tags

Archives