June 2010 - Praying for Parker - The Network of Care

The Battle Cry Against Entitlements

Preface: Our family is one of the lucky ones. We’ve been blessed with so much support in our commitment to keeping Parker alive. But for every lucky one there are THOUSANDS who are not so lucky. What I share below is to also bring awareness to their...

Published Wed, Jun 30 2010 7:39 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, A Day In Our Life, Advocacy, down syndrome, Special Needs, I'm The Mama: Hear Me Roar!, medicaid, entitlements

What’s In YOUR Garden?

We’ve done a something a little different in our gardens this year. Instead of filling our side gardens with flowers and herbs, we decided to plant way less flowers and plant different varieties of winter squash. Creating a blenderized diet for...

Published Tue, Jun 29 2010 8:36 PM by Praying For Parker

Filed under: A Day In Our Life, Cheap and Easy, Garden Goddess, blenderized diets, frugal living, gardening, dehydrating foods

So, I was talking to my therapist…

I have always been a pretty self sufficient kind of girl. I could handle it on my own, thankyouverymuch. Then came Parker. For the first few years I kept up with my ‘do it all myself’ determination. Until one day I realized it was killing...

Published Mon, Jun 28 2010 7:53 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, Therapy

What’s YOUR Austerity Plan?

Have you ever watched this video before? I know. There’s LOTS of controversy concerning it. But let’s look past the messenger and focus on the message for a moment. Let’s face it. America is addicted to cheap stuff. We are consumers...

Published Mon, Jun 28 2010 11:18 AM by Praying For Parker

Filed under: A Day In Our Life, yard sales, thrifting, austerity plan, stuff, gardening

The Slippery Slope Called Hope

We came back from our Pulmo appointment last week feeling a bit of hope. When you are the parent of a medically fragile child, hope is often that elusive golden ring, sometimes so very close, most times beyond your wildest reach. Dr. Pulmo directs our...

Published Thu, Jun 24 2010 7:16 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, A Day In Our Life, down syndrome, Nissen, pulmonary hypertension, chronic lung disease, atelectasis

Big Pool……Little Kid

Parker spent a good portion of last summer hanging out in his little blue pool. This year the pool is green. And much bigger. Parker spent most of his time hanging out on the edge of the pool with only his toes actually in the pool. Yup, this kid of mine...

Published Wed, Jun 23 2010 5:31 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, backyard pool, summer activities

We’re Having a Yard Sale!

Yup, this Saturday, June 19th you’ll find our front yard filled with all kinds of amazingness just waiting to come and live at YOUR house. heh. Seriously, we have some great stuff, lots of it donated by one of Parker’s sweet readers! Like...

Published Thu, Jun 17 2010 7:35 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, yard sales

And Away We Go!

We are heading up to Primary’s today. Parker has an appointment with Dr. Daftry, his Pulmo. This guy is amazing. He also has a last name that nobody knows how to properly pronounce. I’ve heard at least 20 variations of it. They told us to...

Published Wed, Jun 16 2010 6:51 AM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, The HIGH Cost of Health Care, A Day In Our Life, down syndrome, Special Needs, Primary Childrens Hospital, PCMC

Another Nurse Bites The Dust

We don’t get night nursing every night. And it isn’t unusual for a night nurse not to show. Or to say she came by and knocked and knocked and even left a message on the phone. Except nobody heard her knock nor the phone ring and no messages...

Published Sun, Jun 13 2010 9:29 PM by Praying For Parker

Filed under: down syndrome, Special Needs, I'm The Mama: Hear Me Roar!, home health care, night nursing

Yard Sales, Baby.

Between Reed working on Saturdays and the weather, I haven’t been out and about too often in my pursuit of yard sale treasure. The entertainment center for Parker’s room is (finally) done. It was a lot of work. A whole lot. Reed scrounged...

Published Thu, Jun 10 2010 8:06 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, garage sale, yard sale, thrifting, tag sale

WW and SEW: Are We Having Fun Yet?

It can get kinda boring waiting for your big brother to sleep off the night before so you two can FINALLY play. Read More...

Published Tue, Jun 08 2010 7:19 PM by Praying For Parker

Filed under: A Day In Our Life, People I Love, special exposure wednesday, Wordless Wednesday

Sometimes It’s Hard.

There are parents of kids out there that look at me and decide that I must be some sort of fraudulent imitation of a real special needs parent. I don’t view Parker’s life as being as devastating as I should. Yeah. They view me as being suspect...

Published Mon, Jun 07 2010 8:08 PM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, down syndrome, Special Needs

The Great Escape….

Okay, a little behind the scenes info here: Parker has been going up and down the big fight of stairs that connects our upper and lower levels. It’s kinda fun to watch him go up and down them. He’s much more confident (and quicker!) going...

Published Sun, Jun 06 2010 11:22 AM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, Fantabulous-ness, down syndrome, People I Love, escaping, pulmonary hypertension in children, learning to go up and down stairs

Down on Parker’s Farm….

We hung out at my parent’s house on Memorial Day. I love hanging out my parent’s house. The company, the food, the whole day….simply wonderful. My parents own almost 6 acres out in the boonies. This is the view from their back deck....

Published Thu, Jun 03 2010 9:13 AM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, farm life, Memorial Day, goats, chickens

June 2010 - Praying for Parker

Syndication

Recent Posts

Tags

Archives