Praying for Parker

How to clean a burnt pan.

Once every two weeks or so I’ll get out all my pots and brew up a bunch of grains for Parker’s blenderized diet. I like to get the water boiling, add salt and the grain, cover the pot, turn the temperature down and allow the grain to cook...

Published Mon, Feb 06 2012 7:46 PM by Praying For Parker

Filed under: frugal living, DIY, cleaning tips

Make Your Own Snow Paint and an Alphabet Activity

Yesterday Parker painted his alphabet letters with snow paint. Super simple stuff. Half glue, half foam shaving cream. Stir. I have a paint brush shown in this picture. I quickly discovered that Q-tips were much easier to use. I may have been too lazy...

Published Tue, Feb 07 2012 8:41 AM by Praying For Parker

Filed under: Special Needs Homeschooling, homeschooling, Life With Special Needs, Art Activities, art activites, snow paing

Speech (or no speech) and the kid with special needs.

A Facebook friend posted this today: From your child with special needs: “Now I lay me down to sleep, I pray the lord to give me words to speak. But if they never come this way, let my mommy know everything will be ok. Boy, howdy, did this one hit...

Published Tue, Feb 07 2012 5:48 PM by Praying For Parker

Filed under: Special Needs Homeschooling, down syndrome, Special Needs, AAC, Ipad Apps, speech, apraxia

The Bill of Rights: Special Needs Style

A Bill of Rights of parents of kids with Special Needs (I don’t know who originally created this. If anyone knows, please let me know and I’ll give them credit.) You have the right to take one day at a time, and take that day positively. Having...

Published Thu, Feb 09 2012 8:06 AM by Praying For Parker

Filed under: Advocacy, down syndrome, Special Needs, bill of rights

So Can I.

Deep down inside, in a place where the spirit whispers to your heart, I had this knowing that Parker was going to be born with Down syndrome. After his T&A. Taking into account my ‘advanced maternal age’ and the length of Parker’s...

Published Thu, Feb 09 2012 7:31 PM by Praying For Parker

Filed under: down syndrome, Special Needs, blessings, Life With Special Needs

New Sponsor: Hippie’s Bath and Body

Parker and I would like to welcome our new sponsor Hippie’s Bath and Body! Cause Even Hippies Need a Bath Sometimes! Owned by Petra Monaco who’s shop is nestled next in the beautiful James River Region in Central Virginia, each item is handcrafted...

Published Fri, Feb 10 2012 9:53 PM by Praying For Parker

Filed under: Stuff We LOVE!, giveaway

Herding Cats….and Giving Thanks

When my kids were little people used to always tell me not to worry, that as they got older things would get easier. They lied. I’ve been trying to get these pictures taken and posted for a few weeks now. I had them once, and then somehow deleted...

Published Sun, Feb 12 2012 4:19 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Family and Friends, thankfulness

Parker Loves Gam

Most of Parker’s first years were spent in my arms sitting in a rocking chair inside of his ‘safe room.’ Sick far more often than he was healthy, we spent much of the time reading books. Parker wouldn’t allow me to turn the last...

Published Mon, Feb 13 2012 6:23 AM by Praying For Parker

Filed under: pulmonary hypertension, Family and Friends, Gam, books

The State of Illinois and the lives of medically fragile kids with special needs.

We’ve all had the experience of needing to cut our household budgets. We go, line by line, over each dollar spent and where. We put that new pair of shoes off until later. The pair we have now will last a few more months. Who really needs this many...

Published Tue, Feb 14 2012 9:34 AM by Praying For Parker

Filed under: Advocacy, frugal living, medicaid, travis c. waiver, Politics of Special Needs, DSPD

Valentine for a Hero

Those that live at my house know that this Cupid isn’t a fan of baking sugar cookies. The rolling. The cutting out. It seems to take all day. So coming home to hot from the oven Valentine Day cookies was recognized as a labor of love. The cookies...

Published Wed, Feb 15 2012 10:22 AM by Praying For Parker

Filed under: From Scratch, Recipes, Life With Special Needs

Mega Bloks Fire Patrol Rescue

I’ll admit it, when I was asked to try out some awesome MegaBloks, I was thinking mega…….as in they were ‘mega sized.’ But the Mega Bloks I received were much smaller. Like both Mega Bloks and Parker, good things come in...

Published Wed, Feb 15 2012 1:16 PM by Praying For Parker

Filed under: Stuff We LOVE!, Mega Bloks

Communicating with my non-verbal kid.

I’ve changed things up with Parker’s communication invitations lately. They aren’t the the perfectly set up displays I once created. Instead I have a basket of toys that change every few days. They stay the way Parker last left them...

Published Wed, Feb 15 2012 7:22 PM by Praying For Parker

Filed under: Special Needs Homeschooling, down syndrome, Life With Special Needs, Ipad Apps, communication skills

A tree. A rod. A great and spacious buidling.

There is a story I’ve been told since I was little that I read to my kids when they were little. It’s a story about a man’s dream in which he saw a great and spacious building, a path following a river, a mist of darkness, a rod that...

Published Thu, Feb 16 2012 8:46 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, faith

A tree. A rod. A great and spacious building.

There is a story I’ve been told since I was little that I read to my kids when they were little. It’s a story about a man’s dream in which he saw a great and spacious building, a path following a river, a mist of darkness, a rod that...

Published Thu, Feb 16 2012 8:46 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, faith

Weighted Vests: Experiences Wanted

There are days when trying to get Parker to focus and pay attention to the task at hand is a huge experience in futility. I teasingly refer to it as ‘Goofball Mode’ It’s when Parker simply starts…well, acting like a Goofball. Twisting...

Published Tue, Feb 21 2012 7:57 AM by Praying For Parker

Filed under: Life With Special Needs, compression shirts, weighted vests, senory issues

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