Praying for Parker

This just in…..

Parker’s heart cath has been changed from July 26th to some time in August. The anesthesiologist I requested won’t be available until August. I wanted the best in on Parker’s next heart cath, so if that means waiting a bit longer, so...

Published Fri, Jul 15 2011 10:21 AM by Praying For Parker

Filed under: A Day In Our Life

Summer…..so far.

Summer time at the Hodson House has been full of doctor appointments. It’s much better to take Parker up to Primary’s in the summer rather than RSV season. Lately it seems as though there is always some kind of scary going around up there...

Published Wed, Jul 13 2011 9:19 AM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, asthma, right heart caths, FEES study, RTC

Inclusion, Acceptance and Respect

Because, Inclusion, Acceptance and Respect. I know many within the Down syndrome community are posting each day in October to celebrate Down Syndrome Awareness month. Never being one to color within the usual lines, I decided to teach myself how to make...

Published Thu, Oct 22 2015 11:13 AM by Praying For Parker

Filed under: Life With Special Needs, ndss, Inclusion, assume compentance

My totally typical kid with special needs.

No words. Just incredible gratitude for my totally typical kid with special needs. I’ll forever be thankful that I’m the one he signs “Mama” to. The post My totally typical kid with special needs...

Published Fri, Oct 25 2013 10:39 AM by Praying For Parker

Filed under: down syndrome, Special Needs, Life With Special Needs, special needs parenting

EPSDT: Early Periodic Screening, Diagnosis, and Treatment

I received a phone call today asking questions about Parker’s feeding needs. I usually get calls like this each month before they send out his formula and feeding supplies. They ask what his height is. They ask what his weight is. Then the conversation...

Published Mon, Jan 06 2014 6:51 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, blenderized diet, Life With Special Needs, special needs parenting, Kangaroo Joey Feeding Pump

A Guinea Pig Named Wally

I’ve never been a huge pet person. I always had a cat growing up and even had guinea pigs too. It was great when my mom was there to do the cleaning up. heh. With a house full of kids having another body to take care of simply wasn’t on my...

Published Fri, Jan 03 2014 11:56 AM by Praying For Parker

Filed under: Stuff We LOVE!, Life With Special Needs, special needs parenting, guiena pig cozies, cavy, cavies, pets and kids with special needs, guinea pigs

The VIPs

It was the first thing my Mom said to me when she walked through the door Thursday evening. This, she said. Read it. Now. It was an article in the Daily Herald, our local Utah County newspaper. The VIPs: Sports league for special needs children wraps...

Published Sun, Jul 07 2013 10:37 AM by Praying For Parker

Filed under: Therapy, Life With Special Needs, special needs parenting, bankruptcy, yard sale fund raiser

In other news…..

We’re almost a month into Summer vacation here at the Hodson House. Summer is different these days than it used to be when my kids were little and it seemed as though every spare moment was spent on some sort of sports bleacher watching one or more...

Published Tue, Jun 25 2013 8:04 PM by Praying For Parker

Filed under: Special Needs Homeschooling, yard sales, homeschool, thrifting, spring cleaning, physical therapy, Life With Special Needs, Mormon Missionaries, homeschooling groups, Now I Can.org

Now I Can Foundation

We had a HUGE yard sale. We received donations from family and friends. We sent up prayers and then more prayers after that. Today we are celebrating Parker’s first week at the Now I Can Foundation. Now I Can is a place of hope and dreams and a...

Published Wed, Sep 25 2013 7:50 AM by Praying For Parker

Filed under: down syndrome, miracles, Life With Special Needs, hope, special needs parenting, intense physical therapy

Using vinegar to clean and disinfect.

Almost all trached kids, off and on, will have colonized MRSA in their trachs. Now before you go all aghast on me, let me remind you that most of us have MRSA colonized in our very own little noses. Yup. That means you. And you. And your little one there...

Published Wed, Sep 18 2013 7:18 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, Life With Special Needs, cleaning tips, Cheap cleaning products, Cleaning with Vinegar, MRSA

Cyberbullying

This is a comment that Nancy’s Mom left. I’m posting here rather than at the end of the other post, which as you can see I’ve chosen to take down. “I have debated about writing anything at all on this issue, not wanting...

Published Sun, Oct 20 2013 5:44 PM by Praying For Parker

Filed under: Life With Special Needs, internet stalking, cyberbullying

Growing vegetables for blenderized diet tube feeding

Looking to save money on a whole food formula for the favorite tubie in your life? On of the best ways to cut down on the grocery budget is by growing vegetables for blenderized diet tube feeding. Your garden doesn’t need to be elaborate. Your green...

Published Wed, Sep 17 2014 7:59 AM by Praying For Parker

Filed under: blenderized diet, frugal living, backyard gardening, special needs parenting, g-tube, tubies, tube feeding, power house greens

The end of the beginning of my blogging.

Blogging has changed since I first began this site about 8 years ago. It started as a way to keep a journal of sorts about Parker’s life and add in a bit of advocacy as well. As time has gone on bloggers have made pretty successful businesses from...

Published Wed, Jan 15 2014 2:13 PM by Praying For Parker

Filed under: Special Needs Homeschooling, down syndrome, Life With Special Needs, Sensory Tubs, blogging, special needs parenting

Jelly Marbles and Sensory Experiences

Parker is a sensory seeking kind of kid. He loves the undersides of carpets, sandpaper, and the plastic mesh that needle workers use. A tub of pine cones and this Hero is in Nirvana. I often brush Parker down before a lesson. If I don’t...

Published Tue, Nov 20 2012 7:04 PM by Praying For Parker

Filed under: Special Needs Homeschooling, Sensory Tubs, Jelly Marbles, Steve Spangler

Visual Tracking and Tactile Activities

Who knew that simple buttons and Velcro would work magic for visual tracking and tactile experiences. I love simple and cheap therapy activities, especially if I can put them together myself in less than 15 minutes. Score. I’m working on Parker’s...

Published Sun, Mar 03 2013 7:27 PM by Praying For Parker

Filed under: Special Needs Homeschooling, Meeting a kid's sensory needs., fine motor skill activities, sensory pyramid, pre-reading activities, Visual Tracking Activities, pre-writing activities

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