Praying for Parker

Sleep Cycles in Kids with Special Needs

Sleep cycles in kids with special needs. Yeah. We’re having issues. Never in a zillion years did I think I’d reach this ripe old age and still have a child who is experiencing significant sleep issues. Well, maybe they might be experiencing...

Published Thu, Mar 20 2014 9:18 AM by Praying For Parker

Filed under: Life With Special Needs, special needs parenting, how to get your kid to sleep, sleep cycles

Anxiety Conference

Last week I was able to attend an anxiety conference at UVU with a sweet friend. It was very serendipitous how it all played out, and for that I am grateful. Cause me and anxiety? BFFs, baby. BFFs. There are several things I’d like to share with...

Published Tue, Apr 08 2014 10:24 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, down syndrome, Life With Special Needs, ptsd, special needs parenting, anxiety

Liquid Hope

Parker has had quite a few trips up to Primary Children’s lately. One appointment we had been waiting months for was to the Intergrative Medicine clinic. I’ve had some specific questions that only someone with an open mind concerning Blenderized...

Published Wed, Apr 16 2014 11:32 AM by Praying For Parker

Filed under: blenderized diet, Blenderized Meals, Feeding Tube, Whole Foods Formula, Gluten Free Feeding Tube Formula, Liquid Hope Functional Formularies, Organic Feeding Tube Replacement Meals, Plant based g-tube formula

Liquid Hope Giveaway Winners!

Woot! I love giving stuff away! And today Parker and I are announcing the meal replacement Liquid Hope Giveaway Winners! I took all the names, printed them off and then had Parker pick two out two. I tried to get a picture to validate that the winners...

Published Tue, Apr 22 2014 10:09 AM by Praying For Parker

Filed under: blenderized diet, g-tubes, Liquid Hope Functional Formularies, Organic Formula, Meal Replacement, Liquid Hope, Whole Food Formula

Cardiology Appointment or I hate Echoes

Tuesday is Parker’s cardiology appointment. We LOVE Dr. Day, but we don’t necessarily like having to actually see him, if you know what I mean. Dr. Day has taken excellent care of Parker when other doctor’s have shrugged their shoulders...

Published Fri, May 09 2014 10:52 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, pulmonary hypertension, Hospital Frequent Flyer, heart echo, ekg, Dr. Ronald Day, Cardiology

BYU and the Education of the Intellectually Disabled

My daughter McCall was asked to participate on the Student Advisory Council at BYU this year. As part of her responsibilities, McCall was asked to create a project that would enhance BYU and it’s educational goals. McCall’s proposal had to make...

Published Sun, May 18 2014 6:57 PM by Praying For Parker

Filed under: Advocacy, intellectual disabilities, Life With Special Needs, BYU, Clemson University, college education for those with special needs, Utah State

Medically fragile children.

I can’t even count all of the times we’ve had to pull Parker out of cracks that could have easily cost him his life if Reed and I hadn’t been diligent and the Spirit so adamant in demanding our attention. It’s a common pitfall...

Published Tue, May 27 2014 9:27 PM by Praying For Parker

Filed under: Advocacy, Primary Childrens Hospital, medically fragile children, Nissen, pulmonary hypertension, reflux, aspiration, Life With Special Needs, g-tube, parenting kids with special needs, mother's intuition

How to freeze avocados for blenderized diets.

Last week our local Sprouts had a sale on avocados for .49 cents each. Seeing as I had just paid over a dollar for the avocados I had just purchased for Parker’s blenderized diet, I was beyond thrilled. I found myself wishing that I could somehow...

Published Tue, Jun 03 2014 9:40 AM by Praying For Parker

Filed under: blenderized diet, homemade formula, blenderized diets, g-tube, freezing avocados, food saver, parenting kids iwth special needs

Dreams Don’t Work Unless You Do

Dreams don’t work unless you do. I found this quote by Maya Angelou a few months ago to send with my son, Rigel as he worked to prepare to serve a mission for the Church of Jesus Christ of Ladder Day Saints. Such a simple thought made such a deep...

Published Wed, Jun 04 2014 10:31 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, Advocacy, down syndrome, Special Needs, pulmonary hypertension, trach, faith, Life With Special Needs, special needs parenting, g-tube, dreams, Maya Angelou

Blog Resurrection

One of my goals for this summer was to try and see if I could breathe some new life into this old blog. A Resurrection of sorts. I find myself wondering how I ever had time to blog at all. This old body of mine is slowing down by the millisecond. I’ve...

Published Mon, Jun 09 2014 10:46 AM by Praying For Parker

Filed under: down syndrome, Special Needs, blenderized diet, Life With Special Needs, special needs parenting, LDS Mission

Special Needs Massage Therapy

I’d been wanting to get Parker hooked up with someone experienced in special needs massage therapy. Interestingly enough, in the state of Utah kids on regular Medicaid waivers are covered for special needs massage therapy. Kids like Parker who are...

Published Mon, Jun 09 2014 7:56 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, down syndrome, pulmonary hypertension, Therapy, Life With Special Needs, special needs parenting, speciial needs, massage therapy

Aborting Babies Because of Down syndrome.

It was feeling as though there were some in the world getting the message. A life with Down syndrome is a life worth living. I’ve watched as the statistics began a slow decent into lower percentages. Where it was once reported that 90% of all prediagnosed...

Published Tue, Jun 10 2014 7:38 PM by Praying For Parker

Filed under: Advocacy, down syndrome, abortion, T21, Trisomy 21, special needs parenting

Yard Sale Search of 2014

It’s the busiest shopping season of the year! My Bailey Girl and I have been out on the hunt three times already! She’s decorating a brand new gorgeous and hip condo and, well, I’m looking for practical items. Whether looking for the...

Published Mon, Jun 16 2014 10:25 AM by Praying For Parker

Filed under: yard sales, Life With Special Needs, special needs parenting, saving money with yard sales, yard sailing, yard sale deals

Summertime at the Hodson’s

For a lot of people summer is a time of vacations, hanging out at the pool, and kicking back. For me summer is a time for prepping my pantry. Yeah, I’m some big time fun at parties too, I know. To be honest I love the feeling of knowing I can go...

Published Wed, Jul 09 2014 9:15 AM by Praying For Parker

Filed under: frugal living, backyard gardening, Life With Special Needs, special needs parenting, blenderized diets. blenderized diet recipe

Special Needs Homeschooling , Blenderized Diets and more.

We are counting down the days until a new school year here at the Hodson’s. The Blue Eyed Girl will be a (gasp!) Junior, The Curly Girly has just been hired on as an Intern with her very own special needs classroom. Reed is busy getting his school...

Published Mon, Aug 11 2014 6:35 PM by Praying For Parker

Filed under: Special Needs Homeschooling, down syndrome, blenderized diets, frugal living, Life With Special Needs, special needs parenting

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