Praying for Parker

One Week and Counting

Next Thursday is Parker’s Nissen and trach reduction surgery. They are throwing a few other goodies in there as well, cause as long as he’s under a general anesthesia they might as well. Oh. Yeah. He’s going to be under general anesthesia...

Published Thu, Dec 10 2009 12:21 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, A Day In Our Life, Special Needs, surgery, prayers, Nissen

And Suddenly My Heart Is A Little Lighter

We received the results of Parker’s sedated chest CT. The results were “consistent with severe chronic aspiration.” For some parents this would be bad news. For us though it is actually good news. This could be a reason why his cardiologist...

Published Fri, Dec 11 2009 10:44 AM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, Advocacy, down syndrome, I'm The Mama: Hear Me Roar!, Nissen, pulmonary hypertension, chronic lung disease, reflux

Love At First Sight

I love this face. It makes my world go ’round. Workin’ on mastering his name! He’s doing great! Parker’s name sign is the sign for ‘brave.‘ Pretty fitting, don’t you think? We’ve been holding our breath...

Published Sun, Dec 13 2009 12:05 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, A Day In Our Life, Special Needs Homeschooling, Fantabulous-ness, People I Love, homeschooling, Nissen, special needs home school, trach, Santa

On the Third Day of Christmas

Saturday night a surprise was discovered on our front porch. And that was just the beginning. A certain unknown Pixie is sharing with our family a little joy of the season. With a sprinkling of magic and rhyme our home is blessed with the spirit of Christmas...

Published Tue, Dec 15 2009 11:11 AM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Special Needs, People I Love, 12 Days of Christmas, miracles, Believe

My Heart In A Nutshell

I’m waiting for the phone call from Primary Children’s that will let us know when Parker’s surgery will be tomorrow. My nerves are a bit frayed today. But that’s pretty standard for the day before surgery. I have so much to do...

Published Wed, Dec 16 2009 12:55 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, A Day In Our Life, down syndrome, Special Needs, Nissen, 5 Minutes For Mom

Update From Room 3071

Surgery went well. Parker was voted the recipient of Today’s Blue Plate Special here at PCMC. That’s cause he was worked on by three different doctors. He’s got new holes from the top of his trach stoma to the bottom of his belly. Life...

Published Thu, Dec 17 2009 8:41 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, A Day In Our Life, Primary Childrens Hospital, surgery, Nissen

Friday Update From Room 3071

Last night was hell. Of the pure and total kind. The Nubaine bolus would wear off and Parker’s pain was then unmanageable. We had him up walking around his room in hopes of getting some of the CO2 used for his Nissen to dissapate. Which didn’t...

Published Fri, Dec 18 2009 11:13 AM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, People I Love

Saturday Update from room 3071

First, I must do a shout out for the Christmas Pixie that has been visiting our family. Thank you. You have made a very rough, kinda scary holiday hospital stay bearable. My kids anticipate your nightly visits with great delight. And marvel at your ability...

Published Sat, Dec 19 2009 9:32 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, A Day In Our Life, down syndrome, Primary Childrens Hospital, Nissen

Because Sh*t Happens (Over and over and over…….)

Well, we were supposed to blow this joint today. Because from a Nissen standpoint Parker is good to go. But I have yet to have a satisfactory answer to Parker’s trach sizing staying the same. The surgical resident feels that I should just take Parker...

Published Sun, Dec 20 2009 12:05 PM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, Advocacy, I'm The Mama: Hear Me Roar!

It hasn’t ALL been bad…..

I took Parker on a grand adventure today. Something I’ve never done even with all of the hospital stays our Brave Hero has endured. I loaded him up in a red wagon and we went exploring. I don’t usually take Parker out of his hospital room...

Published Sun, Dec 20 2009 6:38 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, Fantabulous-ness

His Good and Faithful Servant

Reed insisted that we leave at 8:00 a.m. so as not to be late for the flight arriving at 10:30. Which meant that we got there with over an hour to spare. Finally our anticipated flight arrived. The kid we sent off two years ago walked off that plane a...

Published Wed, Dec 23 2009 8:58 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, People I Love, church of jesus christ of latter day saints, california long beach mission, lds missionaries

And We Made Merry

Tradition finds our family at my parents house on Christmas Eve. I love wandering my parents home remembering my childhood. Many of my Mom’s Christmas decorations come from Germany, where we lived for six years. My Mom’s china was purchased...

Published Fri, Dec 25 2009 7:33 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Special Needs, People I Love, Christmas, traditions, Christmas Eve, down symdrome

Great Expectations

I don’t know about you, but I think this might just be the very best New Year’s Resolution…………. ever. Read More...

Published Tue, Dec 29 2009 8:08 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, A Day In Our Life, Fantabulous-ness, Stuff We LOVE!

Simple Resolutions

The poppers have been purchased. The bubbly is chilling. (.88 a bottle Gingerale. WAY cheaper than the sparkling juice.) The treats (Smith’s had their Christmas candy clearanced to .89 a bag yesterday!) are at the ready. And the $1.00 a flick Redbox...

Published Thu, Dec 31 2009 5:06 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, A Day In Our Life, Fantabulous-ness, Advocacy, Stuff We LOVE!, People I Love

Pardon Our Dust……..

As many of you have noted, things have been disappearing from our site. Things like: The ability to see past posts by just using your back button. The other 6 advertising spaces that used to be on the right hand side of our blog. (BTW, anyone you know...

Published Fri, Jan 01 2010 1:06 PM by Praying For Parker

Filed under: A Day In Our Life

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