Praying for Parker

Let’s Spend the Night with Parker

We’re down another night nurse. It’s kind of a sad story that isn’t mine to tell, but Reed and I find ourselves without a weekly night nurse. Again. Why, you may ask, do we even need a night nurse? Lemme walk you through a typical night...

Published Tue, Nov 23 2010 8:05 AM by Praying For Parker

Filed under: A Day In Our Life

Fine Motor Skills: Teaching Boundaries

I continue the quest of perfecting Parker’s fine motor skills. Strengthening his fingers so that holding a pencil isn’t as hard of a task for him. Perfecting his grasp so that coloring and painting are more enjoyable. There’s a long...

Published Mon, Nov 09 2015 7:46 AM by Praying For Parker

Filed under: Special Needs Homeschooling, Life With Special Needs, sensory activities, SN Homeschooling, teaching fine motor skills, pre-writing skills

Food Storage and Self Sufficiency

In a world that has become increasingly dependent, many are striving to become more self reliant. Food storage and self sufficiency bring a sense of well being and peace of mind. It isn’t just about hoarding food that you someday might eat, it’s...

Published Wed, Oct 14 2015 9:24 AM by Praying For Parker

Filed under: From Scratch, food storage, prepping for hard times, self sufficiency

Medically fragile children.

I can’t even count all of the times we’ve had to pull Parker out of cracks that could have easily cost him his life if Reed and I hadn’t been diligent and the Spirit so adamant in demanding our attention. It’s a common pitfall...

Published Tue, May 27 2014 9:27 PM by Praying For Parker

Filed under: Advocacy, Primary Childrens Hospital, medically fragile children, Nissen, pulmonary hypertension, reflux, aspiration, Life With Special Needs, g-tube, parenting kids with special needs, mother's intuition

How to freeze avocados for blenderized diets.

Last week our local Sprouts had a sale on avocados for .49 cents each. Seeing as I had just paid over a dollar for the avocados I had just purchased for Parker’s blenderized diet, I was beyond thrilled. I found myself wishing that I could somehow...

Published Tue, Jun 03 2014 9:40 AM by Praying For Parker

Filed under: blenderized diet, homemade formula, blenderized diets, g-tube, freezing avocados, food saver, parenting kids iwth special needs

BYU and the Education of the Intellectually Disabled

My daughter McCall was asked to participate on the Student Advisory Council at BYU this year. As part of her responsibilities, McCall was asked to create a project that would enhance BYU and it’s educational goals. McCall’s proposal had to make...

Published Sun, May 18 2014 6:57 PM by Praying For Parker

Filed under: Advocacy, intellectual disabilities, Life With Special Needs, BYU, Clemson University, college education for those with special needs, Utah State

That Holiday Buzz Kill

We’re no strangers to Holiday surgeries. Last year was a Nissen. The year before brought Parker a butt that actually worked. This year, on Tuesday, comes the surgery that brings hopes of an aspiration free life and the ability to eat again by mouth...

Published Fri, Dec 03 2010 7:10 AM by Praying For Parker

Filed under: Frequent Flyin At The PCMC

Why would I change him?

Years ago I received a Christmas card from a friend who had a son with Down syndrome. In that card she wrote, “If there was a cure for Down syndrome we’d pour it down the drain.” Pretty amazing considering when this friend’s...

Published Wed, Sep 19 2012 7:30 PM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, Perfect just the way he is

How does your child with Down syndrome enrich the world?

One of the reasons Parker and I blog is to show the world the beauty and potential found within an extra chromosome. We wanted to show how people with Down syndrome enrich the world…..beginning with our family. My Dad says that it’s...

Published Tue, Oct 02 2012 7:25 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Advocacy, Life With Special Needs, kids with down syndrome enrich the world

Why you should advertise on Praying For Parker

One of the perks of having your own blog……and sweet readers old and new…..is that you are given the opportunity to advertise on that blog. The revenue of these ads helps to provide funds to purchase out of pocket supplies, like the g...

Published Tue, Nov 29 2011 6:10 PM by Praying For Parker

Filed under: Life With Special Needs, advertising on praying for parker

Election Promises for those with Special Needs

Lately, as I make my way through days with CNN and Fox News, I watch as Presidential wannabes stand up and make promise after promise after promise. …..I promise to stand behind small business owners. …..I promise to stand...

Published Fri, Oct 05 2012 10:27 AM by Praying For Parker

Filed under: Life With Special Needs, Politics of Special Needs, election promises for those with special needs

What makes YOUR life easier?

My favorite pharmacist works at Wal-mart. But I don’t get Parker’s meds there. They have wonky hours. They close too early. And aren’t open on Sundays. It doesn’t happen often, but an open pharmacy comes in mighty handy in case...

Published Wed, Oct 27 2010 7:52 PM by Praying For Parker

Filed under: A Day In Our Life, Stuff We LOVE!, down syndrome, Special Needs, making life easier

My Brand of Crazy

Parker is scheduled for a trach/vent clinc for tomorrow. We’ve had this appointment for months. The beauty of a trach/vent clinic appointment is that you have the attention of BOTH your ENT AND your Pulmo at. the. same. time. For a Mama trying to...

Published Tue, Oct 13 2009 11:47 AM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, Advocacy

The Good, The Bad, and the What The Hell?

The first thing that Doctor A said to us during Parker’s appointment was that he had just recieved notice that both our private insurance as well as Medicaid are no longer willing to pay for Parker’s vent. Which falls under the What The Hell...

Published Wed, Oct 14 2009 6:29 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, The HIGH Cost of Health Care, A Day In Our Life

Monday Meme on Wednesday

Okay. So, it isn’t Monday. But Wednesday Meme just didn’t have the same ring to it, as Monday Meme. Well, it sounded better in my head at least. Plus, I finally sat down and taught myself how to make these little mini internet posters of wisdom...

Published Wed, Oct 14 2015 6:32 PM by Praying For Parker

Filed under: Advocacy, down syndrome, Special Needs, special needs parenting, memes

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