Praying for Parker

His Secret Stash

When my oldest daughter was about 2, she had a ride on toy that had a place where treasures could be hidden. This is where she would store her secret stash of ‘stuff.’ If something went missing, say….the hair brush, remote control, or...

Published Sun, Dec 16 2012 5:48 PM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, funny things kids do

Wishing on Christmas

Reed nudges me; his chin directing my eyes to where Parker is hanging out in front of the tree, buddy-ing up with his new BFF, Brown Bear. (Thanks, Brooke!) These two are wishing on Christmas, I just know it. Of course this tree only has ornaments half...

Published Wed, Dec 12 2012 6:28 PM by Praying For Parker

Filed under: Advocacy, Christmas, Brown Bear, Christmas wishes

Blenderized Diet for G-tube Fed Kids

Blenderized Diet for G-tube fed kids has been one of the best decisions we’ve ever made for Parker. This is one Brave Hero who simply didn’t gain on prepared formulas. I love how I can custom create his menu each and every day. I’m a...

Published Mon, Mar 25 2013 10:09 AM by Praying For Parker

Filed under: blenderized diet, blenderized diets, g-tube fed kids, special needs parenting, legumes for blenderized diets, grains for blenderized diets, nurtrition for kids with special needs

Parker’s Day

Parker’s day starts with unhooking him from the night’s feeds, vent, and monitors. He gets suctioned, diaper changed then lifted up and out of his bed. A soft knock on the front door comes at 7:30 a.m. and we welcome Miss Angie for Parker’s...

Published Mon, Feb 11 2013 8:26 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, The HIGH Cost of Health Care, down syndrome, frugal living, blessings, Life With Special Needs, special needs parenting, working at home, believe in miracles

Unconditional

Every once in a while a post percolates around in my brain, that despite countess attempts of me trying to banish it, insists on being written. Today’s post is one of those. My topic? Unconditional. Tomorrow I’ll be taking treats in to the...

Published Wed, Feb 13 2013 9:17 AM by Praying For Parker

Filed under: Advocacy, Special Needs, Life With Special Needs, least restrictive environment, small groups classes

Simply Preparing

Parker and I are over at Simply Preparing today talking about the glory of food co-ops and the money they can save you. Cause saving money is always a good thing, right? I even talk about the vast amount of nuts I purchased and vacuum sealed in my Food...

Published Wed, Jan 16 2013 2:12 PM by Praying For Parker

Filed under: frugal living, prepping for hard times, Simply Preparing, food co-ops, prepping on a budget

Sacrificing for a sibling with special needs.

It’s that time of the year again when my kids come and tell me all the awesome plans their friends have for Spring Break. Trips to Hawaii. Time spent at out of state theme parks. Renting cabins in the Mountains of Sundance. Our family? Well, we...

Published Tue, Apr 02 2013 5:29 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, down syndrome, Life With Special Needs, Family and Friends, special needs parenting, sibling with special needs, sibling love, sacrifices, Spring Break

Yard Sale Fundraiser

On Sunday, after everyone was full of Father’s Day dinner, I gathered my family around and asked them the question. I was nervous. I know how much work what I was about to ask of them was going to be. I also know that Parker’s family is willing...

Published Sun, Jun 16 2013 8:52 PM by Praying For Parker

Filed under: yard sale, physical therapy, Life With Special Needs, Now I Can

Special Needs Homeschooling

Special needs homeschooling in our family came about because of the fragility of Parker’s health. Sending him to school for two days turned into two weeks of being sick. Then the whooping cough outbreaks began. Plain and simple, a case of whooping...

Published Fri, Mar 14 2014 1:18 PM by Praying For Parker

Filed under: Special Needs Homeschooling, down syndrome, Life With Special Needs, special needs parenting, educating a child with special needs

Yard Sale Search of 2014

It’s the busiest shopping season of the year! My Bailey Girl and I have been out on the hunt three times already! She’s decorating a brand new gorgeous and hip condo and, well, I’m looking for practical items. Whether looking for the...

Published Mon, Jun 16 2014 10:25 AM by Praying For Parker

Filed under: yard sales, Life With Special Needs, special needs parenting, saving money with yard sales, yard sailing, yard sale deals

Keep Calm, It’s Only Christmas

My parents tell a story that helps me to put Christmas in perspective. Both of my parents grew up in conditions of poverty. My Grandmother candled eggs for a living to provide for my mother. My father grew up in a house without running water. He and his...

Published Sun, Nov 03 2013 12:06 PM by Praying For Parker

Filed under: frugal living, Life With Special Needs, special needs parenting, keep calm it's only Christmas, Christmas and kids with special needs

A Scentsy Raffle for Parker’s Medical Fund!

Scroll down to read about Parker’s Scentsy Raffle! Can you believe that while we have an OR scheduled for Parker next Tuesday, I have YET to hear from TPTB as to what exactly they are thinking of doing? Seems as though Cardiology thinks Parker’s...

Published Mon, Sep 27 2010 3:00 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, Advocacy, Stuff We LOVE!, down syndrome, Scentsy, raffle

A REALLY big Crayon Rocks.net Giveaway.

WHAT you’ve never heard of Crayon Rocks? Well, gather around as I share with you simply the best coloring tool for children. Crayon Rocks have vibrant colors and create beautiful textures. All natural SOY WAX crayons made from USA GROWN soybeans...

Published Thu, Sep 30 2010 12:18 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Stuff We LOVE!, down symdrome, giveaway, Reviews and Giveaways!, crayon rocks, soy crayons

Yard Sales, Baby.

Between Reed working on Saturdays and the weather, I haven’t been out and about too often in my pursuit of yard sale treasure. The entertainment center for Parker’s room is (finally) done. It was a lot of work. A whole lot. Reed scrounged...

Published Thu, Jun 10 2010 8:06 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, garage sale, yard sale, thrifting, tag sale

And there they go!

Have you entered out Discount School Supply Giveaway yet? When my big kids were little they loved to accompany their Dad over to the school to check on the sprinklers, or the fish, or the birds that often needed attention over the weekend. It made my...

Published Tue, Jul 27 2010 7:17 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, down syndrome, Special Needs

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