Praying for Parker

The Freedom To Tell It Like It Is: Special Needs Style

I once heard of a woman, who after years of taking care of her disabled sister, made the following confession: “I hate having to cut her toenails. ” You could have heard a pin drop in the room after that simple sentence had been uttered. Because...

Published Mon, Dec 05 2011 8:49 AM by Praying For Parker

Filed under: The HIGH Cost of Health Care, down syndrome, Life With Special Needs, Frequent Flyin' ar the PCMC, special needs caregivers, medically fragile children with special needs

Let’s hope we’re not starting a trend here…..

My poor kid. First he’s too sick to celebrate his birthday, and then he’s too sick to be home for Thanksgiving. I hope we’re not starting a trend here. Birthday cards from some of Parker’s favorite buddies! We’ve had years...

Published Mon, Nov 28 2011 9:37 PM by Praying For Parker

Filed under: Family and Friends, Hospital Frequent Flyer, medically fragile kids with down syndrome

A December Sensory Box

I’ve posted before on how to color rice and noodles. It’s a great way to bring color into a child’s sensory experiences. For Parker’s sensory box in December I’m going to be coloring his rice using a different medium. I’ll...

Published Tue, Nov 29 2011 8:40 PM by Praying For Parker

Filed under: Special Needs Homeschooling, sensory boxes, Sensory Tubs

On Hawk Walks, Brave Heroes, Weird Rashes and Pulse Oximeters

The stage was set for a magnificent day. My kids had even talked their Dad into letting them join Parker for his very first Highland Hawk Walk. The 16 year old felt it was important for him to be there in case Parker got tired and needed someone to carry...

Published Fri, Sep 23 2011 7:39 PM by Praying For Parker

Filed under: down syndrome, Special Needs, Life With Special Needs, Frequent Flyin' ar the PCMC, pulse oximeters

Foiled Again!

We’ve been rocking the cuffed trach for a few weeks now. I’m feeling much more confident that I won’t expand this sucker to a width that harms Parker’s trachea. Someone put that thought into my head and getting it out took something...

Published Fri, Sep 09 2011 3:49 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, cuffed trachs

Phyical Therapy: Bounce House Style

It’s been a summer full of sinus infections, right heart caths, and allergies. But the cath is over, the antibiotics have kicked in, and it’s time to have a bit of fun before the summer is all but over. But where does one go when it’s...

Published Tue, Aug 30 2011 9:15 AM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, physical therapy, Bounce House

Physical Therapy: Bounce House Style

It’s been a summer full of sinus infections, right heart caths, and allergies. But the cath is over, the antibiotics have kicked in, and it’s time to have a bit of fun before the summer is all but over. But where does one go when it’s...

Published Tue, Aug 30 2011 9:15 AM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, physical therapy, Bounce House

The Power of an Amazing Neighborhood: A Halloween Success Story

Yesterday was a Halloween success story. After all the practicing, everything came together beautifully! The Curly Girly and my Blue Eyed Girl took Parker all around the neighborhood. One trip around our circle is about a quarter of a mile. Parker...

Published Tue, Nov 01 2011 11:46 AM by Praying For Parker

Filed under: down syndrome, Halloween, Life With Special Needs, Family and Friends, Cornbelly's

The Struggle To Get Your Kid To Eat

One of the biggest concerns I hear from Moms of kids with special needs is how can I get my kid to eat? Forget the healthy. They are just talking about getting calories into their kid. I gotta admit, this is where a g-tube is a blessing. Due to choking...

Published Tue, Apr 05 2011 6:20 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, Doing it Special Needs Style, feeding specialists, nutrition for kids with special needs

All I need to know I learned from the Easter Bunny….

All I need to know I learned from the Easter Bunny Don’t put all your eggs in one basket. Everyone needs a friend who is all ears. There’s no such thing as too much candy. All work and no play can make you a basket case. A cute tail...

Published Sat, Apr 23 2011 1:21 PM by Praying For Parker

Filed under: Fantabulous-ness, down syndrome, Special Needs, Easter Bunny, Easter fun

You could learn a lot from a little kid with an extra chromosome…

It’s been quite the weekend. Parker’s been sick. Heartrate in the 80′s. Puking. Even though the kid has a Nissen. TWICE this week that I’ve KNOWN our HERO has aspirated. A prescription of Septra. An Enema. I woke up at 6:30 this...

Published Mon, Apr 25 2011 12:16 PM by Praying For Parker

Filed under: Special Needs Homeschooling, down syndrome, People I Love, home school, homeschool post, homeschooling a child with speical needs

Summer…..so far.

Summer time at the Hodson House has been full of doctor appointments. It’s much better to take Parker up to Primary’s in the summer rather than RSV season. Lately it seems as though there is always some kind of scary going around up there...

Published Wed, Jul 13 2011 9:19 AM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, asthma, right heart caths, FEES study, RTC

AbleNet Inc.2011 Fall Product Giveaway

Details Enter Sweepstakes Invite Friends About Official Rules Privacy AbleNet 2011 Fall Giveaway Enter Sweepstakes Invite Friends Prize Details Like Us to enter the drawing! Winner will be announced August 8, 2011 AT Prize Package includes: PowerLink...

Published Sun, Jun 19 2011 11:19 AM by Praying For Parker

Filed under: Stuff We LOVE!, ablenet

It’s not about Politics. It’s about CHARACTER.

It has nothing to do with whether you are a Republican or Democrat. It has EVERYTHING to do with your character. I’m talking about those who make kids like Parker the butt of their jokes. Allegheny County’s GOP chair and former...

Published Wed, Aug 08 2012 7:18 PM by Praying For Parker

Filed under: Politics of Special Needs, end the r-word, Jim Roddey

F is for Faith.

They came in the midst of a week I’d rather forget. A week filled with frustrations, worries and hurdles too big to see over. A knock at the door. Reed telling me that I had a group of friends (one being my beloved Blue-Eyed Girl)...

Published Thu, Aug 30 2012 8:58 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, faith, young womens values, lds

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