Praying for Parker

And Barney it is.

I was bemoaning to my Mom a few weeks ago about how Parker really isn’t ‘into’ anything. Oh, he loves balls, books, and dismantling the Christmas Tree. But nothing like my other kids had. Barbies. Sports teams. Littlest Pet Shop. So...

Published Mon, Dec 16 2013 7:37 PM by Praying For Parker

Filed under: Life With Special Needs, special needs parenting, Purple Dinosaur, Barney, I Love You Song

Fine motor skill activities on the light table.

Parker’s first learning session each morning rolls in at 7:30 a.m. with his teacher. They work for a half an hour and then it’s time for Parker’s cares. TWO hours of cares later and Parker is ready for more time in his little classroom...

Published Tue, Dec 17 2013 7:16 PM by Praying For Parker

Filed under: Special Needs Homeschooling, Therapy, Life With Special Needs, sensory activities, homeschooling kids with special needs, special needs parenting, Meeting a kid's sensory needs., fine motor skills, light table activities

Rion Holcombe, a young man with Down syndrome, is going to COLLEGE!

Rion Holcome, a young man with Down syndrome, is going to college. Yup got his letter of acceptance and everything. You know, this really shouldn’t be a news worthy item. It should be such an every day occurrence that people wonder WHY it’s...

Published Thu, Dec 19 2013 9:24 AM by Praying For Parker

Filed under: Advocacy, Life With Special Needs, special needs parenting, Clemson University, Rion Holcombe, LIFE

Changing Christmas

Maybe it’s just me, but for the last several years Christmas has become stressful. It’s become a time where I feel as though I spend the month running around trying to pull miracles out of my armpit, the true meaning of Christmas lost as I...

Published Fri, Dec 20 2013 9:42 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, Christmas, Mary and Joseph, grace

The Unique Life of a Special Needs Parent

Special Needs Parents love our children. Desperately. We are willing to do anything for our child and often find ourselves doing exactly that……anything and everything. We celebrate milestones you may not realize have been achieved. While you...

Published Sat, Dec 21 2013 11:44 AM by Praying For Parker

Filed under: Life With Special Needs, hope, special needs parenting, medically fragile kids with special needs

Mosiah 4:27

It’s just me and Parker here right now. My first chance of the weekend to take a deep breath and ponder as I watch the littlest Hodson boy gazing out the window watching the snow fall. This kids LOVES to be outside. And after several years of snow...

Published Sun, Dec 22 2013 4:38 PM by Praying For Parker

Filed under: Christmas, Life With Special Needs, special needs parenting

Love Is: Special Needs Edition

I recently read that in stressful situations, love has the power to heal. It heals those that receive it as well as those that give it. In our lives we’ll experience negative situations. But there are two truths to get us through the rough patches...

Published Tue, Dec 31 2013 11:40 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, The HIGH Cost of Health Care, Advocacy, down syndrome, Therapy, Life With Special Needs, Hospital Frequent Flyer, special needs parenting, love is, special needs community, ways of showing love

Alternative Funding Sources for Special Needs

Let’s face it. Kids with special needs are expensive. It doesn’t matter if you have insurance or not. Cause you can pretty much bet that there’s going to be a lot of somethings that your insurance ain’t going to cover. Expensive...

Published Thu, Jan 02 2014 10:00 AM by Praying For Parker

Filed under: The HIGH Cost of Health Care, Advocacy, health care, Frequent Flyin' ar the PCMC, special needs parenting, grants for special needs, alternative funding sources, itaalk.org

A Guinea Pig Named Wally

I’ve never been a huge pet person. I always had a cat growing up and even had guinea pigs too. It was great when my mom was there to do the cleaning up. heh. With a house full of kids having another body to take care of simply wasn’t on my...

Published Fri, Jan 03 2014 11:56 AM by Praying For Parker

Filed under: Stuff We LOVE!, Life With Special Needs, special needs parenting, guiena pig cozies, cavy, cavies, pets and kids with special needs, guinea pigs

Mohawk Mayhem

Mayhem isn’t an unknown commodity around these joints. I’ve prayed for more Calgon Moments that I could ever count. And boy have there been some doozies since people started calling me Mom. The latest bit of time frozen in my cerebral cortex...

Published Mon, Jan 06 2014 8:12 AM by Praying For Parker

Filed under: Life With Special Needs, special needs parenting, haircuts

EPSDT: Early Periodic Screening, Diagnosis, and Treatment

I received a phone call today asking questions about Parker’s feeding needs. I usually get calls like this each month before they send out his formula and feeding supplies. They ask what his height is. They ask what his weight is. Then the conversation...

Published Mon, Jan 06 2014 6:51 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, blenderized diet, Life With Special Needs, special needs parenting, Kangaroo Joey Feeding Pump

In Search Of Medical Supplies

I posted on our discovery that because Parker is fed a blenderized diet, Medicaid in Utah no longer believes that he qualifies for formula. Because he no longer qualifies for formula, he no longer qualifies for feeding supplies, even though he takes that...

Published Tue, Jan 07 2014 4:09 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, The HIGH Cost of Health Care, Life With Special Needs, Fisher Paykel, Joey Kangaroo Pump, mini one buttons, Shiley cuffed trachs

Dealing with Food Inflation

One of my big goals during the holidays is to stock up on all the great grocery deals. Well, at least it was when there were great grocery deals during the holidays. It was disappointing to see that turkeys never really went down to the low prices of...

Published Thu, Jan 09 2014 7:03 PM by Praying For Parker

Filed under: frugal living, thrifting, Life With Special Needs, prepping for hard times, paying off debt, inflation

God is Able

It’s been a pretty sweet few days. A bit of peace and hope have made their way into my heart. I’ve been reading some excellent books on faith and it’s connection to gratitude. Yup. Gratitude. It’s not just for Thanksgiving anymore...

Published Mon, Jan 13 2014 10:21 AM by Praying For Parker

Filed under: down syndrome, faith, Life With Special Needs, special needs parenting, my one word

The end of the beginning of my blogging.

Blogging has changed since I first began this site about 8 years ago. It started as a way to keep a journal of sorts about Parker’s life and add in a bit of advocacy as well. As time has gone on bloggers have made pretty successful businesses from...

Published Wed, Jan 15 2014 2:13 PM by Praying For Parker

Filed under: Special Needs Homeschooling, down syndrome, Life With Special Needs, Sensory Tubs, blogging, special needs parenting

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