Praying for Parker

FEES, Fi, Fo, FUNK…

Today has been one of those days that you really wish wouldn’t have happened after all. It would have been much nicer to have gone from Wednesday straight to Friday, skipping Thursday all together. We took Parker up to PCMC for another FEES. Even...

Published Thu, Apr 07 2011 6:15 PM by Praying For Parker

Filed under: A Day In Our Life, PCMC, FEES study

Brave Hero Visits the ENT

It seems as though these last few days we’ve either been at the doctor’s, talking to doctors on the phone, or making more appointments with different doctors. Today was a visit to Parker’s ENT. I was grateful not to have to visit THIS...

Published Mon, Mar 21 2011 9:13 PM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, down syndrome, PCMC, ENT

On Hawk Walks, Brave Heroes, Weird Rashes and Pulse Oximeters

The stage was set for a magnificent day. My kids had even talked their Dad into letting them join Parker for his very first Highland Hawk Walk. The 16 year old felt it was important for him to be there in case Parker got tired and needed someone to carry...

Published Fri, Sep 23 2011 7:39 PM by Praying For Parker

Filed under: down syndrome, Special Needs, Life With Special Needs, Frequent Flyin' ar the PCMC, pulse oximeters

Rite of Passage…..

He’s been talking about this for years. It’s been one of those things that I’ve always kinda pushed to the back of my mind. But yesterday the undeniable proof arrived in the mail. Now all he needs to do is earn enough to be able to buy...

Published Sun, Oct 16 2011 11:07 AM by Praying For Parker

Filed under: frugal living

Trying to calm my fears.

“There comes a time when you have to choose between turning the page and closing the book.” Yesterday I made the choice to close the book. I’ve been in a flux over the agency we’ve been going through for Parker’s nursing...

Published Wed, Oct 12 2011 8:17 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, down syndrome, Life With Special Needs

Apple Picking with Parker

My parents have a small orchard on the land behind their house. This year’s apple and pear bounty are on track to be epic! Parker and my Mom showing off the first (not quite ripe) apple of the season. This variety of apples make excellent pies....

Published Sun, Sep 11 2011 8:35 PM by Praying For Parker

Filed under: Recipes, recipe for apple pie filling, apple picking

Phyical Therapy: Bounce House Style

It’s been a summer full of sinus infections, right heart caths, and allergies. But the cath is over, the antibiotics have kicked in, and it’s time to have a bit of fun before the summer is all but over. But where does one go when it’s...

Published Tue, Aug 30 2011 9:15 AM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, physical therapy, Bounce House

I tried. I really, really tried.

(The new blog design is coming along. Refresh your page if you can’t see it yet. I still need to learn a few things….like how to add pictures to the rotating part at the top, but we’re getting there.) This week I took Parker to the adaptive...

Published Wed, Sep 07 2011 6:30 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, adaptive P.E.

Another one lost…..

I knew when Parker lost his first tooth that there was another one trying to make it’s way out. Yesterday was the day. This time I wore a pair of gloves. MUCH better experience than last time. I still dread the day he starts losing molars though...

Published Mon, Oct 24 2011 7:03 PM by Praying For Parker

Filed under: Life With Special Needs, tooth fairy

I remember….

I remember when nobody thought you would see your first birthday, and now you are hot on the trail of number SEVEN. Seven is a magical number. I can’t wait to discover what exciting adventures SEVEN has in store for you this year. ...

Published Tue, Nov 15 2011 8:07 AM by Praying For Parker

Filed under: down syndrome, Special Needs, Life With Special Needs, Family and Friends, 7th birthday

Augmentative and Alternative Communication on the iPad

We’re upping our iPad game here at Parker’s house. The goal? To have Parker participate in 200 daily communication invitations via his beloved iPad. Yup. TWO HUNDRED. Yeah, I know. I’m feeling a bit overwhelmed myself. The question...

Published Thu, Nov 17 2011 10:38 AM by Praying For Parker

Filed under: Special Needs Homeschooling, Proloquo2GO, tap to talk, TouchChat, Ipad Apps

‘Cause Parker Loves Books…..we need your help!

I spent many of my growing up years living in countries that had no *gasp* American television. When we lived in Turkey my Dad always had the television on ……he liked the different test patterns we received from Cyprus. Hey, some of us have...

Published Sun, Dec 04 2011 2:29 PM by Praying For Parker

Filed under: Stuff We LOVE!, Family and Friends, Desert Book Christmas Photo contest, literature basked learning

A December Sensory Box

I’ve posted before on how to color rice and noodles. It’s a great way to bring color into a child’s sensory experiences. For Parker’s sensory box in December I’m going to be coloring his rice using a different medium. I’ll...

Published Tue, Nov 29 2011 8:40 PM by Praying For Parker

Filed under: Special Needs Homeschooling, sensory boxes, Sensory Tubs

Homeschooling a Medically Fragile Child with Special Needs

Homeschooling this year is going to require a new focus: Teaching a child with significant hearing loss. I’ve got calls in to Utah’s School for the Deaf and Blind as well as into Parker’s Home and Hospital teacher. Sad...

Published Wed, Aug 22 2012 8:45 AM by Praying For Parker

Filed under: Special Needs Homeschooling, down syndrome, Special Needs, homeschooling, Life With Special Needs

It’s what Brave Heros and their Mama’s do.

I know there are many worse things that Parker could have been diagnosed with last week. In the world of medically fragile children we’ve had our share of miracles. I’m grateful. I’m also feeling the weight of the world...

Published Mon, Jul 09 2012 9:11 AM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, Frequent Flyin' ar the PCMC, ulcerative colitis

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