Praying for Parker

Flying high with a little sensory imput

Last week a friend dropped off an indoor hammock/swing set up for Parker. Her kids had outgrown it, and knowing how much Parker loves to swing my friend figured he’d love an opportunity to be able to fly through the air indoors. I was excited for...

Published Wed, Dec 15 2010 1:13 PM by Praying For Parker

Filed under: A Day In Our Life, Special Needs Homeschooling

Giving Away GREAT Stuff from Discount School Supply!

I’ve blogged many times about my insane love for all things Discount School Supply. And the love just keeps growing. Have you seen Discount School Supply’s Special Needs section? Or their Common-Allergen-Free Products section? How about Discount...

Published Sun, Jul 25 2010 3:46 PM by Praying For Parker

Filed under: Fantabulous-ness, Stuff We LOVE!, home school, Discount School Supply, Reviews and Giveaways!, school supplies, BioColor Paints

Go Ahead. Make My day.

Mom’s of kids with special needs are worth getting to know. We’re tough. We’re supportive. We love our kids. We know that we are often unique. Sometimes we find ourselves lacing up our combat boots as we take on the system. And we’ll...

Published Mon, Aug 09 2010 10:32 AM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, down syndrome, Special Needs, I'm The Mama: Hear Me Roar!, advocay

Another Nurse Bites The Dust

We don’t get night nursing every night. And it isn’t unusual for a night nurse not to show. Or to say she came by and knocked and knocked and even left a message on the phone. Except nobody heard her knock nor the phone ring and no messages...

Published Sun, Jun 13 2010 9:29 PM by Praying For Parker

Filed under: down syndrome, Special Needs, I'm The Mama: Hear Me Roar!, home health care, night nursing

Steppin’ Up the Shapes

Parker’s been upping his shape game. We’ve been trying to provide Parker with lots of different experiences using the theme of shapes. Today we put the shapes on the floor and asked Parker to step on the correct one. And then we did some matching...

Published Wed, Oct 28 2009 7:44 PM by Praying For Parker

Filed under: A Day In Our Life, Special Needs Homeschooling

Dear Collin Raye, I Think I Love You.

A friend sent me the link to this YouTube video a few days ago. I would have shared it with you sooner, except each time I watch it I sob. Yes, sob. Collin Raye expresses my heart with his words. I wish I had the ability to take my feelings and weave...

Published Mon, Feb 08 2010 8:17 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Advocacy, I'm The Mama: Hear Me Roar!, Collin Raye, She's With Me

Voice4u Ipod and Itouch Application: Review and Giveaway

Parents of children with special needs know the heartache and frustration that often accompanies trying to provide their child with the services and care needed for their child to lead a healthy and productive life. Yumi Kubo is one example. Yumi Kubo...

Published Fri, Jan 29 2010 1:12 PM by Praying For Parker

Filed under: Stuff We LOVE!, Voice4u, AAC

One provides the inspiration….

I’m certain the love between these two was established way before what we understand as time….began. They are always there for each other, Even when things get a wee bit painful. Never afraid to ask each other for a little bit ” more...

Published Thu, Feb 11 2010 6:34 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Special Needs, People I Love, brothers, love

Prayers for a clean CBC and NO Leukemia

Kids born with Down syndrome are also born with a much higher chance of dealing with Leukemia than their typical peers. Parker gets monthly CBCs because of his pulmonary hypertension and the meds he takes to battle it. So a close eye is always kept on...

Published Tue, Mar 23 2010 12:00 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, down syndrome, rsv, leukemia

The Great Tobramycin Race

Preface: I had just put the finishing touches on this post when I heard the doorbell ring. I go to the door to find a gentleman who hands me an envelope while refusing to give me his name…or the name of who asked him to deliver this same envelope...

Published Sun, May 23 2010 9:37 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, A Day In Our Life, Fantabulous-ness

What I feed my g-tube enhanced kid.

My g-tube enhanced Brave Hero has done so well on the blenderized diet I prepare for him daily. He lost a significant amount of weight from being sick so many times this season, but we are back up 2 pounds…..two more to go before we are back to...

Published Thu, Jan 26 2012 7:28 PM by Praying For Parker

Filed under: blenderized diet

How to clean a burnt pan.

Once every two weeks or so I’ll get out all my pots and brew up a bunch of grains for Parker’s blenderized diet. I like to get the water boiling, add salt and the grain, cover the pot, turn the temperature down and allow the grain to cook...

Published Mon, Feb 06 2012 7:46 PM by Praying For Parker

Filed under: frugal living, DIY, cleaning tips

Mega Bloks Fire Patrol Rescue

I’ll admit it, when I was asked to try out some awesome MegaBloks, I was thinking mega…….as in they were ‘mega sized.’ But the Mega Bloks I received were much smaller. Like both Mega Bloks and Parker, good things come in...

Published Wed, Feb 15 2012 1:16 PM by Praying For Parker

Filed under: Stuff We LOVE!, Mega Bloks

Our Sleep Safe Bed Insurance Appeal: Help Needed!

We recently sent in a request to both our private insurance and Medicaid for a sleep safe bed for Parker. Parker’s crib is no longer safe for him. Most importantly is Parker’s severe risk of aspiration that put him in the hospital for a week...

Published Thu, Apr 12 2012 1:31 PM by Praying For Parker

Filed under: Advocacy, Hospital Frequent Flyer, Insurance appeals, Sleep Safer High Bed, Medicaid appeals

So, is it still a sin to covet a…..

Our ‘extra’ oxygen concentrator died today. Well, at least we received word of it’s death. There is a ‘possibility’ of it’s resuscitation, but no guarantee comes with the $800 bucks they want to attempt to breathe life...

Published Tue, Apr 17 2012 8:42 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, Life With Special Needs, oxygen concentrators

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