Praying for Parker

Let’s hope we’re not starting a trend here…..

My poor kid. First he’s too sick to celebrate his birthday, and then he’s too sick to be home for Thanksgiving. I hope we’re not starting a trend here. Birthday cards from some of Parker’s favorite buddies! We’ve had years...

Published Mon, Nov 28 2011 9:37 PM by Praying For Parker

Filed under: Family and Friends, Hospital Frequent Flyer, medically fragile kids with down syndrome

A Homemade Pizza Recipe

Pizza is a staple around these joints. I’m always looking for new pizza dough recipes and ways to make my pizza taste like the take out variety. Or better yet, like the stuff you pay primo prices for in the restaurants. Ah…….the sweet...

Published Sun, Nov 20 2011 9:23 PM by Praying For Parker

Filed under: From Scratch, frugal living, homemade pitas, pizza dough recipe, homemade pizza

What goes up….doesn’t always want to come down…..

Parker loves to hike up his pirate plank. Up, up, up he goes. However the whole coming down the pirate plank has never been met with the same kind of enthusiasm. Our Hero is a fighter though. He’s working on walking back...

Published Thu, Oct 18 2012 8:47 PM by Praying For Parker

Filed under: down syndrome, brave hero, Life With Special Needs

A Fall Garden

I the only one afraid to go grocery shopping lately? On a budget as tight as ours even the .50 increase in goat milk makes a girl take notice. From fruit to meat to grains, the prices have surpassed worrisome and are heading to down right...

Published Mon, Oct 22 2012 11:05 AM by Praying For Parker

Filed under: blenderized diet, Victory Garden, Fall Garden

F is for Faith.

They came in the midst of a week I’d rather forget. A week filled with frustrations, worries and hurdles too big to see over. A knock at the door. Reed telling me that I had a group of friends (one being my beloved Blue-Eyed Girl)...

Published Thu, Aug 30 2012 8:58 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, faith, young womens values, lds

I really should have taken pictures.

I forgot. Pictures of Parker’s yard sale would have been a great reminder of a beautiful day. A day filled with amazing neighbors, friends and family. If I would have remembered to take pictures, I could show you my beautiful blue eyed girl as she...

Published Thu, May 24 2012 1:09 PM by Praying For Parker

Filed under: Advocacy, down syndrome, yard sale, Family and Friends, generator

Rocket Man….er….. kid.

If the number of times I’m having to haul Parker off the dining room table, kitchen counter tops, desks, and the edge of my couches is any indicator, Parker may be beginning to feel a little bit better. The kid should really have flames coming...

Published Fri, Jul 20 2012 7:53 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, blenderized diet, frugal living, hope, apricots

To “Susan”

Yes, I have received all of your comments. I even replied to your comments. I had everything all laid out and in order. Because the funds Parker receives to stay alive are public funds and I have great respect for that. But then I noticed that your email...

Published Mon, Jan 16 2012 11:56 AM by Praying For Parker

Filed under: Advocacy, Life With Special Needs, trolls

Debt and the child with special needs

As a parent of a medically fragile child with special needs, I KNOW there are other special needs parents working to deal with medical debt while trying to keep a child alive. I’m a big believer in sharing ideas, and offering up support to each...

Published Thu, Nov 03 2011 6:02 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, frugal living, Life With Special Needs, medical debt

Utah’s Representative Holly Richardson Resigned Today

Former Representative Richardson resigned today in order to work work full time on former Senator Dan Liljenquist’s bid against Senator Orin Hatch’s congressional seat. That makes not one, but two desperately needed, former level headed legislators...

Published Fri, Jan 06 2012 12:20 PM by Praying For Parker

Filed under: Life With Special Needs

Wordless Wednesday/Special Exposure Wednesday: Walking Tall

One of Parker’s favorite places to hang out is on the shoulders of his 6′3″ brother, Brant. ps: have you entered our giveaway yet? Read More...

Published Tue, Apr 06 2010 9:31 PM by Praying For Parker

Filed under: People I Love

Advocacy and the Elevator Ride

We were in the elevator, the first step in our trek to make our way back home after Parker’s doctor appointment. Me, the Brave Hero, and the Brave Hero’s truck, er stroller with oxygen bottle off to the side. At the last minute a Dad and his...

Published Wed, Jan 20 2010 7:50 AM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, down syndrome, Special Needs, I'm The Mama: Hear Me Roar!

New Kid On The Block

I’d like to introduce you to a friend of mine, Erin Breedlove. Erin blogs at Empowering People and Changing Lives Erin, a college student majoring in Music Therapy, has mild CP. She understands, first hand, the power of an advocate. In Erin’s...

Published Wed, Jan 06 2010 10:28 AM by Praying For Parker

Filed under: Uncategorized, Erin Breedlove, music therapy, cerebral palsy

KTVX Channel 4 Utah’s Kimberly Houk’s Interview

I was invited to be interviewed today by Kimberly Houck from KTVX Channel 4 here in Utah in regards to the new health care laws going into effect today. I’m not much of a being on television kinda gal, and declined. But I did spend a minute explaining...

Published Thu, Sep 23 2010 2:41 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, A Day In Our Life, Advocacy, down syndrome, Special Needs, I'm The Mama: Hear Me Roar!, medicaid, KTVX Channel 4, Kimberly Houck, Tea Party

It’s funny how things work out…..

Yesterday I left a message on Cardio’s voice mail. I told him that I was still totally up in the air as to what we should do to address Parker’s airway issues. I told him that I had felt ENT had written Parker off as a lost cause. Several...

Published Wed, Nov 10 2010 10:21 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, A Day In Our Life, Advocacy, down syndrome, I'm The Mama: Hear Me Roar!, aspiration, super glottal fold over, peace

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