Praying for Parker

Acts of desperation: Special Needs Style

I used to be…..oh, what’s the word I’m looking for…..oh, yeah…. VAIN. Not a hair out of place. Make-up just so. Even my jeans were perfectly pressed. Enter a medically fragile kid with special needs. These days find me clothed...

Published Tue, Nov 20 2012 6:58 AM by Praying For Parker

Filed under: down syndrome, Special Needs, Life With Special Needs, acts of desperation

Making a list…..

I remember feeling a little bummed when my older kids were younger and wanted things that were simply beyond our budget. I’d eventually get over it, and more times than not, they’d eventually forget that they even wanted it. It’s...

Published Wed, Nov 28 2012 8:19 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, Shiley trachs, Portex Thermavents, mini one button

Scentsy Asks: Who’s YOUR Champion?

I’m always looking for companies that get it. Companies that not only address their products to parents of typical kids, but to the special needs community as well. Scentsy does just by asking; Who’s YOUR CHAMPION? Last week, one of the guys...

Published Mon, Feb 04 2013 8:58 AM by Praying For Parker

Filed under: Advocacy, Stuff We LOVE!, Scentsy, Who's Your Champion?, Scentsy Speical Olympics charitable cause, Special Olympics Warmer

Jeffrey R. Holland – Lord I Believe

I’ve always been taught that if you would prayerfully take your problems to Conference, you would find the strength and answers needed to make your way forward in faith. Jeffrey R. Holland helped to answer some of my questions on faith. Jeffrey...

Published Sun, Apr 07 2013 5:18 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Life With Special Needs, Lord I Believe, Jeffery R. Holland

Extreme Parenting

At my age, the last thing I thought I would have is an almost 9 year old. Especially an almost 9 year old who has been through as much as my almost 9 year old has been through. A friend made mention that being Mama to a kid like Parker is not just the...

Published Sun, Sep 29 2013 8:52 PM by Praying For Parker

Filed under: Advocacy, down syndrome, Life With Special Needs, special needs parenting, extreme parenting

Special Needs Guilt

Parental guilt isn’t something you have to go looking for. Like the extra pounds that seemingly sneak up overnight, guilt has a way of sticking to you and wrecking havoc with your self esteem. Special needs guilt is even more insidious. As we try...

Published Mon, Oct 19 2015 8:07 AM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, special needs blog, special needs resources, special needs guilt, guilt

It’s not just about keeping Parker alive….

I’ve lost 18 pounds. Really it should be more. I gave up my beloved Dr. Pepper over ice weeks ago. I haven’t even had a Diet Coke. I should be in a size 6 by now, right? Isn’t that the way it works? All this water I’ve been drinking...

Published Sat, Feb 04 2012 4:06 PM by Praying For Parker

Filed under: down syndrome, Special Needs, Life With Special Needs

Into Autumn

It’s been cold here the last several days. They kind of days that make a girl scurry out to the garden to collect all the last bits to harvest. I’ve been baking and freezing pumpkins. Have you seen how expensive they are this year? ...

Published Sun, Oct 09 2011 7:42 PM by Praying For Parker

Filed under: From Scratch, frugal living, Victory Garden, ginger pear jam, making jam, dehydrating tomatoes

A Feeling of…. Gratitude

It wasn’t that long ago that kids with trachs spent their entire lives in the hospital. Can you imagine? It was thought that kids with trachs faced too many obstacles to be able to live outside of a hospital setting. Times have changed. For this...

Published Wed, Nov 02 2011 7:49 PM by Praying For Parker

Filed under: Advocacy, Life With Special Needs, extra chromosomes, trachs, gratitude

What’s YOUR Grocery Budget?

I remember the first time that, as newlyweds, Reed and I went over $100.00 for groceries. It was kind of a shock. $100.00 was a LOT of money back in the days when dinosaurs roamed, even though in reality it was just $50.00 for to feed each of us for a...

Published Mon, Nov 07 2011 5:06 PM by Praying For Parker

Filed under: frugal living, Life With Special Needs, how to save on your grocery costs, Coupons, grocery budget, Walmart double coupons

Engagments: Take One

May 12th…….. Two will become One……. Still so much to do. We’re making dreams come true, don’tcha know. Read More...

Published Mon, Mar 14 2011 7:26 PM by Praying For Parker

Filed under: A Day In Our Life

Mommy Guilt: Special Needs Style

I opened an email today from a very broken hearted Mama of a child with special needs. She talked about another son and their discovery of an orthopedic issue. She expressed her sadness that perhaps in her concern for her child with special needs and...

Published Thu, Mar 10 2011 7:02 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, mommy guilt, mommy guilt special needs

Practicing Halloween

When my older kids were little thoughts of Halloween began sometime in August. What they wanted to be changed daily. As the pumpkins in the garden turned orange and the air turned chilly, my kids were making plans with friends to come to our house for...

Published Tue, Oct 11 2011 11:20 AM by Praying For Parker

Filed under: down syndrome, Special Needs, Halloween, Life With Special Needs

Urban and Organic Gardening

I really can’t be the only one who looks our her window at her garden and feels her heart yearn for Spring, can I? There won’t be as many pumpkins this year. There will be many more types of greens….mustard greens, kale, and the like...

Published Wed, Feb 01 2012 11:41 AM by Praying For Parker

Filed under: From Scratch, frugal living, urban gardens, organic gardens

A Literature Based Learning Activity: The Story of Ferdinand

“They called him Ferdinand the Fierce and all the Banderilleros were afraid of him and the Picadores were afraid of him and the Matador was scared stiff.” from The Story of Ferdinand by Munro Leaf The Story of Ferdinand is based on a very...

Published Tue, Jan 03 2012 9:04 PM by Praying For Parker

Filed under: Reading Activities, Art Activities, Ferdinand, FIAR

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