Praying for Parker

Moving Mountains While Tripping Over Molehills

Every thirty days, like clockwork, we haul Parker down to the hospital for his monthly blood draws. With the addition of a new medication, it is even more important we get him down there on time, or so warns our cardiologist. Because with the new medication...

Published Thu, Nov 05 2009 9:24 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, A Day In Our Life

So, what are you feeding YOUR kid?

Parker is almost 5. (November 19th!) He weighs 29 pounds. (sigh) He grows taller, but not wider. His diet consists mostly of 4.5 cans of Pediasure a day, directly into his tummy via his g-tube. Day after day after day after day. We noticed a big difference...

Published Wed, Nov 11 2009 9:11 AM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, Advocacy, From Scratch, down syndrome, Special Needs, Pediasure, blenderized diet, nutrition

As Real As It Gets….

The other day my 11 year old came up to me and asked if we could watch a movie…..just me and her. After I told her I’d love to watch a movie with her, she looked at me and asked what I suspect was really weighing on her heart: “Mom,...

Published Mon, Jul 05 2010 8:46 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, medically fragile children, siblings

Down on Parker’s Farm….

We hung out at my parent’s house on Memorial Day. I love hanging out my parent’s house. The company, the food, the whole day….simply wonderful. My parents own almost 6 acres out in the boonies. This is the view from their back deck....

Published Thu, Jun 03 2010 9:13 AM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, farm life, Memorial Day, goats, chickens

Halloween with Special Needs

Don’t forget to enter our Nova Natural Toys + Crafts Giveaway! Perfect for Christmas! _____ When my older kids were little, Halloween was a big deal around these parts. A very big deal. Family nights with Halloween treats to anticipate. “Whaddya...

Published Sun, Oct 24 2010 9:26 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, Praying For Parker, Halloween

On the Fifth Day of Christmas…

Santa came to deliver the Fifth Day of Christmas ! I’d LOVE to show you pictures of Parker and Santa, except when he came I was in the back of the house working and didn’t hear him. And a certain Dad, by the name of REED, didn’t let...

Published Sun, Dec 19 2010 1:02 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness

Mom It Forward – Changing the World One Mom at a Time

Every Tuesday night #gno (Girls Night Out) hosts Twitter parties where women from all over the world join into on a topic of conversation right from their computer keyboards. Even after the actual party was over, women would still hang out tweeting under...

Published Wed, Nov 17 2010 11:14 AM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, down syndrome, Special Needs, Mom It Forward, #gno

A Mama’s Intuition: Special Needs Style

Our day nurse is excellent. We adore her. And she adores Parker. But even with her nursing degree, there’s something to be said about a Mama’s intuition. Especially if that Mama has a child with special needs. After Parker’s surgery...

Published Wed, Feb 02 2011 8:00 AM by Praying For Parker

Filed under: A Day In Our Life, Doing it Special Needs Style

Then I Took My Kid and Left…..

Parker gets blood drawn once a month. Okay, so it’s more like every six weeks. Gimme a break. During these outtings they pull a LOT of blood. We test for BNP, liver, thyroid, CBC, CK and other things I know I’m forgetting. I used to make Reed...

Published Tue, Jan 25 2011 8:25 PM by Praying For Parker

Filed under: I'm The Mama: Hear Me Roar!

3.2.11: A Day to Make the World a Better Place

My 19 year old had an interesting experience in one of her college classes. Her Professor, himself the author of a newly published book, made the choice to use the word ‘retarded’ in front of a class of college kids. One would think that a...

Published Wed, Mar 02 2011 7:55 AM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, Special Needs, 3.2.11, end the r word, down syndome

Homemade Breadsticks: a MUST TRY recipe!

This isn’t my original recipe. I pulled it off the internet a while ago. I wish I could remember from where, because then I would give credit where credit is due! When Reed was in college, he worked at the original Pizza Factory in Cedar City. As...

Published Mon, Nov 15 2010 7:59 AM by Praying For Parker

Filed under: A Day In Our Life, Cheap and Easy, Totally Worth The Calories, homemade breadsticks, homemade pizza dough, Pizza Factory Breadsticks

Wordless Wednesday/Special Exposure Wednesday: Sullen

What would 15 be like without the sullen? I’d love to find out. Have you entered our super fantastic giveaway from Nova Natural yet? Why not? Read More...

Published Tue, Oct 26 2010 7:22 PM by Praying For Parker

Filed under: A Day In Our Life, People I Love, special exposure wednesday, Wordless Wednesday

Nova Natural Toys + Crafts Giveaway

The first time I came across Nova Natural Toys & Crafts, I’m pretty sure I drooled all over my computer screen. High quality, open ended toys made from natural products. Perfect for kids of all abilities. From houseplay, to castles, to crafts...

Published Fri, Oct 22 2010 8:43 AM by Praying For Parker

Filed under: A Day In Our Life, Stuff We LOVE!, Reviews and Giveaways!, contests, giveaways, Nova Natural Toys + Crafts, prayingforparker

Amish White Bread: A Recipe

Am I the only one floored at the price of bread these days? The ‘on sale’ price of my kid’s favorite sandwich bread is $2.00 a loaf. It isn’t unusual for our family to chomp their way through 8 loaves a week. $16.00 a week for...

Published Thu, Nov 04 2010 7:50 AM by Praying For Parker

Filed under: Cheap and Easy, Totally Worth The Calories, amish white bread, bread making, how to make bread

From the files of WTH?

I’m over at 5 Minutes for Special Needs today. If you have a kid with Down syndrome, or ANY other disability, you NEED to read this. Seriously. Read More...

Published Tue, Aug 10 2010 8:45 AM by Praying For Parker

Filed under: Advocacy, 5 Minutes For Special Needs

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