Praying for Parker

Because I couldn’t have said it better myself.

The 19 year old blogs. Just like her Mama. She’s also one of Parker’s biggest advocates. I’m going to link you to McCall’s blog today. She’s written a post on ending the r word. And you know what? I couldn’t have said...

Published Wed, Jun 15 2011 8:16 AM by Praying For Parker

Filed under: Advocacy, down syndrome, Special Needs, end the r word

It takes a bit of patience sometimes….

It started with a yell: Mom! Help! It was the blue eyed girl beseeching me for rescue. Apparently Parker had decided that his big sister had slept long enough. It was time to play….now. It takes a bit of patience to be the big sister sometimes....

Published Mon, Jun 13 2011 6:29 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, down syndrome, Special Needs, People I Love, family life, big sisters, big families

Coping with a diagnosis: Advice for a new Mom

Kendra left this comment on my post: Things I’ve learned from being a special needs Mama. Hi, I stumbled onto this and felt that I could relate to you the most… My daughter Livi just turned 4 weeks and I feel horrible because she doesn’t have any...

Published Sun, Jun 12 2011 8:49 PM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, down syndrome, Special Needs, diagnosis, how to cope with a new diagnosis

Things I’ve learned being a special needs Mama.

Becoming the parent of a medically fragile child with special needs sets you on a journey of discovery. You unearth everything you possibly can about your child’s diagnosis. You work to establish the best doctors and therapists for your child. Eventually...

Published Thu, Jun 09 2011 9:39 AM by Praying For Parker

Filed under: A Day In Our Life

Cheerfully Living on Even Less.

I came home stunned. I do a ‘big’ grocery shopping trip once a month. Then I try to save back a bit of cash to cherry pick the sales for the rest of the month. My big grocery shopping usually happens at Costco where I get the same things each...

Published Mon, Jun 06 2011 7:04 PM by Praying For Parker

Filed under: A Day In Our Life, Garden Goddess, From Scratch, high cost of groceries, frugal grocery shopping, saving money on groceries

Things that can drive a special needs Mama to drink…

Across my Twitter stream this morning came the news. All that waits is the official announcement. Carl Wimmer is running for Congress. Wimmer says his exploratory committee has raised more than $100,000, and he likes that he has about 180 individual donors...

Published Thu, Jun 02 2011 9:25 AM by Praying For Parker

Filed under: The HIGH Cost of Health Care, A Day In Our Life, Advocacy, medicaid, applied medical, mini button g-tubes, Representative Carl Wimmer

Creating Your Child’s PERFECT Sensory Room

We are changing out bedrooms downstairs. The 24 year old got married. sob. So the 19 year old is moving into her room And the 22 year old is moving into the 19 year old’s room for the summer. This leaves the teeny little storage room for me to use...

Published Tue, May 31 2011 7:38 PM by Praying For Parker

Filed under: A Day In Our Life, sensory rooms

Disclosure of a Diagnosis: Yes or No?

The birthing room was jammed packed when Parker made his grand entrance. Having a 4% chance of giving birth to a child with an extra chromosome automatically invites lots more people to your party. After being handed off to the neonatal team, the first...

Published Tue, May 31 2011 9:59 AM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, diagnosis

A PSA With A Punch

Don’t forget to enter our Shirley J Giveaway! You can win the fixings for THIRTY meals! My kids, from High School to College come home telling me how their teachers use the R-word in class when referring to students doing something dumb or foolish...

Published Tue, May 24 2011 8:30 AM by Praying For Parker

Filed under: Advocacy, down syndrome, Special Needs, end the r word, Glee, It's Not Acceptable

Shirley J’s ‘Master 30 Meals’ GIVEAWAY!

As many of you know, one strategy I employ to help afford Parker is cooking by scratch and keeping a stocked pantry The Prudent Homemaker style. But I understand that many really don’t know how to cook from scratch, and others are totally overwhelmed...

Published Mon, May 23 2011 4:38 PM by Praying For Parker

Filed under: A Day In Our Life, Totally Worth The Calories, giveaway, Reviews and Giveaways!, Shirley J, Shirley J Master 30 Meals

Have you met Punky? She has Down syndrome too.

Punky lives in Ireland. Like Parker, she was born with Down syndrome. Unlike Parker, Punky is the star of an original animated TV show which tells stories from Punky’s everyday life. My first thought after meeting Punky? I sure wish Parker had Punky’s...

Published Mon, May 23 2011 10:11 AM by Praying For Parker

Filed under: Advocacy, down syndrome, Special Needs, Punky

Finding common ground between your kid and mine.

I took Parker for a walk yesterday. Gone are the days when this kid can survive indoors all the time. Like his older brothers, Parker wants OUT. Like his other siblings, the doorbell rings and Parker makes a mad dash for the door. Okay, as mad of a dash...

Published Fri, May 20 2011 5:03 PM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, down syndrome, Special Needs, Make A Wish

Surburban Gardening Hodson Style

By now I usually have my entire garden in. Tomatoes. Peppers. Vines. Greens. Onions. Garlic. Unfortunately the weather here has been so bizarre (I’m wearing a sweatshirt as I type this) that all I have in are my cold weather crops. Okay. Perhaps...

Published Thu, May 19 2011 7:06 PM by Praying For Parker

Filed under: Garden Goddess, gardening, grow your own food, surburban gardening

Homemade Hamburger Buns: A Recipe

I know for many people a package of hamburger rolls is no big deal to add to the grocery budget. I remember being able to get them 3 packages for $1.00 during grilling season. But not anymore. Right now the cheapest price for hamburger rolls in my area...

Published Wed, May 18 2011 9:04 PM by Praying For Parker

Filed under: Cheap and Easy, Totally Worth The Calories, how to make hamburger buns, hamburger bun recipe

The IEP: What’s the best way to educate Parker

Yesterday we had Parker’s IEP. The elephant that was addressed: WHERE to educate Parker. The first thought was to bring Parker to school each day for an hour a day. Not in a typical classroom, mind you. Rather in a room by himself and a teacher...

Published Wed, May 18 2011 12:39 PM by Praying For Parker

Filed under: A Day In Our Life, homeschooling, IEP, homeschooling the child with special needs

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