Praying for Parker

Debt and the child with special needs

As a parent of a medically fragile child with special needs, I KNOW there are other special needs parents working to deal with medical debt while trying to keep a child alive. I’m a big believer in sharing ideas, and offering up support to each...

Published Thu, Nov 03 2011 6:02 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, frugal living, Life With Special Needs, medical debt

Utah’s Representative Holly Richardson Resigned Today

Former Representative Richardson resigned today in order to work work full time on former Senator Dan Liljenquist’s bid against Senator Orin Hatch’s congressional seat. That makes not one, but two desperately needed, former level headed legislators...

Published Fri, Jan 06 2012 12:20 PM by Praying For Parker

Filed under: Life With Special Needs

Just the way you are…..

And the sick came back.

Pneumonia. Adenovirus. Aspiration Issues. Finally healthy. Then two week later, sick again. Stomach flu sick. Diaper change sick. Wide open windows sick. Contemplating gas mask sick. Can we keep him hydrated at home sick. Time to...

Published Tue, Jan 10 2012 8:37 PM by Praying For Parker

Filed under: down syndrome, Special Needs, Life With Special Needs, stomach flu

Flour-free Playdough Recipe

It took a long time before the Brave Hero would even think about touching playdough. Now, not only does he enjoy playing with it, he’s willing to explore new textures within it. So I made a batch of flour-free playdough, because of it’s reputation...

Published Thu, Jan 19 2012 9:51 AM by Praying For Parker

Filed under: Special Needs Homeschooling, Art Activities, playdough recipes, flour free playdough, cornstarch playdough, play dough

The Bill of Rights: Special Needs Style

A Bill of Rights of parents of kids with Special Needs (I don’t know who originally created this. If anyone knows, please let me know and I’ll give them credit.) You have the right to take one day at a time, and take that day positively. Having...

Published Thu, Feb 09 2012 8:06 AM by Praying For Parker

Filed under: Advocacy, down syndrome, Special Needs, bill of rights

Poop, A Plan and Prayers

The Poop: Parker’s bowels are back in hyper overdrive. We go a few days where things are looking better only to turn around and be back at square one….. never ending bowel movements that could peel the paint off the walls. Parker’s...

Published Wed, Jun 20 2012 9:27 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, prayers, Life With Special Needs, Frequent Flyin' ar the PCMC

Proof Positive

Parker’s need for a Sleep Safer Bed includes a lot of reasons from his severe aspiration risk to the fact that he easily get entangled in his bolus feeds tubing to the fact that he is a HUGE fall risk climbing out of his crib and a strangulation...

Published Wed, Apr 18 2012 11:48 AM by Praying For Parker

Filed under: The HIGH Cost of Health Care, sleep safer bed appeal

I don’t care what the rhyme says, words DO hurt.

I don’t care what the rhyme says, words do hurt. Especially a word, when used, demeans another human being. Take the r-word for example. A word that rolls off of so many tongues so easily, so carelessly, so thinking it’s funny...

Published Fri, Sep 07 2012 7:48 PM by Praying For Parker

Filed under: end the r-word, r-word counter

To love like that.

A young woman in our local Down syndrome community recently passed away . The line at Heather Probst’s viewing was long. There were lots of high school students there to say their final goodbyes. Heather was well loved. But more than...

Published Mon, Oct 01 2012 4:59 PM by Praying For Parker

Filed under: Life With Special Needs, national down syndrome awareness

An early morning ambulance ride.

My morning began around 2:45 a.m. It’s amazing how seeing your kid in respiratory distress can wake a girl right up. Kinda like a shot of Red Bull straight into your veins. When we couldn’t maintain Parker’s O2 levels on the highest...

Published Tue, Nov 22 2011 3:21 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, Life With Special Needs, Hospital Frequent Flyer, asperation pneumonia, adenovirus

Pneumonia Update: Sunday

The Update: So far, so good…….we’re managing at home. Fever is still spiking. The Moltrin helps some. The Tylenol does nothing. LOTS of sleeping. Except between the hours of 3 a.m. and 5 a.m. sigh. Between this and the tummy issues Parker’s...

Published Sun, Nov 20 2011 1:37 PM by Praying For Parker

Filed under: aspiration pneumonia, Life With Special Needs

Apple Picking

My parents have a small but growing orchard in the land behind their home. Funny thing about apple trees. Some years you get so many apples that you couldn’t find enough people to give them away to. Other years you get nuthin’. Read More....

Published Sun, Sep 11 2011 7:32 PM by Praying For Parker

Filed under: A Day In Our Life

Physical Therapy: Bounce House Style

It’s been a summer full of sinus infections, right heart caths, and allergies. But the cath is over, the antibiotics have kicked in, and it’s time to have a bit of fun before the summer is all but over. But where does one go when it’s...

Published Tue, Aug 30 2011 9:15 AM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, physical therapy, Bounce House

Make Your Own Sensory Table On The CHEAP!

It started with a post on Ikea Hackers. After picking up my jaw over the prices of standing sensory tables I went on a hunt for a DIY version of a sensory table. Okay. So this one isn’t as grand as the ones with the $200.00 price tags. But when...

Published Thu, Aug 04 2011 12:43 PM by Praying For Parker

Filed under: Special Needs Homeschooling, sensory tables, ikea, make your own sensory table

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