Praying for Parker

20 Hours and Counting

We have an Ebay auction going on right now. It ends tomorrow. About 2o hours from now. As in all of our other auctions, the proceeds go directly towards keeping our Brave Hero alive and healthy. My sweet Dad is going to be donating a lot of his ham radio...

Published Sun, Jan 03 2010 2:00 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, A Day In Our Life, Fantabulous-ness

Blenderized Diets for G-tube Fed Kids (Featuring Greensbury Market Oranic Beef)

While in the hospital after Parker’s Nissen I was fortunate enough to meet with a nurtritionalist who gave me an outline for a blenderized diet to replace the 5 cans of Pediasure a day Parker had been receiving. The diet is based on The Homemade...

Published Mon, Jan 04 2010 2:49 PM by Praying For Parker

Filed under: Fantabulous-ness, Stuff We LOVE!, Greensbury Market, homemade formula, blenderized diets, g-tube fed kids

Who Needs Play-Doh When You Can MAKE Snow Dough?

This week’s preschool theme is: Snow. Last night I made a double batch of ‘Snow Dough. It’s awesome. (I don’t know about you, but I think the Playdough you purchase in the store smells awful. blech. Making it is fast and simple...

Published Tue, Jan 05 2010 12:09 PM by Praying For Parker

Filed under: A Day In Our Life, Special Needs Homeschooling, Fantabulous-ness, Cheap and Easy, From Scratch, Snow Dough, Homemade PLaydough

New Kid On The Block

I’d like to introduce you to a friend of mine, Erin Breedlove. Erin blogs at Empowering People and Changing Lives Erin, a college student majoring in Music Therapy, has mild CP. She understands, first hand, the power of an advocate. In Erin’s...

Published Wed, Jan 06 2010 10:28 AM by Praying For Parker

Filed under: Uncategorized, Erin Breedlove, music therapy, cerebral palsy

Save The Date(s)!

May 28th and 29th! I’ll be Right here: Okay. I know what you are thinking……that they must have been exceptionally desperate to invite HER to be on a panel at a blogging conference. But, nope. I mean just look at the awesome that will...

Published Wed, Jan 06 2010 7:58 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Advocacy, I'm The Mama: Hear Me Roar!, casual blogger conference

Fresh Courage Take

It’s as though all of my safe places are gone. The niches into which I used to retreat have sealed their doors. The Worry has not only returned, but crept into every crevice available. Even when life is good, It still sneaks up and pulls the faith...

Published Thu, Jan 07 2010 9:39 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, A Day In Our Life, book of mormon, fear, courage

Making Yogurt at Home

I’ve told you about Parker’s blenderized diet. And how expensive it is proving to be. So, I’ve been working on ways to bring the cost down. I can purchase a quart of organic whole milk for about $4.00. But I prefer to offer up yogurt...

Published Mon, Jan 11 2010 2:56 PM by Praying For Parker

Filed under: A Day In Our Life, Totally Worth The Calories, From Scratch, how to make yogurt at home, homemade yogurt

Technology and the Child with Special Needs

I’ll admit it. When it comes to new technology I’m a little slow on the uptake. My usual game plan includes handing any and all tech issues over to one of my kids and offering up a really pathetic “pretty please?” Ahem. We all...

Published Wed, Jan 13 2010 8:50 AM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Stuff We LOVE!, iPod Touch, Voice4u, augmentative and alternate communication applications

Parker’s vote for the next American Idol is……..

Maddy Curtis! She has MY vote too. (I know this is bigger than my page, but I don’t know how to fix it. Anyone?) I’m been trying for a few years now to convince my Bailey to audition for Idol when they come to Salt Lake. Maybe Maddy will inspire...

Published Wed, Jan 13 2010 12:09 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Advocacy, American Idol, Maddy Curtis

Winter: A Preschool Unit

Some days preschool just doesn’t go as well as this Mama would like. Case in Point: When a certain little Brave Hero decides to ignore everything and just turn his back on me. Parker is still working off his anger from the surgery and that FEES...

Published Thu, Jan 14 2010 10:07 AM by Praying For Parker

Filed under: A Day In Our Life, Special Needs Homeschooling, preschool unit, speical needs homeschooling, winter

Discount School Supply: A Giveaway!

It’s no secret. I love the stuff I get from Discount School Supply. And now, thanks to the great folks over at DSS, I can give one of you the opportunity to see exactly what I’m talking about! But first the the legal-eze: I did NOT receive...

Published Fri, Jan 15 2010 8:19 AM by Praying For Parker

Filed under: Uncategorized

Why I would never ‘cure’ my kid with special needs.

Every once in a while I’ll come across a conversation were parents are waxing philosophical about whether or not they would ‘cure’ their child if they could. My answer to this question may raise some eyebrows. (And offend anyone who...

Published Sun, Jan 17 2010 5:12 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, A Day In Our Life, Advocacy, Special Needs, People I Love, advocay, a cure for down syndrome?, what I velieve

A Lacing Activity For Fine Motor Skills!

We are on our way up to Primary Childrens Hospital today. It’s the after the Nissen follow up appointment. I don’t mind these appointments so much. No stress. Just making sure all has healed as it should. (insert sigh of relief here) But I...

Published Tue, Jan 19 2010 9:24 AM by Praying For Parker

Filed under: A Day In Our Life, Special Needs Homeschooling, Fantabulous-ness, homeschooling, sewing cards, home school

Advocacy and the Elevator Ride

We were in the elevator, the first step in our trek to make our way back home after Parker’s doctor appointment. Me, the Brave Hero, and the Brave Hero’s truck, er stroller with oxygen bottle off to the side. At the last minute a Dad and his...

Published Wed, Jan 20 2010 7:50 AM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, down syndrome, Special Needs, I'm The Mama: Hear Me Roar!

Have Cape, Will Soar

Parker’s been working on mastering his shapes. We’ve identified. We’ve matched. We’ve traced. Colored and created. Now we are upping our game. We offer Parker two different shapes and ask him to hand us a specific one. This is...

Published Thu, Jan 21 2010 7:45 AM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Advocacy, down syndrome, Special Needs, People I Love, homeschooling

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