Praying for Parker

Dear Today Show and MaterniT-21Plus

Actually neither the Today Show OR MaterniT-21 Plus Testing is very dear. It’s been a couple of days since I’ve felt calm enough to write this post in any sort of a coherent way that didn’t involve a lot of not so nice words. And to...

Published Fri, Feb 01 2013 10:33 AM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, T21, Trisomy 21, Sequenom, Matt Lauer, MaterniT-21Plus, Today Show

How to tell when a Brave Hero is Sick.

Knowing how to tell when a Brave Hero is sick is pretty easy. It’s not the fever. It’s not the snot you find all over your clothes. It’s not the sleepless nights. It’s not the whining. Nope. How to tell when a Brave Hero is sick...

Published Mon, Feb 11 2013 8:30 PM by Praying For Parker

Filed under: Advocacy, down syndrome, medically fragile children, Life With Special Needs, Hospital Frequent Flyer, children with special needs, parenting, no cure for the common cold

The Fear of Down syndrome

No matter how hard I try to wrap my head around it, I cannot grasp the concept of being so afraid of something that I would choose to kill a child in utero. Apparently the fear of Down syndrome did exactly that to a family in the southern province of...

Published Sun, Feb 24 2013 10:32 AM by Praying For Parker

Filed under: abortion, Life With Special Needs, A life worth living., Hatice Demet Buzpınar, The Fear of Down syndrome

Breathing in Style

I was watching a show the other day where three different couples had redesigned a part of their homes and invited designers in to decide which couple would get the biggest bang of a return from their design dollars. I sometimes like to watch design shows...

Published Mon, Feb 25 2013 8:58 AM by Praying For Parker

Filed under: The HIGH Cost of Health Care, pulmonary hypertension, chronic lung disease, Life With Special Needs, trachs, oxygen concentrators, durable medical equipment, trach noses

The Gift of the Magi: Special Needs Style

One thing about having such a tight (and often non-existent) budget during the holidays is the feeling of helplessness in giving back or reaching out to bless the lives of others. Being able to give has always been such a big part of our...

Published Mon, Nov 26 2012 6:28 PM by Praying For Parker

Filed under: frugal living, gift giving, no spend christmas

Advocating Against the R-Word.

Parker’s big sister, McCall has always been a huge advocate for ending the use of the R-word. It hasn’t been easy. Take for example, when on her high school softball team she asked a team mate to please not say the r-word. She was polite,...

Published Sun, Dec 09 2012 7:52 PM by Praying For Parker

Filed under: Advocacy, spread the word to end the word, end the r-word, the r-word

When Panic Attacks

We had just been talking about how well he had been doing. Every morning we were waking up to clear sounding lungs after a night of beautiful oxygen and heart rate sats. We’d changed up Parker’s morning routine, having him outside in the early...

Published Fri, Jun 14 2013 8:43 AM by Praying For Parker

Filed under: Life With Special Needs, Now I Can Foundation

Stretching Ground Beef

With a recipe such as Chili or Tacos…..or even Lasagna I add a cup to a cup and a half of beans to every pound of browned ground beef. You can use any kind of beans. Canned. Homemade. Refried. It doesn’t matter. Today I used dehydrated pinto...

Published Mon, Apr 15 2013 5:43 PM by Praying For Parker

Filed under: From Scratch, frugal living, frugal recipes

Adaptive Bikes……Again

Parker’s Physical Therapist came today to measure Parker for potential adaptive bikes. I say potential because it’s still in the ‘maybe one day’ column of our hopes and wishes list. I was surprised to be reminded that the bike...

Published Fri, Apr 12 2013 7:15 PM by Praying For Parker

Filed under: down syndrome, physical therapy, Life With Special Needs, special needs parenting, Meeting a kid's sensory needs., physical therapists, adaptive bikes, AmTryke

Rifton Adaptive Bikes

Rifton Adaptive Bikes are what our Physical Therapist suggested for Parker when I started talking about Parker learning how to ride a bike. Last May the PT brought out a smaller sized Rifton Adaptive Bike for Parker to use since there was nobody else...

Published Mon, Mar 25 2013 6:56 PM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, special needs parenting, Rifton Adaptive Bikes, teaching a child with special needs to ride a bike

Lab Test Results

Lab tests results meaning have a way of putting a wee bit of terror into this Mama’s soul. While we no longer need to go every month, I still find myself thinking of big pretty bottles of nerve medications the day we are scheduled to have 6 big...

Published Wed, Mar 27 2013 10:10 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, down syndrome, right heart cath, Life With Special Needs, Frequent Flyin' ar the PCMC, special needs parenting, BNP, RDW, Neutrophils, lab test results, Differentials, RDWSD, Target cells, Ametamyelocyte

Obamacare: An Informal Poll

Last night Reed came home and told me about a friend of his that recently moved to California. This friend just received a letter from his insurance company informing him that due to Obmacare his costs for insurance just went up to………...

Published Wed, Oct 23 2013 8:48 AM by Praying For Parker

Filed under: The HIGH Cost of Health Care, Life With Special Needs, special needs parenting, Afordable healthcare, ACA

Pinewood Derby

Turning 9 years old brings a lot of excitement, not the least being able to compete in the Pinewood Derby. I remember my other boys working to put together a car that had the secret combination to beat all the other cars out there. Unfortunately, Parker...

Published Mon, Feb 03 2014 8:53 PM by Praying For Parker

Filed under: Stuff We LOVE!, down syndrome, Life With Special Needs, kids with special needs, special needs parenting, cub scouts, pinewood derby, boy scouts

The Great Hearing Aid Chase

A year and a half ago Parker had a sedated ABR. The news was surprising at best. Parker’s hearing in his right ear was severely damaged. His left ear not as bad, but still not as good as his newborn hearing test had shown. We were given the name...

Published Wed, Feb 05 2014 7:28 AM by Praying For Parker

Filed under: Life With Special Needs, Frequent Flyin' ar the PCMC, special needs parenting, hearing aid, ear tubes, audiologist, audiology booth, sound booth

A Guinea Pig Named Wally

I’ve never been a huge pet person. I always had a cat growing up and even had guinea pigs too. It was great when my mom was there to do the cleaning up. heh. With a house full of kids having another body to take care of simply wasn’t on my...

Published Fri, Jan 03 2014 11:56 AM by Praying For Parker

Filed under: Stuff We LOVE!, Life With Special Needs, special needs parenting, guiena pig cozies, cavy, cavies, pets and kids with special needs, guinea pigs

Syndication

Recent Posts

Tags

Archives