Praying for Parker

Kefir, Baby.

One thing we have added to Parker’s blenderized diet that has been very beneficial is Kefir. Kefir is like a drinkable yogurt, except it packs a more powerful punch when made with live Kefir grains. The first few batches of Kefir I made was with...

Published Wed, Apr 28 2010 9:13 AM by Praying For Parker

Filed under: Cheap and Easy, Stuff We LOVE!, blenderized diets, g-tubes, Kefir

Melissa and Doug Standing Art Easel and Supplies: A Giveaway!

Art is a window into a soul. With the swipe of a brush a heart’s worth of meaning can come to life. Creativity has the ability not only to inspire, but to heal. For a kid with special needs, art can be a form of communication, a way to master fine...

Published Fri, Apr 23 2010 2:31 PM by Praying For Parker

Filed under: down syndrome, Special Needs, giveaway, Melissa and Doug, contest, Standing Easel, Reviews and Giveaways!

Who took my groove and how do I get it back?

I’m feeling a little overwhelmed these days. Parker’s sleeping heart rate has increased. When all is good in the world, Parker’s sleeping heart rate on his vent is in the 50-60’s. Lately it’s been moving up. Yesterday’s...

Published Thu, Apr 15 2010 7:07 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs

We Still Have So Far To Go: The Story of Baby Doe

April 9th marked a quiet sort of anniversary. It would have been Baby Doe’s 28th birthday. would have If just for a bit of compassion. A bit of courage. Baby Doe was born without his esophagus, a totally repairable condition with a 90% success rate...

Published Tue, Apr 13 2010 9:03 PM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, down syndrome, I'm The Mama: Hear Me Roar!, Utah Legislature, Baby Doe

Homemade Pitas, Baby!

I’ve shared my love for the Artisan Bread in 5 Minutes a Day recipe before. And my love only grows. This recipe? Makes the BEST pitas. The. Best. Pitas are beyond easy to make. And homemade pitas offer up a HUGE bang for your buck not only in cost...

Published Mon, Apr 12 2010 6:51 PM by Praying For Parker

Filed under: Totally Worth The Calories, Artisan Bread in 5 Minutes a Day, homemade pitas

We have a winner…….

Cathy from Whatever To Us is our GummyLump.com winner! Cathy was chosen via random.org. I LOVE being able to announce winners. I working on a few more giveaways from Melissa and Doug AND Discount School Supply. (DSS would be held over at 5 Minutes for...

Published Mon, Apr 12 2010 8:26 AM by Praying For Parker

Filed under: Stuff We LOVE!, GummyLump

The Fight of Alex Fitzgerald

I lived in Turkey for 3 years while I was growing up. Not on a military base, mind you, but in an apartment building where most of our neighbors were Turks. Living on the economy in Turkey is much different than living anywhere in the US. Not that I’ve...

Published Wed, Apr 07 2010 8:33 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, A Day In Our Life, Advocacy, fundraising, alex fitzgerald, t-mobile, health care

Wordless Wednesday/Special Exposure Wednesday: Walking Tall

One of Parker’s favorite places to hang out is on the shoulders of his 6′3″ brother, Brant. ps: have you entered our giveaway yet? Read More...

Published Tue, Apr 06 2010 9:31 PM by Praying For Parker

Filed under: People I Love

Producing More While Consuming Less: A Frugal Lifestyle

If I could, I’d turn all of my lawn into garden. Reed, however, not so much. I’d love a few chickens running around my backyard. Parker’s Pulmonologist shot that idea down in a flash. Something about chicken dust and trachs and trashed...

Published Tue, Apr 06 2010 11:48 AM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Cheap and Easy, Uncategorized, Stuff We LOVE!, frugal living, consumerism, fruality

A GummyLump.com Giveaway!

We love puzzles at our house. They provide a great way to work on pre-reading skills. The offer a fun way to review old skills. Puzzles are a good way to introduce new vocabulary. GummyLump offers a fantastic assortment of puzzles. Including our favorite...

Published Thu, Apr 01 2010 6:25 PM by Praying For Parker

Filed under: Special Needs Homeschooling, Stuff We LOVE!, Melissa and Doug, GummyLump.com, Melissa and Doug Puzzles, GummyLump

We All Pick Our Own Battles: The R Word

Some people chose to fight for inclusion for their kid with special needs. Me? I’ve chosen to home school Parker. Some aren’t able to keep up with new bills being presented that effect the life of someone they know with special needs. Me?...

Published Wed, Mar 31 2010 1:13 PM by Praying For Parker

Filed under: Advocacy, I'm The Mama: Hear Me Roar!, spread the word to end the word, The R Word

Sometimes I’m Afraid

If you were to ask me whether or not Parker has made my marriage stronger or more stressful, I’d have to hesitate before I answered you. Not because I don’t know the answer, but because I’m not sure how you would react to it. If I told...

Published Mon, Mar 29 2010 7:28 AM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, I'm The Mama: Hear Me Roar!, acceptance, trust

I’ll share mine if you’ll share yours…

My natural instincts are to rush, cram, and just get through the dealings of my day. But one thing I’ve learned about being Mom to a medically fragile child with special needs, is that slower is often better. Especially after the week from hell...

Published Thu, Mar 25 2010 9:33 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Special Needs, simple living

CBC Results

We got the call we’ve been waiting (and waiting and waiting and waiting) for. The results? Well, let’s just say that the words “beautiful” and “perfect” were used to describe our Brave Hero’s blood work. Uh. ‘Scuse...

Published Wed, Mar 24 2010 5:38 PM by Praying For Parker

Filed under: Fantabulous-ness, down syndrome, rsv, pneumonia, leukemia, CBC

Prayers for a clean CBC and NO Leukemia

Kids born with Down syndrome are also born with a much higher chance of dealing with Leukemia than their typical peers. Parker gets monthly CBCs because of his pulmonary hypertension and the meds he takes to battle it. So a close eye is always kept on...

Published Tue, Mar 23 2010 12:00 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, down syndrome, rsv, leukemia

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