Praying for Parker

On being a Special Needs Mama

I get a lot of questions from those around me asking “how do you do it?” I’m always perplexed by this question. How could I NOT do it? How do I love my kid? Seriously? Have you seen this face? What’s NOT to love? How do I survive...

Published Tue, Nov 08 2011 7:54 PM by Praying For Parker

Filed under: down syndrome, Life With Special Needs

Dear Moms of Kids who use LTV Vents: HELP!

One signs the Zombie Apocalypse has arrived would be something going smoothly in our quest to keep our Brave Hero breathing these days. It must still be a long way away if my today is any indicator. You’ll remember, Parker finally has his sleep...

Published Wed, Jun 13 2012 2:58 PM by Praying For Parker

Filed under: Advocacy, LTV vent and heater carts

Upper GIs, FEES studies, and keeping our Hero safe.

I have a sick kid today. A really sick kid. I’m hoping I can keep his lungs safe enough to keep him out of the hospital the next few days. We took Parker in on Wednesday for an Upper GI. I worry about his Nissen when he throws up over it as easily...

Published Fri, Apr 06 2012 12:07 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, The HIGH Cost of Health Care, Advocacy, aspiration pnuemonia, sleep safe bed

P is for Pumpkin: Special Needs Style

The ability to from the concrete to the abstract is an important skill for a kid with special needs. A picture of a pumpkin is fun, but the ability to understand what that picture is representing is a must. So for Parker’s unit on pumpkins, we’ve...

Published Sat, Oct 10 2009 10:52 AM by Praying For Parker

Filed under: Special Needs Homeschooling

Well…….we didn’t get the results we had been hoping for

His pressures are about the same. Which is really confusing as his BNP is perfect. There is no leaking in his valves. His EKG has been improving. He’s gaining weight. All signs were a go for some good news. There is also an issue with how well his...

Published Fri, Sep 25 2009 7:49 PM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life

Common Core Standards and Special Needs Students

Recently a protest was held in Utah in regards to Common Core Standards and Special Needs Students. I thought I’d take a minute and try to present a few facts in a simple, easy to understand manner. Cause I’m all about the simple, people....

Published Tue, Oct 14 2014 10:09 AM by Praying For Parker

Filed under: Special Needs, Life With Special Needs, special needs parenting, common core, Lynne Mower for Alpine School District School Board

The Unique Life of a Special Needs Parent

Special Needs Parents love our children. Desperately. We are willing to do anything for our child and often find ourselves doing exactly that……anything and everything. We celebrate milestones you may not realize have been achieved. While you...

Published Sat, Dec 21 2013 11:44 AM by Praying For Parker

Filed under: Life With Special Needs, hope, special needs parenting, medically fragile kids with special needs

Homeschooling a child with Down syndrome.

Every 4 months or so I block out a couple of days for planning Parker’s home school curriculum. You’d think that in that much time I’d be able to knock out the entire year. Nope. No such luck. It takes time to translate Parker’s...

Published Mon, Oct 07 2013 9:58 AM by Praying For Parker

Filed under: Special Needs Homeschooling, Special Needs, homeschooling, Life With Special Needs, special needs parenting

Medicaid and my medically fragile kid.

Last week was the big Trach/Vent Clinic where we get to see ENT, Pulmo, a Developmental Doctor and a RT. It’s a long day but it’s worth it. A couple of things that happened though, made me wonder about the future of Medicaid. We don’t...

Published Sat, Apr 20 2013 9:46 PM by Praying For Parker

Filed under: health care, medicaid, travis c. waiver, Life With Special Needs, Hospital Frequent Flyer

Redefining ‘Poor’

The economy is a mess. Are we in a recovery? Or simply waiting for the other shoe to drop? People are living in tent cities and underground tunnels. All it takes is one sentence spoken by someone ‘in the know’ to set the stock markets soaring…...

Published Wed, Sep 30 2009 5:25 PM by Praying For Parker

Filed under: A Day In Our Life, frugality, Fantabulous-ness, Cheap and Easy

Things you never think about until you become a parent of a kid with special needs.

Have you entered the raffle for a Scentsy product of YOUR choice? All proceeds go towards Parker’s medical fund. _____________ I got to thinking today about all the things that occupy my brain, that never would have even crossed it before Parker...

Published Mon, Nov 01 2010 8:47 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, Scentsy

I’ll show you ours if you show me yours….

Parker and I are over at our other gig, The Homeschool Post. We are showing you ours. And we hope you’ll show us yours. Read More...

Published Mon, Aug 01 2011 7:06 AM by Praying For Parker

Filed under: Special Needs Homeschooling, homeschool, homeschooling a kid with special needs

The Great Depression, My Grandparents and Me.

My dad grew up in an orphanage. His dad died when he was young, leaving his mother to raise a family of 4 kids by the money she earned cleaning homes. Because she was gone so often working, leaving the oldest to tend the younger, a neighbor called the...

Published Sat, Apr 21 2012 8:25 AM by Praying For Parker

Filed under: From Scratch, frugal living, DIY, Victory Garden, victory gardens, the great deprssion

Dehydrating Pumpkins

We’ve harvested the winter squash and pumpkins. FIFTEEN Pumpkins to be exact. Not too shabby considering the teeny space my kids refer to as ‘the farm’ while rolling their eyes. Most years I have pureed my pumpkins and then frozen them...

Published Tue, Oct 05 2010 9:09 AM by Praying For Parker

Filed under: A Day In Our Life, Cheap and Easy, Garden Goddess, From Scratch, organic gardening, VitaMix, dehydrating pumpkins, excaliber dehydrator

Let’s Spend the Night with Parker

We’re down another night nurse. It’s kind of a sad story that isn’t mine to tell, but Reed and I find ourselves without a weekly night nurse. Again. Why, you may ask, do we even need a night nurse? Lemme walk you through a typical night...

Published Tue, Nov 23 2010 8:05 AM by Praying For Parker

Filed under: A Day In Our Life

Syndication

Recent Posts

Tags

Archives