Praying for Parker

Shirley J’s ‘Master 30 Meals’ GIVEAWAY!

As many of you know, one strategy I employ to help afford Parker is cooking by scratch and keeping a stocked pantry The Prudent Homemaker style. But I understand that many really don’t know how to cook from scratch, and others are totally overwhelmed...

Published Mon, May 23 2011 4:38 PM by Praying For Parker

Filed under: A Day In Our Life, Totally Worth The Calories, giveaway, Reviews and Giveaways!, Shirley J, Shirley J Master 30 Meals

This just in…..

Parker’s heart cath has been changed from July 26th to some time in August. The anesthesiologist I requested won’t be available until August. I wanted the best in on Parker’s next heart cath, so if that means waiting a bit longer, so...

Published Fri, Jul 15 2011 10:21 AM by Praying For Parker

Filed under: A Day In Our Life

Puke, Poop and other things that go splat…

Parker was put on a 10 day course of Septra the Friday before last. At about day 5 he started gagging and throwing up over his Nissen. ahh. A c-diff test was ordered. Two days went by. And the results came back. Negative. We went ahead and took Parker...

Published Mon, May 02 2011 4:23 PM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life

Double Coupons at Walmart!

My local Walmart has started something new. In a bid to compete with a local grocery store that doubles coupons each Tuesday, our local Walmart is now also offering double coupon Tuesday. At first I wasn’t too interested. I don’t do a lot...

Published Wed, May 04 2011 5:37 PM by Praying For Parker

Filed under: Fantabulous-ness

When that rug keeps getting pulled out from under your hopes…

Tuesday Reed and I took Parker up to PCMC for a swallow study. Why? To see if Parker’s surgery to tent his epiglottis worked. When we got up there, I went to check in only to discover that our appointment was actually for Riverton, NOT PCMC. Ah...

Published Wed, Mar 16 2011 3:28 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, swallow study, aspiration in children with down syndrome

Apple Picking

My parents have a small but growing orchard in the land behind their home. Funny thing about apple trees. Some years you get so many apples that you couldn’t find enough people to give them away to. Other years you get nuthin’. Read More....

Published Sun, Sep 11 2011 7:32 PM by Praying For Parker

Filed under: A Day In Our Life

Speech Therapy

Parker has speech therapy on Tuesdays. We’re lucky. His speech therapist is superb. Parker loves to wear his passey muir valve and really let his voice be heard. Today’s lesson began with some time at the mirror. This is were Parker works...

Published Tue, Sep 13 2011 6:01 PM by Praying For Parker

Filed under: A Day In Our Life, speech therapy, iPad, tap to talk, communication devices

An early morning ambulance ride.

My morning began around 2:45 a.m. It’s amazing how seeing your kid in respiratory distress can wake a girl right up. Kinda like a shot of Red Bull straight into your veins. When we couldn’t maintain Parker’s O2 levels on the highest...

Published Tue, Nov 22 2011 3:21 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, Life With Special Needs, Hospital Frequent Flyer, asperation pneumonia, adenovirus

Preventing Sexual Abuse of Children with Special Needs

Estimates show that up to 90% of females with an intellectual disability and up to 50% of males will be sexually abused. *gasp* I truly didn’t realize the numbers were so high. I also didn’t know that Ped*phile websites often mention children...

Published Fri, Nov 18 2011 7:51 AM by Praying For Parker

Filed under: Advocacy, Special Needs, Life With Special Needs, sexual abuse, childre

What’s YOUR Grocery Budget?

I remember the first time that, as newlyweds, Reed and I went over $100.00 for groceries. It was kind of a shock. $100.00 was a LOT of money back in the days when dinosaurs roamed, even though in reality it was just $50.00 for to feed each of us for a...

Published Mon, Nov 07 2011 5:06 PM by Praying For Parker

Filed under: frugal living, Life With Special Needs, how to save on your grocery costs, Coupons, grocery budget, Walmart double coupons

A Santa Craft!

I’m all about the texture crafts to help meet Parker’s sensory seeking nature. There some though that I tend to shy away from because of the trach. Like anything with cotton balls. I can just see me trying to explain to Parker’s surgeon...

Published Fri, Dec 09 2011 1:54 PM by Praying For Parker

Filed under: Special Needs Homeschooling, homeschooling, Santa crafts, Art, Art Activities

Educating Your Child With Special Needs

It’s a hot topic. Especially where I live. Educating your child with Down syndrome. Or any other ‘different’ for that matter. Do you choose a small groups/life skills class? Total or partial inclusion? How many hours a day in a typical...

Published Wed, Sep 14 2011 9:34 PM by Praying For Parker

Filed under: A Day In Our Life

Apple Picking with Parker

My parents have a small orchard on the land behind their house. This year’s apple and pear bounty are on track to be epic! Parker and my Mom showing off the first (not quite ripe) apple of the season. This variety of apples make excellent pies....

Published Sun, Sep 11 2011 8:35 PM by Praying For Parker

Filed under: Recipes, recipe for apple pie filling, apple picking

Is it Spring yet?

Parker loves being outside. All winter long his favorite place to sit is in front of the door in this video …… waiting….wanting…..to go outside. I left the door open the other day by accident. Not all the way open. Just not shut...

Published Sun, Apr 03 2011 3:11 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, spring, children with disabilities

Homeschooling a Medically Fragile Child with Special Needs

Homeschooling this year is going to require a new focus: Teaching a child with significant hearing loss. I’ve got calls in to Utah’s School for the Deaf and Blind as well as into Parker’s Home and Hospital teacher. Sad...

Published Wed, Aug 22 2012 8:45 AM by Praying For Parker

Filed under: Special Needs Homeschooling, down syndrome, Special Needs, homeschooling, Life With Special Needs

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Shirley J’s ‘Master 30 Meals’ GIVEAWAY!

This just in…..

Puke, Poop and other things that go splat…

Double Coupons at Walmart!

When that rug keeps getting pulled out from under your hopes…

Apple Picking

Speech Therapy

An early morning ambulance ride.

Preventing Sexual Abuse of Children with Special Needs

What’s YOUR Grocery Budget?

A Santa Craft!

Educating Your Child With Special Needs

Apple Picking with Parker

Is it Spring yet?

Homeschooling a Medically Fragile Child with Special Needs