March 2011 - Praying for Parker - The Network of Care

Tactile Learners: The Squish Factor

I lurve me a Tactile Learner. I’ve had several. I learn best by doing, so it only makes sense that my medically fragile kid with special needs would too! Right after school started this year, my local WalMart had a HUGE sale on school supplies....

Published Wed, Mar 23 2011 7:47 PM by Praying For Parker

Filed under: Special Needs Homeschooling, alphabet activities, felt letters

When the Stares Start

It wasn’t quite dark the evening my Dad dropped me off across the street from my friend’s house. Even though I dutifully looked both ways before I started to dash across the street, I never saw the car that hit me. I was thrown up 10 feet...

Published Tue, Mar 22 2011 7:24 PM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, down syndrome, Special Needs, Bells Palsy

Brave Hero Visits the ENT

It seems as though these last few days we’ve either been at the doctor’s, talking to doctors on the phone, or making more appointments with different doctors. Today was a visit to Parker’s ENT. I was grateful not to have to visit THIS...

Published Mon, Mar 21 2011 9:13 PM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, down syndrome, PCMC, ENT

In Celebration of WORLD DOWN SYNDROME DAY

In celebration of WORLD DOWN SYNDROME DAY, today, 3.11, a quote from Allen Crocker, on hearing from parents raising a child with Down syndrome: “Parents tell me again and again how they have been unexpectedly rewarded and blessed by seeing...

Published Mon, Mar 21 2011 7:41 AM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, People I Love, World Down Syndrome Day

The Magic of a Fishy Kiss

I got in touch with our Pedi yesterday. I explained Parker’s symptoms with his heart rate in the bonkers zone and is increased (double!) oxygen needs. Her advice was to up the Albuterol to every four hours. Parker wiggling his ear as I sing “Wiggle...

Published Fri, Mar 18 2011 8:43 AM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, People I Love, fishey kisses

Ring! Ring! Mayhem Calling…

I’ve never been a huge fan of phone calls. Maybe that’s because I grew up in the era when the newest technology consisted of a (gasp!) twenty foot phone cord that allowed me to walk all the way around the kitchen corner almost into the family...

Published Thu, Mar 17 2011 11:56 AM by Praying For Parker

Filed under: The HIGH Cost of Health Care, A Day In Our Life, down syndrome, Special Needs, How many insurance people does it take to TOTALLY ruin your day?, medicall fragile kids, EMI, insurance companies

When that rug keeps getting pulled out from under your hopes…

Tuesday Reed and I took Parker up to PCMC for a swallow study. Why? To see if Parker’s surgery to tent his epiglottis worked. When we got up there, I went to check in only to discover that our appointment was actually for Riverton, NOT PCMC. Ah...

Published Wed, Mar 16 2011 3:28 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, swallow study, aspiration in children with down syndrome

Blame it on the Weather

I allowed myself to get a bit frustrated at something I had no business getting frustrated at today. I’ve always been an advocate of children…..all children……being able to have access to good health care. And today I looked past...

Published Tue, Mar 15 2011 6:50 PM by Praying For Parker

Filed under: A Day In Our Life

Engagments: Take One

May 12th…….. Two will become One……. Still so much to do. We’re making dreams come true, don’tcha know. Read More...

Published Mon, Mar 14 2011 7:26 PM by Praying For Parker

Filed under: A Day In Our Life

Saturday Sick

It’s been over two weeks now. Two weeks of telling therapists not to come. Two weeks of Moltrin, rocking, and and all kinds of goop coming out of all kinds of places. We were told it sounded viral. My other kids had the same stuff. But my other...

Published Sat, Mar 12 2011 11:40 AM by Praying For Parker

Filed under: A Day In Our Life

Mommy Guilt: Special Needs Style

I opened an email today from a very broken hearted Mama of a child with special needs. She talked about another son and their discovery of an orthopedic issue. She expressed her sadness that perhaps in her concern for her child with special needs and...

Published Thu, Mar 10 2011 7:02 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, mommy guilt, mommy guilt special needs

The Family That Waxes Together…..

Take a minute and share your thoughts with my niece. Have you entered our Mama K’s Play Clay Giveaway! It ends this Friday! _______________ The 22 year old is dating an esthetician. Luckily for the rest of us, she likes to hone her craft on……well...

Published Wed, Mar 09 2011 6:14 PM by Praying For Parker

Filed under: A Day In Our Life, People I Love

A Presentation. An Anthropology Class. And My Niece.

Parker’s been fighting one hell of a virus. Enough snot to sink a ship. Enough grouchy to sink a Mommy. One bright spot though was a Facebook message from my niece. She asked: I am doing a presentation in my anthropology class on kids with special...

Published Wed, Mar 09 2011 8:58 AM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, People I Love, special needs advocacy

The Pressure to Abort and a Life Worth Living: Down syndrome

I may not know you. But I think I may understand a bit of what you are feeling right now. It’s never easy to discover that the little one growing within your womb may not be what the world considers ‘perfect.’ But what the world doesn’t...

Published Thu, Mar 03 2011 2:48 PM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, down syndrome, People I Love, a life worth living, abortion

3.2.11: A Day to Make the World a Better Place

My 19 year old had an interesting experience in one of her college classes. Her Professor, himself the author of a newly published book, made the choice to use the word ‘retarded’ in front of a class of college kids. One would think that a...

Published Wed, Mar 02 2011 7:55 AM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, Special Needs, 3.2.11, end the r word, down syndome

March 2011 - Praying for Parker

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Tactile Learners: The Squish Factor

When the Stares Start

Brave Hero Visits the ENT

In Celebration of WORLD DOWN SYNDROME DAY

The Magic of a Fishy Kiss

Ring! Ring! Mayhem Calling…

When that rug keeps getting pulled out from under your hopes…

Blame it on the Weather

Engagments: Take One

Saturday Sick

Mommy Guilt: Special Needs Style

The Family That Waxes Together…..

A Presentation. An Anthropology Class. And My Niece.

The Pressure to Abort and a Life Worth Living: Down syndrome

3.2.11: A Day to Make the World a Better Place