Praying for Parker

A Bedroom Re-do: Special Needs Style

I’ve written before about Parker’s safe room. It’s the room Parker spent most of his first three years of life in as he circled the drain. The space where Parker hangs out when we need to keep him away from the rest of the family due...

Published Wed, Mar 10 2010 6:40 PM by Praying For Parker

Filed under: A Day In Our Life, Special Needs, redocorating bedroom

The Sick is Back

It was a rough night. I woke up to Parker crying. Our night nurse (we actually had one last night) was trying to calm him down, but sometimes a guy just needs his Mom. He’s sick. The Snot is back. In spades. And to make life even more [...] Read...

Published Mon, Feb 01 2010 8:48 AM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, People I Love, heroes

It’s (S)not a Problem.

Moms of kids with trachs know that along with those pieces of plastic tubing and velco ties comes a lot of……er……..snot. Hey. Let’s face it. There really isn’t a pretty word that describes the gelled waste that is made...

Published Tue, Feb 02 2010 8:43 AM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, People I Love, I'm The Mama: Hear Me Roar!

Nova Naturals Giveaway Winner

I contacted the first winner of this contest via random.org over a week ago. I waited for a reply. I got *crickets* So, back to random.org Parker and I went. And this time our winner is: Mamikaze! Read More...

Published Sun, Nov 14 2010 9:22 AM by Praying For Parker

Filed under: Fantabulous-ness, Reviews and Giveaways!, Nova Naturals

We are ALL beggars in God’s sight.

Back when I was a kid, and dinosaurs roamed the world, my Dad was in the military, we lived in Turkey. Whenever we lived overseas my Dad insisted we live on the economy. My Dad felt strongly that in order to really experience a country, you needed to...

Published Sun, Aug 01 2010 7:40 PM by Praying For Parker

Filed under: Advocacy, down syndrome, Special Needs, medically fragile children

Pine Cone Bird Feeders: A Tutorial

While you are here would you take a moment and click on our sponsor’s buttons there to your right? Sponsors help keep Parker’s medical needs met! We also have a brand new Google Friend Connect installed. We are using this to know how many...

Published Tue, Jan 04 2011 8:01 PM by Praying For Parker

Filed under: A Day In Our Life, Special Needs Homeschooling, Doing it Special Needs Style

Today We Are Six

Our Brave Hero turned six early this morning. One of my happiest days ever, along with the birth of Parker’s older siblings. Before Parker I kept feeling as though somebody was missing. But six years ago today I knew that finally, we were all here...

Published Fri, Nov 19 2010 12:14 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, People I Love

‘Cause We Need A Little Christmas

Parker’s cardiologist just called. He wants to schedule Parker for a right heart cath. Yesterday. I very calmly told him that our family needed a little Christmas in our lives right now. More than anything else, we need some family time, looking...

Published Mon, Dec 13 2010 9:33 AM by Praying For Parker

Filed under: A Day In Our Life

On The First Day Of Christmas

The Blue Eyed girl to school was on her way … when look what she found! Such great excitement to begin our day! There’s a tag that says it all. And even a certain Brave Hero having himself a ball. A Family Movie Night! A Gift that is perfectly...

Published Tue, Dec 14 2010 4:03 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness

The Pressure to Abort and a Life Worth Living: Down syndrome

I may not know you. But I think I may understand a bit of what you are feeling right now. It’s never easy to discover that the little one growing within your womb may not be what the world considers ‘perfect.’ But what the world doesn’t...

Published Thu, Mar 03 2011 2:48 PM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, down syndrome, People I Love, a life worth living, abortion

A Presentation. An Anthropology Class. And My Niece.

Parker’s been fighting one hell of a virus. Enough snot to sink a ship. Enough grouchy to sink a Mommy. One bright spot though was a Facebook message from my niece. She asked: I am doing a presentation in my anthropology class on kids with special...

Published Wed, Mar 09 2011 8:58 AM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, People I Love, special needs advocacy

The Family That Waxes Together…..

Take a minute and share your thoughts with my niece. Have you entered our Mama K’s Play Clay Giveaway! It ends this Friday! _______________ The 22 year old is dating an esthetician. Luckily for the rest of us, she likes to hone her craft on……well...

Published Wed, Mar 09 2011 6:14 PM by Praying For Parker

Filed under: A Day In Our Life, People I Love

Montessori Inspired Christmas Suncatcher

One of the best things about Christmas are the crafts I’ve made with my kids. Nothing fancy. Nothing expensive. Simple things that tend to make my heart sing when I uncover them from the Christmas boxes all these years later. Now I understand the...

Published Mon, Dec 09 2013 7:34 AM by Praying For Parker

Filed under: Life With Special Needs, special needs parenting, fiine motor skill activities, suncatchers, kids crafts, Montessori inspired crafts

Empathetic Kids with Special Needs

I just put my grandson down for a nap in his pack and play. He’s not too thrilled with the idea and is letting all of us know by screaming at the top of his lungs each and every one of his objections. It’s rough when all you want to do is...

Published Tue, Nov 17 2015 9:27 PM by Praying For Parker

Filed under: Special Needs, Life With Special Needs, teaching kids empathy, intellectual delays, empathy

Name Activities for kids with Special Needs

There comes such a sense of accomplishment when a child learns how to write their name. That’s one of the reasons I persist in the perfection of Parker’s signature. It’s really no longer a matter of IF the kid can write his name, but...

Published Mon, Mar 17 2014 8:02 PM by Praying For Parker

Filed under: Special Needs Homeschooling, Reading Activities, name writing activities, special needs parenting, fine motor skill activities, hands on writing activities

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