Praying for Parker

Abortion and Down Syndrome: So, exactly who’s quality of life are we talking about here?

I recently came across a message board created for those who chose to terminate a pregnancy for either medical reasons or a poor prenatal diagnosis. Down syndrome falls under a reason to abort because of poor prenatal diagnosis. Yeah, I...

Published Mon, Sep 17 2012 8:49 PM by Praying For Parker

Filed under: Advocacy, A life worth living.

There are no retards here……

Even before Parker was born, the r-word wasn’t allowed in our home. I was taught from a very young age that people with disabilities, especially intellectual disabilities didn’t need to have the same experiences on earth as I did. That, in...

Published Wed, Mar 07 2012 9:45 AM by Praying For Parker

Filed under: Advocacy, end the r-word

On the corner of Walmart

I needed to grab a few quick things the other day. As I headed to the shopping area I noticed three people asking for help on the corner of Walmart. It isn’t unusual for me to see someone on that corner of Walmart in need of food or money for fuel...

Published Thu, Mar 21 2013 9:26 PM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, special needs parenting, Walmart, Because I have been given much I too must give

Encouragement and a Special Needs Mama

Sometimes it is a challenge to remain positive. I tend to be a person who sometimes gravitates to the worst possible outcome because I think that if that really is what happens, I’ll be prepared. Hey. We all have our weird. I wish I could say I...

Published Mon, Apr 22 2013 8:03 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, frugal living, Life With Special Needs

Somehow. One way or another. A story of bullying and love.

My oldest daughter, Bailey is really one of a kind. When she was little she’d give away her toys to anyone who asked. She welcomed anyone who wanted to play. She was happy and beautiful on both the inside and the outside. Then came the bullying...

Published Tue, Apr 23 2013 7:20 PM by Praying For Parker

Filed under: Special Needs, Life With Special Needs, Family and Friends, special needs parenting, parenting, bullies, bullying

The worth of my son with special needs.

When Parker was just a baby, we took him to an Endocrinologist due to his growth issues. She looked over Parker’s records and then looked at me. As she stared me straight in the eye she tole me that Parker was a kid not only with severe pulmonary...

Published Tue, May 21 2013 8:48 PM by Praying For Parker

Filed under: Advocacy, Special Needs, Life With Special Needs, special needs parenting, Colin Brewer

Granny Bread: A Homemade Bread Recipe

Around this joint all the grocery stores sell Granny Bread. It’s soft, squishy, spongy white bread. People love it. I remember when you could buy it at the Day Old Store for a whopping .80 cents a loaf. Then all the grocery stores got together to...

Published Mon, Jun 03 2013 7:42 PM by Praying For Parker

Filed under: From Scratch, frugal living, DIY, Recipes, easy recipes, homemade bread recipe, cheap recipes, living on a dime, homemade bread

Aspiration Pneumonia

You know it’s going to be a day when the first thing you run for as your feet hit the floor is the phone so you can call your kid’s doctor. We’ve been battling an aspiration pneumonia along with an ear infection. Something still hasn’t...

Published Mon, Nov 10 2014 8:36 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, Advocacy, pulmonary hypertension, Life With Special Needs, Hospital Frequent Flyer, aspiration pnuemonia, special needs parenting

Parker’s Yard Sale

I am so thankful to everyone who has dropped something off to Parker’s yard sale or made a donation through the button on our blog. I’m keeping the faith that we’ll indeed be able to provide Parker with the therapies he needs. Our yard...

Published Tue, Jul 23 2013 9:15 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, down syndrome, yard sale, Life With Special Needs, special needs parenting, Now I Can.org

Meanness at the expense of my child with special needs.

What do you see when you see Parker? Last week, during a quick run in to Target, I overheard what a few women thought when they saw my son. Look! one woman exclaimed as Parker and I rolled our cart by. It’s a ret*rd! I’ll admit, it took a...

Published Tue, Nov 10 2015 9:22 AM by Praying For Parker

Filed under: Advocacy, down syndrome, Life With Special Needs, Target, end the r-word, bullying

Questions to ask when orienting a new nurse.

We are orienting a new nurse. We’ve done this before. Several times actually. Through this process we have secured some excellent nurses, such as Parker’s current nurse, Chris. We’ve also met with potential employees that simply weren’t...

Published Mon, Nov 02 2015 6:03 PM by Praying For Parker

Filed under: Life With Special Needs, trachs, home nursing, trached kids, new nurse orientation

I’m going to carpe the hell out of this diem.

I’ve been trying to work my way through a recent experience. In the beginning there was excitement. I felt I had made my way to a Tribe committed to working together for the good of a local cause and together would take a stand and make a difference...

Published Thu, Nov 12 2015 7:51 AM by Praying For Parker

Filed under: Advocacy, Life With Special Needs, carpe diem, life lessons

Essential Oils in the Home

Using essential oils in my home is a great way for me to relax, energize, and focus. I’ve had great success using essential oils headaches and sinus issues. (Yes, my sinuses hate me.) I love the positive ambience that essential oils bring into my...

Published Mon, Sep 29 2014 12:12 PM by Praying For Parker

Filed under: Life With Special Needs, special needs parenting, doTerra Essential Oils, essential oils, doTerra

Monday Meme on Wednesday

Okay. So, it isn’t Monday. But Wednesday Meme just didn’t have the same ring to it, as Monday Meme. Well, it sounded better in my head at least. Plus, I finally sat down and taught myself how to make these little mini internet posters of wisdom...

Published Wed, Oct 14 2015 6:32 PM by Praying For Parker

Filed under: Advocacy, down syndrome, Special Needs, special needs parenting, memes

Update from a Down syndrome Mama

The older I get, the faster life zips by. I think I spent half my life hoping time move quicker and now I’m spending it wishing it would slow down. There has been so much going on. I thought it would be a good time to offer an update from this Down...

Published Tue, Apr 14 2015 9:22 AM by Praying For Parker

Filed under: down syndrome, Special Needs, Frequent Flyin' ar the PCMC, Family and Friends, special needs parenting, essential oils

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