Praying for Parker

As Brave and Strong

Unlike my other pregnancies where I had only the typical 5th month sonogram (boy or girl?) my pregnancy with Parker was filled with invasions of his privacy. By far my favorites are the little black and white pictures taken early in Parker’s...

Published Fri, Jul 06 2012 1:57 PM by Praying For Parker

Filed under: Life With Special Needs, Frequent Flyin' ar the PCMC, ulcerative colitis

Rocket Man….er….. kid.

If the number of times I’m having to haul Parker off the dining room table, kitchen counter tops, desks, and the edge of my couches is any indicator, Parker may be beginning to feel a little bit better. The kid should really have flames coming...

Published Fri, Jul 20 2012 7:53 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, blenderized diet, frugal living, hope, apricots

Jelly Marbles and Sensory Experiences

Parker is a sensory seeking kind of kid. He loves the undersides of carpets, sandpaper, and the plastic mesh that needle workers use. A tub of pine cones and this Hero is in Nirvana. I often brush Parker down before a lesson. If I don’t...

Published Tue, Nov 20 2012 7:04 PM by Praying For Parker

Filed under: Special Needs Homeschooling, Sensory Tubs, Jelly Marbles, Steve Spangler

Just the way you are…..

Would it kill them to stop doing that? The R-word and it’s derivatives.

Is a lack of consideration the new black of today’s social culture? When I’m really in the mood to raise my blood pressure I’ll find myself reading the comments section of our local Utah newspapers, namely the comments following articles...

Published Mon, Jan 23 2012 7:27 AM by Praying For Parker

Filed under: Advocacy, down syndrome, spread the word to end the word, Life With Special Needs, r-word

So Can I.

Deep down inside, in a place where the spirit whispers to your heart, I had this knowing that Parker was going to be born with Down syndrome. After his T&A. Taking into account my ‘advanced maternal age’ and the length of Parker’s...

Published Thu, Feb 09 2012 7:31 PM by Praying For Parker

Filed under: down syndrome, Special Needs, blessings, Life With Special Needs

20 Hours and Counting

We have an Ebay auction going on right now. It ends tomorrow. About 2o hours from now. As in all of our other auctions, the proceeds go directly towards keeping our Brave Hero alive and healthy. My sweet Dad is going to be donating a lot of his ham radio...

Published Sun, Jan 03 2010 2:00 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, A Day In Our Life, Fantabulous-ness

From Facebook With Love

Every once in a while I spend a little time trolling….. ah….strolling through my kids’ photos on Facebook. Oh, the things a Mom can learn. On today’s list? My daughter: McCall is my middle daughter. 3 of six. The words Diva and...

Published Mon, Nov 16 2009 7:55 AM by Praying For Parker

Filed under: People I Love

So, what are you feeding YOUR kid?

Parker is almost 5. (November 19th!) He weighs 29 pounds. (sigh) He grows taller, but not wider. His diet consists mostly of 4.5 cans of Pediasure a day, directly into his tummy via his g-tube. Day after day after day after day. We noticed a big difference...

Published Wed, Nov 11 2009 9:11 AM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, Advocacy, From Scratch, down syndrome, Special Needs, Pediasure, blenderized diet, nutrition

Advocacy and the Elevator Ride

We were in the elevator, the first step in our trek to make our way back home after Parker’s doctor appointment. Me, the Brave Hero, and the Brave Hero’s truck, er stroller with oxygen bottle off to the side. At the last minute a Dad and his...

Published Wed, Jan 20 2010 7:50 AM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, down syndrome, Special Needs, I'm The Mama: Hear Me Roar!

Looking for a few good bloggers……

A few weeks ago I hosted a review/giveaway for a great communication application on the iPhone and iTouch called Voice4u. I shared the story of Yumi, the creator of Voice4u, and her struggle to provide her son with a communication system. Finally Yumi...

Published Fri, Feb 26 2010 7:41 AM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Advocacy, Stuff We LOVE!, Special Needs, Voice4u, assisted communication

We Still Have So Far To Go: The Story of Baby Doe

April 9th marked a quiet sort of anniversary. It would have been Baby Doe’s 28th birthday. would have If just for a bit of compassion. A bit of courage. Baby Doe was born without his esophagus, a totally repairable condition with a 90% success rate...

Published Tue, Apr 13 2010 9:03 PM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, down syndrome, I'm The Mama: Hear Me Roar!, Utah Legislature, Baby Doe

When the cute wears thin..

Sometimes your kid picks up a habit (or fifty) that no amount of cuteness makes up for. For Parker it’s his never ending desire to throw things. What can I say? I have a hard time seeing the cute while dodging projectiles that have lately provided...

Published Wed, Jul 21 2010 8:28 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs

Milestones! Cognitive Milestones!

Have you entered out Discount School Supply Giveaway yet? _______________________ I don’t know about you, but I’m always looking, watching and waiting to see if all the effort we put into Parker’s developmental needs is paying off. Sometimes...

Published Mon, Jul 26 2010 8:55 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, down syndrome, Special Needs

Special needs children in a real life family..

Miracles. We’ve witnessed our share over here. My still being online falls under this heading. It took me a minute to accept this last miracle offered, but I’m glad I did. Because I agree, The face of our Brave Hero does brighten many people’s...

Published Mon, May 10 2010 8:12 AM by Praying For Parker

Filed under: Uncategorized

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