Praying for Parker

The Battle Cry Against Entitlements

Preface: Our family is one of the lucky ones. We’ve been blessed with so much support in our commitment to keeping Parker alive. But for every lucky one there are THOUSANDS who are not so lucky. What I share below is to also bring awareness to their...

Published Wed, Jun 30 2010 7:39 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, A Day In Our Life, Advocacy, down syndrome, Special Needs, I'm The Mama: Hear Me Roar!, medicaid, entitlements

Parker’s Shape Book: Don’t Forget the Star!

Each week Parker’s preschool teacher, Miss Linda, comes to our house. We love Miss Linda. She is a rainbow of total awesomeness. Which, btw, is a compliment I don’t hand out very often. Miss Linda isn’t just teaching the new and wonderful...

Published Thu, Nov 12 2009 4:33 PM by Praying For Parker

Filed under: Special Needs Homeschooling, down syndrome, shapes, special needs homeschooling

From Facebook With Love

Every once in a while I spend a little time trolling….. ah….strolling through my kids’ photos on Facebook. Oh, the things a Mom can learn. On today’s list? My daughter: McCall is my middle daughter. 3 of six. The words Diva and...

Published Mon, Nov 16 2009 7:55 AM by Praying For Parker

Filed under: People I Love

Rising Above the Blues

A little sunshine for the soul: Rise Above The Blues Hoping you feel a little brightness in your hearts too! Read More...

Published Tue, Nov 17 2009 10:08 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, A Day In Our Life

Gingerbread Houses: Hodson Style

There is barely an ornament on this tree that is in the same place I originally put it: If you look closely you’ll see that the garland only goes halfway down. The other half having been snatched off by a certain little someone. Meet Someone. But...

Published Wed, Dec 09 2009 11:01 AM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Stuff We LOVE!, Special Needs, People I Love, Christmas, Gingerbread Houses

On the Third Day of Christmas

Saturday night a surprise was discovered on our front porch. And that was just the beginning. A certain unknown Pixie is sharing with our family a little joy of the season. With a sprinkling of magic and rhyme our home is blessed with the spirit of Christmas...

Published Tue, Dec 15 2009 11:11 AM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Special Needs, People I Love, 12 Days of Christmas, miracles, Believe

My Heart In A Nutshell

I’m waiting for the phone call from Primary Children’s that will let us know when Parker’s surgery will be tomorrow. My nerves are a bit frayed today. But that’s pretty standard for the day before surgery. I have so much to do...

Published Wed, Dec 16 2009 12:55 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, A Day In Our Life, down syndrome, Special Needs, Nissen, 5 Minutes For Mom

And Suddenly My Heart Is A Little Lighter

We received the results of Parker’s sedated chest CT. The results were “consistent with severe chronic aspiration.” For some parents this would be bad news. For us though it is actually good news. This could be a reason why his cardiologist...

Published Fri, Dec 11 2009 10:44 AM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, Advocacy, down syndrome, I'm The Mama: Hear Me Roar!, Nissen, pulmonary hypertension, chronic lung disease, reflux

Beans in Every Crockpot

During the 1928 presidential campaign, the Republican party claimed that if Herbert Hoover won” There would be a chicken in every pot…” Hoover won, but seven months later the stock market crashed and plunged the country into the Great...

Published Tue, Feb 09 2010 8:10 PM by Praying For Parker

Filed under: A Day In Our Life, Cheap and Easy, Totally Worth The Calories, From Scratch, dried beans, slow cooker, crockpot

From There to Here

It started with a 4% chance of something being not quite right. Parker’s short femurs and my advanced maternal age. I remember my OB telling us not to worry, that these were odds good enough to take to Vegas. That all of the babies he had ever delivered...

Published Tue, Feb 16 2010 9:53 PM by Praying For Parker

Filed under: A Day In Our Life, adapting in place

What Would YOU Do?

How would YOU react if a shopper told a clerk with Down syndrome “You’re Absolutely Retarded!” We all know how I would react. They would still be cleaning up bits of this woman off the walls months later…. But what about you? Or...

Published Wed, May 19 2010 3:49 PM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, down syndrome, Special Needs, I'm The Mama: Hear Me Roar!, ABC News/What Would YOU Do

Special needs children in a real life family..

Miracles. We’ve witnessed our share over here. My still being online falls under this heading. It took me a minute to accept this last miracle offered, but I’m glad I did. Because I agree, The face of our Brave Hero does brighten many people’s...

Published Mon, May 10 2010 8:12 AM by Praying For Parker

Filed under: Uncategorized

Kefir, Baby.

One thing we have added to Parker’s blenderized diet that has been very beneficial is Kefir. Kefir is like a drinkable yogurt, except it packs a more powerful punch when made with live Kefir grains. The first few batches of Kefir I made was with...

Published Wed, Apr 28 2010 9:13 AM by Praying For Parker

Filed under: Cheap and Easy, Stuff We LOVE!, blenderized diets, g-tubes, Kefir

I’ll share mine if you’ll share yours…

My natural instincts are to rush, cram, and just get through the dealings of my day. But one thing I’ve learned about being Mom to a medically fragile child with special needs, is that slower is often better. Especially after the week from hell...

Published Thu, Mar 25 2010 9:33 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Special Needs, simple living

Children Of Some Other God?

The things that blow me away the most are the stories I hear from families of children with special needs who have dared to take their child to church. Well, at least that is how they wound up feeling about it. Because, their kids, weren’t really...

Published Tue, Mar 16 2010 6:56 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, I'm The Mama: Hear Me Roar!, religion, church

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