Praying for Parker

Baking Alphabet Crayons

Okay. This is an oldie but a goodie with a bit of a twist. Recycled crayons? Been there, done that? How about recycled ALPHABET crayons? (Hey, even if you done this too, how about leaving me a little comment love commending my effort, eh?) Parker’s...

Published Sun, Nov 07 2010 5:31 PM by Praying For Parker

Filed under: Cheap and Easy, Special Needs, preschool, homeschool, art for children, recycled crayons, kid crafts

It’s funny how things work out…..

Yesterday I left a message on Cardio’s voice mail. I told him that I was still totally up in the air as to what we should do to address Parker’s airway issues. I told him that I had felt ENT had written Parker off as a lost cause. Several...

Published Wed, Nov 10 2010 10:21 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, A Day In Our Life, Advocacy, down syndrome, I'm The Mama: Hear Me Roar!, aspiration, super glottal fold over, peace

Mornings With Parker

Parker’s been fighting the latest version of the creeping crud. Every morning, before his nap, and before bed, we do vest treatments with our Brave Hero. This helps to loosen up the junk in his lungs so that we can suction it out. Days that he is...

Published Tue, Nov 16 2010 8:42 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, chronic lung disease, vest treatments

Making Homemade Soup Stock: The Anyway Project

I owe a lot to my friend Sharon Astyk. She writes at both Casaubon’s Book over at Science Blogs, as well at her personal blog, The Chatelaine’s Keys. Through her view of the world and her intelligent discussions, I’ve been given cause...

Published Wed, Dec 01 2010 10:40 AM by Praying For Parker

Filed under: A Day In Our Life, Cheap and Easy, Totally Worth The Calories, From Scratch

Coming to a Legislative Session Near You…

I’ve been following Utah’s Legislative Session during the ( newly named) Social Services sessions. Parker’s local legislative Representative, John Dougall is on this committee. So is the newly elected Representative Holly Richardson...

Published Tue, Feb 01 2011 6:53 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, A Day In Our Life, Advocacy

Wanted: A Night Nurse That Gets It

Today is the LAST day to enter our $200.00 AmEx gc giveaway! Friday is the last day to enter our Mama K’s Aromatic Clay Giveaway! ______________ I work hard at being kind of a win-win sort of a person. But sometimes it backfires. Especially when...

Published Mon, Feb 28 2011 11:29 AM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, I'm The Mama: Hear Me Roar!, night nursing

FREE Fall Resources for Special Needs Homeschoolers

I LOVE Fall. There is something in the air that adds a touch of excitement to my day. The weather is perfect for Parker to be outside and it’s a great time to engage in a few field trips before the ‘sick season’ gets going. I’m...

Published Tue, Oct 06 2015 8:18 AM by Praying For Parker

Filed under: Life With Special Needs, special needs parenting, SN Homeschooling, special needs homeschoolers, FREE Fall Resources

Blenderized Diet Question

A blenderized diet is receiving more and more respect these days. Instead of a hospital dietician giving you the stink eye when you mention that you create your kids formula, we’ve been met with nods of encouragement when we talk about Parker’s...

Published Thu, Mar 06 2014 7:20 AM by Praying For Parker

Filed under: down syndrome, blenderized diet, blenderized diets, g-tubes, special needs parenting, nutrition and the kid with special needs

School pictures and other dumb ideas.

Parker’s Home and Hospital teacher asked if I would bring Parker in today for school pictures. My first thought was to decline. Pictures and Parker have been a not so fun experience the last couple of years. If I’m lucky enough to snap a cute...

Published Fri, Nov 08 2013 7:01 PM by Praying For Parker

Filed under: Life With Special Needs, special needs parenting, school pictures, special ed

The end of the beginning of my blogging.

Blogging has changed since I first began this site about 8 years ago. It started as a way to keep a journal of sorts about Parker’s life and add in a bit of advocacy as well. As time has gone on bloggers have made pretty successful businesses from...

Published Wed, Jan 15 2014 2:13 PM by Praying For Parker

Filed under: Special Needs Homeschooling, down syndrome, Life With Special Needs, Sensory Tubs, blogging, special needs parenting

Dehumanizing and Marginalizing Kids with Special Needs

What constitutes dehumanizing and marginalizing kids with special needs? The Huffington Post shared a recent blog post, My Child with a Disability is not My Hero, the author of which believes that the tendency of parents of kids with special needs and...

Published Fri, Jan 31 2014 7:24 PM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, Politics of Special Needs, kids with special needs, special needs parenting, special needs blogger

Using vinegar to clean and disinfect.

Almost all trached kids, off and on, will have colonized MRSA in their trachs. Now before you go all aghast on me, let me remind you that most of us have MRSA colonized in our very own little noses. Yup. That means you. And you. And your little one there...

Published Wed, Sep 18 2013 7:18 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, Life With Special Needs, cleaning tips, Cheap cleaning products, Cleaning with Vinegar, MRSA

Intensive Therapy

Friday’s are the days Parker’s PT comes. She’s been working with Parker since he left Early Intervention. She told me that she won’t be coming to see Parker over the summer. He no longer qualifies for summer PT sessions. If truth...

Published Tue, May 07 2013 8:25 AM by Praying For Parker

Filed under: down syndrome, physical therapy, Life With Special Needs, Now I Can

On adaptive trikes and intense therapies.

Parker’s AmTryke adaptive trike arrived on Monday. Thrilled beyond belief pretty much describes how we’re feeling over here. Reed hasn’t had time to set it up yet because I’ve spent the last couple of days doing fun things like...

Published Wed, Jun 12 2013 3:38 PM by Praying For Parker

Filed under: Advocacy, Life With Special Needs, special needs parenting, adaptive bikes, AmTryke, intensive therapy, Now I Can Foundation

In other news…..

We’re almost a month into Summer vacation here at the Hodson House. Summer is different these days than it used to be when my kids were little and it seemed as though every spare moment was spent on some sort of sports bleacher watching one or more...

Published Tue, Jun 25 2013 8:04 PM by Praying For Parker

Filed under: Special Needs Homeschooling, yard sales, homeschool, thrifting, spring cleaning, physical therapy, Life With Special Needs, Mormon Missionaries, homeschooling groups, Now I Can.org

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