Praying for Parker

Baptizing kids with special needs, revisited

I’ve written about baptizing kids with special needs before. There is NO one size fits all option. There are just each person individual experience that leads to their individual decision. You can read more about our decision with Parker in my post...

Published Thu, Oct 24 2013 8:45 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, Life With Special Needs, baptism, special needs parenting, mormons, lds.org

Medicaid and my medically fragile kid.

Last week was the big Trach/Vent Clinic where we get to see ENT, Pulmo, a Developmental Doctor and a RT. It’s a long day but it’s worth it. A couple of things that happened though, made me wonder about the future of Medicaid. We don’t...

Published Sat, Apr 20 2013 9:46 PM by Praying For Parker

Filed under: health care, medicaid, travis c. waiver, Life With Special Needs, Hospital Frequent Flyer

How does your child with Down syndrome enrich the world?

One of the reasons Parker and I blog is to show the world the beauty and potential found within an extra chromosome. We wanted to show how people with Down syndrome enrich the world…..beginning with our family. My Dad says that it’s...

Published Tue, Oct 02 2012 7:25 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Advocacy, Life With Special Needs, kids with down syndrome enrich the world

Faith and a Right Heart Cath

For me, faith is a work in progress. There are some areas of faith that I am exceptionally strong in. These may be the same areas that others struggle in. I often read of Moms, who having reached a certain point, turn the matter over to God, in full faith...

Published Thu, Aug 04 2011 10:43 PM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, down syndrome, pulmonary hypertension, right heart caths, faith

Twitter Party: The Organized Cook Weekly Meal Plan

What do you think of when you read the words dinner time? I think of once a month Costco runs. Couponing. An ever shrinking grocery budget. And how tired I am of cooking the same old thing over and over again. It’s stressful, this nightly thing...

Published Mon, Oct 03 2011 1:28 PM by Praying For Parker

Filed under: Life With Special Needs, twitter party, Toni Spilsbury, weekly menu plans

A Scentsy Christmas Holiday Warmer: A Raffle For Parker

We had removed all of the fund raising stuff from Praying For Parker. We had thought that by adding a section for ads, we could generate a bit of revenue to go towards our Brave Hero’s medical fund. And if it didn’t…….eh, that...

Published Sat, Oct 03 2009 7:29 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, The HIGH Cost of Health Care

The Language of Support: Special Needs Style

Support is such an important thing in the life of a family parenting a child with special needs. Many of us find ourselves feeling very alone and wondering if anyone else out there feels the way they do. You very quickly discover who your true friends...

Published Wed, Mar 03 2010 7:46 PM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, down syndrome, Special Needs, support

Dehydrating Pumpkins

We’ve harvested the winter squash and pumpkins. FIFTEEN Pumpkins to be exact. Not too shabby considering the teeny space my kids refer to as ‘the farm’ while rolling their eyes. Most years I have pureed my pumpkins and then frozen them...

Published Tue, Oct 05 2010 9:09 AM by Praying For Parker

Filed under: A Day In Our Life, Cheap and Easy, Garden Goddess, From Scratch, organic gardening, VitaMix, dehydrating pumpkins, excaliber dehydrator

Fire Station Field Trip

I don’t usually take Parker on the field trips with his class. Either he’s sick, just getting over being sick, the class has had something going around, or there’s a chance something’s might be going around. Today I took a chance...

Published Wed, Feb 20 2013 6:03 PM by Praying For Parker

Filed under: Advocacy, down syndrome, Special Needs, homeschooling a child with special needs, Fire Station, Field Trip, Field Trips

Food Storage and Self Sufficiency

In a world that has become increasingly dependent, many are striving to become more self reliant. Food storage and self sufficiency bring a sense of well being and peace of mind. It isn’t just about hoarding food that you someday might eat, it’s...

Published Wed, Oct 14 2015 9:24 AM by Praying For Parker

Filed under: From Scratch, food storage, prepping for hard times, self sufficiency

Dreams Don’t Work Unless You Do

Dreams don’t work unless you do. I found this quote by Maya Angelou a few months ago to send with my son, Rigel as he worked to prepare to serve a mission for the Church of Jesus Christ of Ladder Day Saints. Such a simple thought made such a deep...

Published Wed, Jun 04 2014 10:31 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, Advocacy, down syndrome, Special Needs, pulmonary hypertension, trach, faith, Life With Special Needs, special needs parenting, g-tube, dreams, Maya Angelou

BYU and the Education of the Intellectually Disabled

My daughter McCall was asked to participate on the Student Advisory Council at BYU this year. As part of her responsibilities, McCall was asked to create a project that would enhance BYU and it’s educational goals. McCall’s proposal had to make...

Published Sun, May 18 2014 6:57 PM by Praying For Parker

Filed under: Advocacy, intellectual disabilities, Life With Special Needs, BYU, Clemson University, college education for those with special needs, Utah State

Rifton Adaptive Bikes

Rifton Adaptive Bikes are what our Physical Therapist suggested for Parker when I started talking about Parker learning how to ride a bike. Last May the PT brought out a smaller sized Rifton Adaptive Bike for Parker to use since there was nobody else...

Published Mon, Mar 25 2013 6:56 PM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, special needs parenting, Rifton Adaptive Bikes, teaching a child with special needs to ride a bike

Yard Sales, Baby.

Between Reed working on Saturdays and the weather, I haven’t been out and about too often in my pursuit of yard sale treasure. The entertainment center for Parker’s room is (finally) done. It was a lot of work. A whole lot. Reed scrounged...

Published Thu, Jun 10 2010 8:06 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, garage sale, yard sale, thrifting, tag sale

That Holiday Buzz Kill

We’re no strangers to Holiday surgeries. Last year was a Nissen. The year before brought Parker a butt that actually worked. This year, on Tuesday, comes the surgery that brings hopes of an aspiration free life and the ability to eat again by mouth...

Published Fri, Dec 03 2010 7:10 AM by Praying For Parker

Filed under: Frequent Flyin At The PCMC

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