Praying for Parker

It’s funny how things work out…..

Yesterday I left a message on Cardio’s voice mail. I told him that I was still totally up in the air as to what we should do to address Parker’s airway issues. I told him that I had felt ENT had written Parker off as a lost cause. Several...

Published Wed, Nov 10 2010 10:21 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, A Day In Our Life, Advocacy, down syndrome, I'm The Mama: Hear Me Roar!, aspiration, super glottal fold over, peace

It’s the weight of the world.

Nothing can freak this Mama out more than a totally out of the blue, surprise call from Parker’s cardiologist. I was out when he called. And I had left my cell phone at home when he called that. Awesome. He’s wondering where we are in addressing...

Published Tue, Nov 09 2010 10:15 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, A Day In Our Life, pulmonary hypertension, aspiration, glottal plasty

DIY Therapy Ideas: PECS on the cheap…..

Sometimes I think parents of kids with special needs get taken. Have you seen of the prices found in many of the catalogs and websites that cater to the special needs community. *faint* I thought it would be fun to start highlighting a few DIY therapy...

Published Mon, Nov 08 2010 8:36 PM by Praying For Parker

Filed under: A Day In Our Life, Boardmaker Studio, DIY, speech therapy, Boardmaker, PECS

Baking Alphabet Crayons

Okay. This is an oldie but a goodie with a bit of a twist. Recycled crayons? Been there, done that? How about recycled ALPHABET crayons? (Hey, even if you done this too, how about leaving me a little comment love commending my effort, eh?) Parker’s...

Published Sun, Nov 07 2010 5:31 PM by Praying For Parker

Filed under: Cheap and Easy, Special Needs, preschool, homeschool, art for children, recycled crayons, kid crafts

Special Needs Homeschooling: The Homeschool Post

There are many things I am passionate about. My family. My religion. Living on Less Dr. Pepper Gardening Advocating for those with Special Needs Being a huge pain in the butt for my local legislative representative. heh. I’m also passionate about...

Published Fri, Nov 05 2010 8:19 AM by Praying For Parker

Filed under: Special Needs Homeschooling, Advocacy, special needs homeschooling, homeschooling, The Homeschool Post

Amish White Bread: A Recipe

Am I the only one floored at the price of bread these days? The ‘on sale’ price of my kid’s favorite sandwich bread is $2.00 a loaf. It isn’t unusual for our family to chomp their way through 8 loaves a week. $16.00 a week for...

Published Thu, Nov 04 2010 7:50 AM by Praying For Parker

Filed under: Cheap and Easy, Totally Worth The Calories, amish white bread, bread making, how to make bread

Things you never think about until you become a parent of a kid with special needs.

Have you entered the raffle for a Scentsy product of YOUR choice? All proceeds go towards Parker’s medical fund. _____________ I got to thinking today about all the things that occupy my brain, that never would have even crossed it before Parker...

Published Mon, Nov 01 2010 8:47 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, Scentsy

Addicted2Scents: A November Raffle for Parker’s Medical Fund!

Parker’s friend Katie is pretty amazing. Not only does she understand our desires to provide Parker with the best medical care possible, she understands our worries about the cuts being made by a certain local legislative representative that prompted...

Published Sun, Oct 31 2010 7:25 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Stuff We LOVE!, Scentsy, Utah Legislature, medicaid, contests, travis c. waiver, Addicted2Scents, LTV ventilator

Double for Trouble

“Double for Trouble” is what Parker’s pedi tells us when all hell starts to break out in Parker’s lungs. Heart rate in the stratosphere. Cough. Junky lungs. Overall blech. So we are doubling up the Albuterol. Not one, but two hits...

Published Fri, Oct 29 2010 12:55 PM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, down syndrome, Special Needs, People I Love, pulmonary hypertension, Praying For Parker

What makes YOUR life easier?

My favorite pharmacist works at Wal-mart. But I don’t get Parker’s meds there. They have wonky hours. They close too early. And aren’t open on Sundays. It doesn’t happen often, but an open pharmacy comes in mighty handy in case...

Published Wed, Oct 27 2010 7:52 PM by Praying For Parker

Filed under: A Day In Our Life, Stuff We LOVE!, down syndrome, Special Needs, making life easier

Wordless Wednesday/Special Exposure Wednesday: Sullen

What would 15 be like without the sullen? I’d love to find out. Have you entered our super fantastic giveaway from Nova Natural yet? Why not? Read More...

Published Tue, Oct 26 2010 7:22 PM by Praying For Parker

Filed under: A Day In Our Life, People I Love, special exposure wednesday, Wordless Wednesday

Halloween Counting and Math Activities!

Okay. Before you go any further, click here to enter our latest giveaway. Go ahead. We’ll wait. It will only take a minute! ______________________ One of my yard sale scores this summer was a box of little bats that you stick in the freezer to freeze...

Published Mon, Oct 25 2010 9:08 PM by Praying For Parker

Filed under: A Day In Our Life, Special Needs Homeschooling, homeschooling, special needs home school, Halloween

Halloween with Special Needs

Don’t forget to enter our Nova Natural Toys + Crafts Giveaway! Perfect for Christmas! _____ When my older kids were little, Halloween was a big deal around these parts. A very big deal. Family nights with Halloween treats to anticipate. “Whaddya...

Published Sun, Oct 24 2010 9:26 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, Praying For Parker, Halloween

Nova Natural Toys + Crafts Giveaway

The first time I came across Nova Natural Toys & Crafts, I’m pretty sure I drooled all over my computer screen. High quality, open ended toys made from natural products. Perfect for kids of all abilities. From houseplay, to castles, to crafts...

Published Fri, Oct 22 2010 8:43 AM by Praying For Parker

Filed under: A Day In Our Life, Stuff We LOVE!, Reviews and Giveaways!, contests, giveaways, Nova Natural Toys + Crafts, prayingforparker

What REALLY Matters

Today (Wednesday) at 10:20 a.m. MST, Parker is scheduled for both an ECHO and an EKG. There is a lot riding on these results and I’m a bit of a worried mess. Any and all prayers offered up in Parker’s behalf for this ECHO and EKG to reflect...

Published Tue, Oct 19 2010 9:45 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs

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