Praying for Parker

A Star Studded Kinda Day

Parker and I are learning about stars. It was the shape of the week last week. Perfect for Christmas, no? I took some cheap noodles and dyed them yellow with left over Easter egg colorant because one of my many children made off with my food coloring...

Published Sat, Dec 05 2009 12:12 PM by Praying For Parker

Filed under: A Day In Our Life, Special Needs Homeschooling, Cheap and Easy, Special Needs, People I Love, homeschooling

It’s (S)not a Problem.

Moms of kids with trachs know that along with those pieces of plastic tubing and velco ties comes a lot of……er……..snot. Hey. Let’s face it. There really isn’t a pretty word that describes the gelled waste that is made...

Published Tue, Feb 02 2010 8:43 AM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, People I Love, I'm The Mama: Hear Me Roar!

That’s Cool, Mister Joe Cool

16 seconds that will start your weekend off right. (In a totally goofball kind of way.) Have a groovy one! PS: Videography compliments of my beautiful blue eyed girl. Read More...

Published Thu, Jul 08 2010 6:28 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, down syndrome, Special Needs, People I Love

Special Needs Homeschooling: The Homeschool Post

There are many things I am passionate about. My family. My religion. Living on Less Dr. Pepper Gardening Advocating for those with Special Needs Being a huge pain in the butt for my local legislative representative. heh. I’m also passionate about...

Published Fri, Nov 05 2010 8:19 AM by Praying For Parker

Filed under: Special Needs Homeschooling, Advocacy, special needs homeschooling, homeschooling, The Homeschool Post

Where the totally random takes over…

My right eye is still stuck on open. And the right side of my mouth droops and makes talking a chore. But my tongue doesn’t feel like such a brick in my mouth, even though being able to drink out of a bottle (I usually keep a full Kleen Kanteen...

Published Tue, Feb 01 2011 1:52 PM by Praying For Parker

Filed under: A Day In Our Life

The Flannel Shirt Tradition

My Dad has always loved him a flannel shirt. They wear like iron. Get softer the older they get. And allow you to keep that furnace on a lower setting during the winter. What’s not to love. I smiled when Rigel come dashing up from downstairs in...

Published Thu, Dec 05 2013 1:22 PM by Praying For Parker

Filed under: Life With Special Needs, special needs parenting

Parker’s Day

Parker’s day starts with unhooking him from the night’s feeds, vent, and monitors. He gets suctioned, diaper changed then lifted up and out of his bed. A soft knock on the front door comes at 7:30 a.m. and we welcome Miss Angie for Parker’s...

Published Mon, Feb 11 2013 8:26 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, The HIGH Cost of Health Care, down syndrome, frugal living, blessings, Life With Special Needs, special needs parenting, working at home, believe in miracles

Coloring Lima Beans for Learning and Crafts

Usually, when people think of sensory boxes they think of colored rice. Colored rice, lentils, birdseed are all items that work great in sensory boxes. Today I’m going to show how to color lima beans for learning and crafts and sensory boxes too...

Published Thu, Mar 07 2013 8:19 PM by Praying For Parker

Filed under: Special Needs Homeschooling, Sensory Tubs, Math Activities, Art Activities, Meeting a kid's sensory needs., Montessori Learning Activities, crafts for kids, How to color lima beans, Transferring Activities, sensory bin activities, learning and craft activities

Sacrificing for a sibling with special needs.

It’s that time of the year again when my kids come and tell me all the awesome plans their friends have for Spring Break. Trips to Hawaii. Time spent at out of state theme parks. Renting cabins in the Mountains of Sundance. Our family? Well, we...

Published Tue, Apr 02 2013 5:29 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, down syndrome, Life With Special Needs, Family and Friends, special needs parenting, sibling with special needs, sibling love, sacrifices, Spring Break

Potty Training

Potting Training. Just the words can make me cringe in despair. I know this kid is ready to be trained, it’s me who’s dragging my feet. I’ll admit it, I have no idea how to potty train this medically fragile kid with special needs of...

Published Wed, Oct 02 2013 8:03 AM by Praying For Parker

Filed under: Life With Special Needs, potty training a child with special needs, cloth diapers, cloth trainers

Everything Parker Knows He Learned at Home: Kindergarten

I’ve received many emails asking about information on how to home school a kid with special needs. I’m going to try to do a better job sharing ideas and a general curriculum on Parker’s blog. I don’t have a store purchased curriculum...

Published Thu, Sep 09 2010 9:07 AM by Praying For Parker

Filed under: A Day In Our Life, Special Needs Homeschooling, special needs homeschooling, homeschooling, homeschool

Bees: A Parker’s Preschool Post

We home school Parker. Yup. Even with Reed being an Administrator for Alpine School District, I keep the Brave Hero home for all things educational. His health makes this a necessity. We do all kinds of stuff from Math to the Alphabet. Today I’m...

Published Sun, Jul 04 2010 8:24 PM by Praying For Parker

Filed under: A Day In Our Life, Special Needs Homeschooling, Special Needs, homeschooling, home school, preschool unit bees

The Great Escape….

Okay, a little behind the scenes info here: Parker has been going up and down the big fight of stairs that connects our upper and lower levels. It’s kinda fun to watch him go up and down them. He’s much more confident (and quicker!) going...

Published Sun, Jun 06 2010 11:22 AM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, Fantabulous-ness, down syndrome, People I Love, escaping, pulmonary hypertension in children, learning to go up and down stairs

Thankful

Yesterday as I worked on preparations for our Thanksgiving dinner, Reed was out preparing the garden for the Spring. I’m thankful for a husband who understands my passion for all things garden. I’m thankful for the opportunity to grow food...

Published Thu, Nov 26 2009 6:59 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Garden Goddess, People I Love

Blenderized Diets for G-tube Fed Kids (Featuring Greensbury Market Oranic Beef)

While in the hospital after Parker’s Nissen I was fortunate enough to meet with a nurtritionalist who gave me an outline for a blenderized diet to replace the 5 cans of Pediasure a day Parker had been receiving. The diet is based on The Homemade...

Published Mon, Jan 04 2010 2:49 PM by Praying For Parker

Filed under: Fantabulous-ness, Stuff We LOVE!, Greensbury Market, homemade formula, blenderized diets, g-tube fed kids

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