Praying for Parker

Go Ahead. Make My day.

Mom’s of kids with special needs are worth getting to know. We’re tough. We’re supportive. We love our kids. We know that we are often unique. Sometimes we find ourselves lacing up our combat boots as we take on the system. And we’ll...

Published Mon, Aug 09 2010 10:32 AM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, down syndrome, Special Needs, I'm The Mama: Hear Me Roar!, advocay

KTVX Channel 4 Utah’s Kimberly Houk’s Interview

I was invited to be interviewed today by Kimberly Houck from KTVX Channel 4 here in Utah in regards to the new health care laws going into effect today. I’m not much of a being on television kinda gal, and declined. But I did spend a minute explaining...

Published Thu, Sep 23 2010 2:41 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, A Day In Our Life, Advocacy, down syndrome, Special Needs, I'm The Mama: Hear Me Roar!, medicaid, KTVX Channel 4, Kimberly Houck, Tea Party

Still Here…..

we are just trying to get our Hero healthy again. We’re on round 2 of Cleocin. Then a round of oral steriods. The results of which I wouldn’t wish on my worst enemy. If I actually had a worst enemy. I’m working on getting some order...

Published Tue, May 04 2010 3:05 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs

Prayers for a clean CBC and NO Leukemia

Kids born with Down syndrome are also born with a much higher chance of dealing with Leukemia than their typical peers. Parker gets monthly CBCs because of his pulmonary hypertension and the meds he takes to battle it. So a close eye is always kept on...

Published Tue, Mar 23 2010 12:00 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, down syndrome, rsv, leukemia

Childhood Hunger in America

Imagine walking into your child’s classroom and knowing that 1 in every 3 of those kids were having to go hungry. In some midwestern states those are the statistics. Yup, right smack dab in our own backyards. Despite food stamps and community outreach...

Published Thu, Nov 19 2009 6:22 PM by Praying For Parker

Filed under: A Day In Our Life, Garden Goddess, Advocacy, From Scratch

Fresh Courage Take

It’s as though all of my safe places are gone. The niches into which I used to retreat have sealed their doors. The Worry has not only returned, but crept into every crevice available. Even when life is good, It still sneaks up and pulls the faith...

Published Thu, Jan 07 2010 9:39 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, A Day In Our Life, book of mormon, fear, courage

Flour-free Playdough Recipe

It took a long time before the Brave Hero would even think about touching playdough. Now, not only does he enjoy playing with it, he’s willing to explore new textures within it. So I made a batch of flour-free playdough, because of it’s reputation...

Published Thu, Jan 19 2012 9:51 AM by Praying For Parker

Filed under: Special Needs Homeschooling, Art Activities, playdough recipes, flour free playdough, cornstarch playdough, play dough

And the sick came back.

Pneumonia. Adenovirus. Aspiration Issues. Finally healthy. Then two week later, sick again. Stomach flu sick. Diaper change sick. Wide open windows sick. Contemplating gas mask sick. Can we keep him hydrated at home sick. Time to...

Published Tue, Jan 10 2012 8:37 PM by Praying For Parker

Filed under: down syndrome, Special Needs, Life With Special Needs, stomach flu

Our Sleep Safe Bed Insurance Appeal: Help Needed!

We recently sent in a request to both our private insurance and Medicaid for a sleep safe bed for Parker. Parker’s crib is no longer safe for him. Most importantly is Parker’s severe risk of aspiration that put him in the hospital for a week...

Published Thu, Apr 12 2012 1:31 PM by Praying For Parker

Filed under: Advocacy, Hospital Frequent Flyer, Insurance appeals, Sleep Safer High Bed, Medicaid appeals

So, is it still a sin to covet a…..

Our ‘extra’ oxygen concentrator died today. Well, at least we received word of it’s death. There is a ‘possibility’ of it’s resuscitation, but no guarantee comes with the $800 bucks they want to attempt to breathe life...

Published Tue, Apr 17 2012 8:42 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, Life With Special Needs, oxygen concentrators

To love like that.

A young woman in our local Down syndrome community recently passed away . The line at Heather Probst’s viewing was long. There were lots of high school students there to say their final goodbyes. Heather was well loved. But more than...

Published Mon, Oct 01 2012 4:59 PM by Praying For Parker

Filed under: Life With Special Needs, national down syndrome awareness

A Fall Garden

I the only one afraid to go grocery shopping lately? On a budget as tight as ours even the .50 increase in goat milk makes a girl take notice. From fruit to meat to grains, the prices have surpassed worrisome and are heading to down right...

Published Mon, Oct 22 2012 11:05 AM by Praying For Parker

Filed under: blenderized diet, Victory Garden, Fall Garden

All the proof in God I need is in this kid

Years ago I received a Christmas card from a friend who had a son with Down syndrome. In that card she wrote, “If there was a cure for Down syndrome we’d pour it down the drain.” Pretty amazing considering when this friend’s...

Published Wed, Sep 19 2012 7:30 PM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, Perfect just the way he is

Faith.

When God Pushes You To The Edge Of Difficulty Trust Him Fully Because Two Things Can Happen Either He’ll Catch You When You Fall Or He Will Teach You How To Fly Here’s to us learning how to fly together, sweet boy. Read More...

Published Fri, Aug 17 2012 10:53 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, faith

Homemade Hamburger Buns: A Recipe

I know for many people a package of hamburger rolls is no big deal to add to the grocery budget. I remember being able to get them 3 packages for $1.00 during grilling season. But not anymore. Right now the cheapest price for hamburger rolls in my area...

Published Wed, May 18 2011 9:04 PM by Praying For Parker

Filed under: Cheap and Easy, Totally Worth The Calories, how to make hamburger buns, hamburger bun recipe

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