Praying for Parker

Ignorance: It begins in the medical manuals.

90% of all prenatally diagnosed unborn children with Down syndrome are aborted. NINETY percent. That leaves only 10 percent given the opportunity to take their first breaths. Perhaps it has to do with the way the diagnosis is delivered. Misinformation...

Published Mon, Apr 09 2012 9:44 AM by Praying For Parker

Filed under: Advocacy, down syndrome, Special Needs, Life With Special Needs, T21

Would it kill them to stop doing that? The R-word and it’s derivatives.

Is a lack of consideration the new black of today’s social culture? When I’m really in the mood to raise my blood pressure I’ll find myself reading the comments section of our local Utah newspapers, namely the comments following articles...

Published Mon, Jan 23 2012 7:27 AM by Praying For Parker

Filed under: Advocacy, down syndrome, spread the word to end the word, Life With Special Needs, r-word

Snow Painting

It happened. Finally. It snowed. Snow. Finally Not so much as to be a hassle. Not too little to notice. Just enough. Read More...

Published Wed, Jan 25 2012 5:31 PM by Praying For Parker

Filed under: Life With Special Needs

There’s No Such Thing as a Defective Child

It came across my Facebook stream. The sadness. The hurt. The unbelievable-ness of it all. An almost Mother. A pre-natal diagnosis. The decision to abort already made. Because this child, the same child that yesterday held hopes and dreams and...

Published Sun, Dec 18 2011 4:17 PM by Praying For Parker

Filed under: Advocacy, choose life

The little bits of happiness and a beautiful life with Down syndrome.

The last time we took Parker to the dentist he was still so small that the dentist held Parker’s head in his lap and Reed held Parker’s feet in his lap. Me? I prayed like hell this would hurry quick and be over. Yesterday we took Parker to...

Published Tue, Apr 24 2012 8:14 AM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, Family and Friends, joy in the journey

Life. Updated.

Yesterday started with Reed telling me that we had a bit of a situation on our hands. Oh, goodie. The fan on our furnace….the motor……was shot. Without the furnace motor the air conditioning doesn’t work. sigh...

Published Mon, Jun 25 2012 6:14 PM by Praying For Parker

Filed under: Special Needs Homeschooling, Life With Special Needs, Frequent Flyin' ar the PCMC

Sticks and stones….I don’t care what the rhyme says, words DO hurt.

Sticks and stones……I don’t care what the rhyme says, words do hurt. Especially a word, when used, demeans another human being. Take the r-word for example. A word that rolls off of so many tongues so easily, so carelessly...

Published Fri, Sep 07 2012 7:48 PM by Praying For Parker

Filed under: end the r-word, r-word counter

Aspiration pneumonia, blue food dye and one Brave Hero

We took Parker down again for his blood work yesterday. To make things a little more exciting we added on a chest x-ray too. Any night now and we are going to look over and discover Parker glowing in the dark. The blood work came back looking...

Published Tue, Sep 18 2012 6:19 PM by Praying For Parker

Filed under: down syndrome, aspiration, aspiration pneumonia, Life With Special Needs, Frequent Flyin' ar the PCMC

How I finally got my kid to hold a pencil.

My Mission, whether I wanted to accept it or not, was to convince Parker to hold a pencil. Or a crayon. Or a marker. Hey. I’m not picky. I tried everything. Pencil grips. Taping a super light grit of sandpaper around crayons to give...

Published Wed, Sep 19 2012 10:33 AM by Praying For Parker

Filed under: Special Needs Homeschooling, Stuff We LOVE!, ABLEWARE, how to hold a pencil

10 tips for dealing with chronic illness.

Let’s face it. For those of us who have kids with special needs AND chronic illness, there are some days you need a mental health moment. Or a zillion. Just keepin’ it real. Lori Rappaport, PhD., has put together 10 tips to help...

Published Mon, Sep 24 2012 9:05 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, medically fragile children, Life With Special Needs, Frequent Flyin' ar the PCMC, Lori Rappaport

In Theory: ‘Adult’ medications and medically fragile kids.

Up to Primary’s we went today. Again. We met with the ENT and talked about our experiment to see if Parker’s reflux issues have come back. There was no blue in his trach nose, so it’s looking as though that isn’t...

Published Thu, Sep 20 2012 7:13 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, down syndrome, botox, Frequent Flyin' ar the PCMC, epiglottal fold over

Things that can drive a special needs Mama to drink…

Across my Twitter stream this morning came the news. All that waits is the official announcement. Carl Wimmer is running for Congress. Wimmer says his exploratory committee has raised more than $100,000, and he likes that he has about 180 individual donors...

Published Thu, Jun 02 2011 9:25 AM by Praying For Parker

Filed under: The HIGH Cost of Health Care, A Day In Our Life, Advocacy, medicaid, applied medical, mini button g-tubes, Representative Carl Wimmer

Summer…..so far.

Summer time at the Hodson House has been full of doctor appointments. It’s much better to take Parker up to Primary’s in the summer rather than RSV season. Lately it seems as though there is always some kind of scary going around up there...

Published Wed, Jul 13 2011 9:19 AM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, asthma, right heart caths, FEES study, RTC

This just in…..

Parker’s heart cath has been changed from July 26th to some time in August. The anesthesiologist I requested won’t be available until August. I wanted the best in on Parker’s next heart cath, so if that means waiting a bit longer, so...

Published Fri, Jul 15 2011 10:21 AM by Praying For Parker

Filed under: A Day In Our Life

Things that make me want to smack someone…..

Parker’s been sick. Throwing up. Fever. Diapers from h@ll. We’ve been trying to get an appointment into GI for the last several days. Every time I call, I get a message telling me to leave a message. I leave the required message. Then...

Published Thu, Apr 28 2011 10:07 AM by Praying For Parker

Filed under: A Day In Our Life, Special Needs, Carl Wimmer, Albuterol, xeopenex

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