Praying for Parker

Those smiles. They’re back.

Maybe it’s because the antibiotic if finally kicking in. (We have TWO more rounds to go!) Maybe it’s because our most favorite nurse is back with us full time. (It looks as though our THIRD nursing company change has been the charm. Seriously...

Published Thu, Apr 19 2012 9:40 AM by Praying For Parker

Filed under: Life With Special Needs, smiles, answer to prayers

Where I come clean and get my act together.

True confession time. Hopefully confessing will be the final nudge I need to get my act back together. I hate dinner. Seriously. Hate. It. Okay. Maybe I just hate it when I’m so tired I can barely see straight and I still have dinner to make……and...

Published Thu, Apr 19 2012 7:18 PM by Praying For Parker

Filed under: From Scratch, frugal living, Life With Special Needs, cooking from scratch, menu planning

Eight entire seconds.

We spent most of last week in a doctor’s office. Odds are we’ll be doing the same thing this week. We only needed an 8 second sinus MRI. Eight seconds. Eight blinks. One breath in. One breath out. And my kid simply couldn’t...

Published Mon, Jun 11 2012 11:00 AM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, Frequent Flyin' ar the PCMC, Hospital Frequent Flyer, BRAVO sinus procedure, sedated sinus mri

So Can I.

Deep down inside, in a place where the spirit whispers to your heart, I had this knowing that Parker was going to be born with Down syndrome. After his T&A. Taking into account my ‘advanced maternal age’ and the length of Parker’s...

Published Thu, Feb 09 2012 7:31 PM by Praying For Parker

Filed under: down syndrome, Special Needs, blessings, Life With Special Needs

Speech (or no speech) and the kid with special needs.

A Facebook friend posted this today: From your child with special needs: “Now I lay me down to sleep, I pray the lord to give me words to speak. But if they never come this way, let my mommy know everything will be ok. Boy, howdy, did this one hit...

Published Tue, Feb 07 2012 5:48 PM by Praying For Parker

Filed under: Special Needs Homeschooling, down syndrome, Special Needs, AAC, Ipad Apps, speech, apraxia

Gluten Free Joy With Udi’s Gluten Free Foods!

Did you know that many people with Down syndrome also have a secondary diagnosis of celiac disease? True story. I remember when a friend child was diagnosed with celiac disease and we searched high and low for anything…….anything……...

Published Tue, Dec 27 2011 10:12 AM by Praying For Parker

Filed under: Life With Special Needs, Udi's Gluten free food

Weight Gain and the Child with Special Needs

Parker was almost up to 37 pounds. So very close. The weight gain happy dancing was in full force. Then he got sick. Pneumonia. Pseudomonas. That damn Adenovirus that came with a 12 days of diarreha and zofran just to keep the meds down. Before we we...

Published Sun, Dec 11 2011 6:02 PM by Praying For Parker

Filed under: blenderized diet, Life With Special Needs, Frequent Flyin' ar the PCMC, weight loss

Where I put the Bah in my Humbug.

I’ve come to a major realization this Christmas season. I’m tired. Really, really tired. Being the designated Hodson Family gift purchaser, wrapper, decorator and maid has brought out the real Scrooge in me. I’ve lost that Holiday feeling...

Published Thu, Dec 15 2011 4:46 PM by Praying For Parker

Filed under: Christmas, Life With Special Needs

Here we go……again.

I’ve got a huge pot of millet on the stove. I’m making it to use in Parker’s blenderized diet. Millet has an 11% protein content and is GLUTEN FREE. I toasted it before I started it on a boil, and my house smells so good. While the millet...

Published Mon, Mar 15 2010 1:15 PM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, down syndrome, Special Needs, blenderized diets, millet

We All Pick Our Own Battles: The R Word

Some people chose to fight for inclusion for their kid with special needs. Me? I’ve chosen to home school Parker. Some aren’t able to keep up with new bills being presented that effect the life of someone they know with special needs. Me?...

Published Wed, Mar 31 2010 1:13 PM by Praying For Parker

Filed under: Advocacy, I'm The Mama: Hear Me Roar!, spread the word to end the word, The R Word

Adults with Disabilities and the Beam in Society’s Eye

I was reading a post written by Ellen over at To The Max. Ellen is an excellent writer. She is also a very loving Mom to two kids, Sabrina, and Max, who has cerebral palsy. Max has a smile that will make your day and an unsurpassed devotion to the color...

Published Mon, Feb 22 2010 9:02 AM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, down syndrome, Special Needs, I'm The Mama: Hear Me Roar!, adults with disabilities

Emergency Preparedness and the Child with Special Needs.

One of my biggest worries is how to take care of my medically fragile son with special needs in case of an emergency. It’s taken awhile, but slowly I’ve been able to do a few things to prepare and plan in case of unexpected events. I have two Skip Hop...

Published Wed, Feb 03 2010 8:49 PM by Praying For Parker

Filed under: A Day In Our Life, shtf, 72 hour kits, emergency prepardedness

Discount School Supply Winner!

The winner of our Discount School Supply giveaway is: Number 15 Tami Lewis Enjoy! Tami was chosen by random.org Read More...

Published Fri, Jan 29 2010 1:12 PM by Praying For Parker

Filed under: Stuff We LOVE!, Discount School Supply

Idle Busyness

I spent a big part of Saturday decorating for Christmas. Up the ladder. Down the ladder. Back up the ladder. And then back down. They really should include Holiday decorating as part of the Biggest Loser Workout, don’t you think...

Published Sun, Nov 29 2009 7:19 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, A Day In Our Life, crafts, felt board stories

His Good and Faithful Servant

Reed insisted that we leave at 8:00 a.m. so as not to be late for the flight arriving at 10:30. Which meant that we got there with over an hour to spare. Finally our anticipated flight arrived. The kid we sent off two years ago walked off that plane a...

Published Wed, Dec 23 2009 8:58 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, People I Love, church of jesus christ of latter day saints, california long beach mission, lds missionaries

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