Praying for Parker

From There to Here

It started with a 4% chance of something being not quite right. Parker’s short femurs and my advanced maternal age. I remember my OB telling us not to worry, that these were odds good enough to take to Vegas. That all of the babies he had ever delivered...

Published Tue, Feb 16 2010 9:53 PM by Praying For Parker

Filed under: A Day In Our Life, adapting in place

This….That….. and Whatever

By the time you read this I will most likely be out. of. the. house. Just typing this is causing me to hyperventilate with excitement. To add to the awesome, I received an invitation for our family to be included in Sharon Astyk’s new book, Making...

Published Wed, Jan 27 2010 10:09 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Stuff We LOVE!, From Scratch, Voice4u, sharon astyk, Discount School Supply, making yogurt at home, adapting in place

A Provident Pantry: One staple of a frugal life.

Reed e-filed our taxes on Saturday. BP (before Parker) this was a time of great anticipation. Kind of like a Christmas Eve just for Mom and Dad, we entertained visions of fun stuff about to become ours. We felt pretty responsible by putting half into...

Published Sun, Jan 24 2010 8:57 PM by Praying For Parker

Filed under: A Day In Our Life, Cheap and Easy, From Scratch, frugal living, pantry challange, food storage, stockpiling

Here we go……again.

I’ve got a huge pot of millet on the stove. I’m making it to use in Parker’s blenderized diet. Millet has an 11% protein content and is GLUTEN FREE. I toasted it before I started it on a boil, and my house smells so good. While the millet...

Published Mon, Mar 15 2010 1:15 PM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, down syndrome, Special Needs, blenderized diets, millet

Children Of Some Other God?

The things that blow me away the most are the stories I hear from families of children with special needs who have dared to take their child to church. Well, at least that is how they wound up feeling about it. Because, their kids, weren’t really...

Published Tue, Mar 16 2010 6:56 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, I'm The Mama: Hear Me Roar!, religion, church

What twenty bucks and a ton of elbow grease will get ya…

Remember THIS post? The one where I share how we are trying to open up enough space in Parker’s safe room so we can fit a twin sized bed in? Cause the whole mattress on the floor thing does not a good night’s sleep make. After MONTHS of looking...

Published Mon, May 17 2010 5:46 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Cheap and Easy, down syndrome, Special Needs, yard sales, furniture make over

Kefir, Baby.

One thing we have added to Parker’s blenderized diet that has been very beneficial is Kefir. Kefir is like a drinkable yogurt, except it packs a more powerful punch when made with live Kefir grains. The first few batches of Kefir I made was with...

Published Wed, Apr 28 2010 9:13 AM by Praying For Parker

Filed under: Cheap and Easy, Stuff We LOVE!, blenderized diets, g-tubes, Kefir

Nova Natural Toys + Crafts Giveaway

The first time I came across Nova Natural Toys & Crafts, I’m pretty sure I drooled all over my computer screen. High quality, open ended toys made from natural products. Perfect for kids of all abilities. From houseplay, to castles, to crafts...

Published Fri, Oct 22 2010 8:43 AM by Praying For Parker

Filed under: A Day In Our Life, Stuff We LOVE!, Reviews and Giveaways!, contests, giveaways, Nova Natural Toys + Crafts, prayingforparker

Halloween with Special Needs

Don’t forget to enter our Nova Natural Toys + Crafts Giveaway! Perfect for Christmas! _____ When my older kids were little, Halloween was a big deal around these parts. A very big deal. Family nights with Halloween treats to anticipate. “Whaddya...

Published Sun, Oct 24 2010 9:26 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, Praying For Parker, Halloween

Who needs Medicaid…….just host a BBQ to keep your kid alive.

Go HERE for a chance to win a Scentsy Jack O’ Lantern Warmer during Parker’s Scentsy Raffle! Our local Legislative Representative is convinced that Parker’s Medicaid Waiver could be replaced with the charity of neighbors and friends...

Published Thu, Sep 30 2010 10:25 AM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, Advocacy, I'm The Mama: Hear Me Roar!, Utah Legislature, travis c. waiver, Mediciad, LTV Vent

And just like THAT the light goes out..

We had an amazing appointment with Second Opinion Pulmo. She pointed out that Parker is trached for his severely obstructive sleep apnea. Parker’s trachea collapses when he sleeps. If this hasn’t gotten better by now, it isn’t likely...

Published Fri, Sep 17 2010 3:10 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, pulmonary hypertension, Pulmo, right heart caths, lungs, ENT

Embracing a blessing when you get one…..

No big decisions have been made yet. Although we do have an OR date on October 3rd. Even though we don’t know what exactly will be happening. Trying to talk to talk to doctors individually is nuts. So I asked our most wonderful of Pedi’s to...

Published Wed, Sep 22 2010 1:06 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, A Day In Our Life, Fantabulous-ness, down syndrome, PH, blessings, PAH

Then I Took My Kid and Left…..

Parker gets blood drawn once a month. Okay, so it’s more like every six weeks. Gimme a break. During these outtings they pull a LOT of blood. We test for BNP, liver, thyroid, CBC, CK and other things I know I’m forgetting. I used to make Reed...

Published Tue, Jan 25 2011 8:25 PM by Praying For Parker

Filed under: I'm The Mama: Hear Me Roar!

Livin’ On Love

I know. It’s the same old song. I feel as though I’ve been singing it for years now. Money is tight. We have saved sooo much money with cloth diapers? My personal favorite? The brown and blue GAD in the top left hand part of the pic. We don’t...

Published Sun, Jan 23 2011 9:46 AM by Praying For Parker

Filed under: A Day In Our Life, Cheap and Easy

Beyond Down syndrome awareness.

When Parker was first born, I was all about Down syndrome awareness. I wanted to shine a light on what it was like to have a medically fragile child with special needs when your insurance only wanted to cover the typical. I wanted to share the day to...

Published Mon, Oct 12 2015 8:57 AM by Praying For Parker

Filed under: Advocacy, down syndrome, Special Needs, Life With Special Needs, special needs parenting, Down syndrome awareness month

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