Praying for Parker

His personality isn’t disabled.

I look over and watch as Reed tickles and blows raspberries on Parker’s stomach. Yeah, he’s got to be careful not to muck with the g-tube, but that’s no big deal. Parker still laughs with delight, lifting up his pajama top hoping for...

Published Wed, Nov 06 2013 9:07 AM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, special needs parenting

An Echocardiogram and other terrors.

I think I’m doing pretty damn good. Parker has a sedated echocardiogram on November 12th and I have yet to hyperventilate myself into an oblivion. That’s because I’m making Reed go up this time. Yeah. I wish. I know. An echocardiogram...

Published Thu, Nov 07 2013 8:33 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, pulmonary hypertension, Life With Special Needs, Hospital Frequent Flyer, medically fragile kids with special needs, speial needs parenting, echocardiogram

Birthdays and the kid with special needs.

A Facebook friend was asking about ideas for birthdays and the kid with special needs. Her son is a lot like Parker. Non-verbal. NPO. Not really into any specific characters. Can’t go anywhere for a birthday party because it falls smack dab at the...

Published Thu, Nov 07 2013 7:11 PM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, special needs parenting, birthday party ideas

Pulmonary Hypertension Sucks

And it was almost like a tragedy to me. Oh, how I understand these words. I remember the day they told us that Parker had severe Pulmonary Hypertension. It was truly the worst day of my life. I HATE Pulmonary Hypertension. If you listen, this Mama explains...

Published Fri, Nov 08 2013 8:15 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, special needs parenting, down syndomre, heart disease, lung pressures

School pictures and other dumb ideas.

Parker’s Home and Hospital teacher asked if I would bring Parker in today for school pictures. My first thought was to decline. Pictures and Parker have been a not so fun experience the last couple of years. If I’m lucky enough to snap a cute...

Published Fri, Nov 08 2013 7:01 PM by Praying For Parker

Filed under: Life With Special Needs, special needs parenting, school pictures, special ed

Veterans Day

Parker isn’t the only Brave Hero in our family. Nope. He comes from a long line of Heroes, and a few horse thieves thrown in just for fun. Yup, Parker walks in the footsteps of my Dad for whom we are celebrating Veterans Day today. My Dad was the...

Published Mon, Nov 11 2013 8:03 AM by Praying For Parker

Filed under: Life With Special Needs, Family and Friends, Veteran's Day, William Henry Branson Harrison, Viet Nam War

The Gift of a Birthday

Sunday we celebrated. Our entire family gathered around the littlest Hodson boy to share good wishes, eat cake and open gifts. Afterwards we did what we always do when we celebrate this Hero’s birthday; we watched his slide show from when he was...

Published Mon, Nov 25 2013 7:44 PM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, special needs parenting, Birthdays, gifts

The Flannel Shirt Tradition

My Dad has always loved him a flannel shirt. They wear like iron. Get softer the older they get. And allow you to keep that furnace on a lower setting during the winter. What’s not to love. I smiled when Rigel come dashing up from downstairs in...

Published Thu, Dec 05 2013 1:22 PM by Praying For Parker

Filed under: Life With Special Needs, special needs parenting

Popping The Question

I swore to myself that I’d never ask The Question. My ability to remain hopeful was stronger if I didn’t know. But after a particularly disappointing heart cath, well……I had to know. And so I found myself Popping The Question....

Published Sun, Dec 08 2013 12:44 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Believe, courage, faith, Life With Special Needs, hope, special needs parenting

Montessori Inspired Christmas Suncatcher

One of the best things about Christmas are the crafts I’ve made with my kids. Nothing fancy. Nothing expensive. Simple things that tend to make my heart sing when I uncover them from the Christmas boxes all these years later. Now I understand the...

Published Mon, Dec 09 2013 7:34 AM by Praying For Parker

Filed under: Life With Special Needs, special needs parenting, fiine motor skill activities, suncatchers, kids crafts, Montessori inspired crafts

Tamiflu, Puke and Fevers

It started when Reed told me Kenny was staying home from school because she had just puked. Awesome sauce. I can’t think of anything I love more than a day of praying everyone’s head winds up in the vicinity of the toilet when their guts come...

Published Mon, Dec 09 2013 9:24 PM by Praying For Parker

Filed under: frugal living, Life With Special Needs, special needs parenting, Puke, laundromats, flu, Tamiflu, H1N1

West Jet Christmas Miracle

I loved watching this and I may even have needed a few tissues to get me through. I hope you enjoy it as well! I think the elves had as much, if not more fun than the recipients! West Jet Christmas Miracle The post West Jet Christmas Miracle appeared...

Published Tue, Dec 10 2013 6:27 PM by Praying For Parker

Filed under: Stuff We LOVE!, Christmas Miracles, Better to Give than Receive, West Jet

Great FREE PRINTABLE PACKS

I love homeschooling Parker. My philosophy of teaching includes a lot of hands on learning time. I don’t purchase a curriculum, but rather put together my own each year which includes some pretty great Free Printable Packs that cover all kinds of...

Published Wed, Dec 11 2013 9:26 AM by Praying For Parker

Filed under: Special Needs Homeschooling, Stuff We LOVE!, Christmas, homeschooling, Life With Special Needs, special needs parenting, educational ideas, Free Printables, special needs blog

How too many in this world view those with special needs.

I had to check to make sure that this was a satire site. The post, entitled Belgium: Senate Approves Measure Allowing Doctors to Euthanize Children had to be something from The Onion, right? It couldn’t be reality. It couldn’t really be reflective...

Published Fri, Dec 13 2013 12:23 PM by Praying For Parker

Filed under: Special Needs, Life With Special Needs, Politics of Special Needs, murder, euthanasia, Belgium

Dreaming of Growing Blueberries in Utah

I know that most blogs are posting words in hues of green and red and here I am talking about growing blueberries in Utah. If you knew how long I’d been hoping to be able to score some whiskey half barrels for this project, you might under stand...

Published Mon, Dec 16 2013 8:54 AM by Praying For Parker

Filed under: Life With Special Needs, Victory Garden, special needs parenting, back yard gardens, inversions, blueberries, utah

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