Praying for Parker

Advocates in the making…..

I’ve watched lately as my older kids have taken a stand on their friend’s use of the ‘r’ word in everyday life. I’ve watched as some of their friends have defended their right to throw the word ‘retard’ around...

Published Tue, Jul 06 2010 9:36 PM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, down syndrome, Special Needs, People I Love, intellectual disabilities

Another Nurse Bites The Dust

We don’t get night nursing every night. And it isn’t unusual for a night nurse not to show. Or to say she came by and knocked and knocked and even left a message on the phone. Except nobody heard her knock nor the phone ring and no messages...

Published Sun, Jun 13 2010 9:29 PM by Praying For Parker

Filed under: down syndrome, Special Needs, I'm The Mama: Hear Me Roar!, home health care, night nursing

Homemade Breadsticks: a MUST TRY recipe!

This isn’t my original recipe. I pulled it off the internet a while ago. I wish I could remember from where, because then I would give credit where credit is due! When Reed was in college, he worked at the original Pizza Factory in Cedar City. As...

Published Mon, Nov 15 2010 7:59 AM by Praying For Parker

Filed under: A Day In Our Life, Cheap and Easy, Totally Worth The Calories, homemade breadsticks, homemade pizza dough, Pizza Factory Breadsticks

Down on Parker’s Farm….

We hung out at my parent’s house on Memorial Day. I love hanging out my parent’s house. The company, the food, the whole day….simply wonderful. My parents own almost 6 acres out in the boonies. This is the view from their back deck....

Published Thu, Jun 03 2010 9:13 AM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, farm life, Memorial Day, goats, chickens

I’ll share mine if you’ll share yours…

My natural instincts are to rush, cram, and just get through the dealings of my day. But one thing I’ve learned about being Mom to a medically fragile child with special needs, is that slower is often better. Especially after the week from hell...

Published Thu, Mar 25 2010 9:33 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Special Needs, simple living

Sometimes I’m Afraid

If you were to ask me whether or not Parker has made my marriage stronger or more stressful, I’d have to hesitate before I answered you. Not because I don’t know the answer, but because I’m not sure how you would react to it. If I told...

Published Mon, Mar 29 2010 7:28 AM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, I'm The Mama: Hear Me Roar!, acceptance, trust

And The Voice4u Winner Is……..

Heather! woot! Winner chosen by random.org Heather, email me at hods 5 mom (at) aol (dot) com! Read More...

Published Fri, Feb 05 2010 8:09 AM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Voice4u

What Brave Heroes Are Made Of

Our appointment was for 11:00 a.m. We arrived much earlier due to Reed’s obsessive need to always arrive some place early. At 12:00 we still haven’t been called back. While in the waiting room we gave Parker a bolus feed. As we were finishing...

Published Sun, Feb 28 2010 7:12 PM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, down syndrome, Special Needs, FEES, aspiration

Frugality And Using Dehydrated Foods

I feed our family of 8 for about half of what the Official 2008 USDA Food Plan’s ‘Thrifty Plan’ calls for. Only in my dreams could I spend what they list as their liberal plan. This includes Parker’s totally organic blenderized...

Published Thu, Feb 18 2010 8:53 PM by Praying For Parker

Filed under: frugality, Cheap and Easy, Totally Worth The Calories, feeding a family on less, dehydrated foods

New Kid On The Block

I’d like to introduce you to a friend of mine, Erin Breedlove. Erin blogs at Empowering People and Changing Lives Erin, a college student majoring in Music Therapy, has mild CP. She understands, first hand, the power of an advocate. In Erin’s...

Published Wed, Jan 06 2010 10:28 AM by Praying For Parker

Filed under: Uncategorized, Erin Breedlove, music therapy, cerebral palsy

Technology and the Child with Special Needs

I’ll admit it. When it comes to new technology I’m a little slow on the uptake. My usual game plan includes handing any and all tech issues over to one of my kids and offering up a really pathetic “pretty please?” Ahem. We all...

Published Wed, Jan 13 2010 8:50 AM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Stuff We LOVE!, iPod Touch, Voice4u, augmentative and alternate communication applications

And Suddenly My Heart Is A Little Lighter

We received the results of Parker’s sedated chest CT. The results were “consistent with severe chronic aspiration.” For some parents this would be bad news. For us though it is actually good news. This could be a reason why his cardiologist...

Published Fri, Dec 11 2009 10:44 AM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, Advocacy, down syndrome, I'm The Mama: Hear Me Roar!, Nissen, pulmonary hypertension, chronic lung disease, reflux

How to make a Snowman…..Parker Style

This winter has been one for the record books. Mild temperatures. Not enough snow for a Hero to be pulled around on his beloved sled. But the sick. Oh, have we had the sick. Parker is just now starting to get over his latest sinus infection. I love experiencing...

Published Thu, Mar 08 2012 8:23 AM by Praying For Parker

Filed under: Special Needs Homeschooling, Art Activities, snowman craft

Ignorance: It begins in the medical manuals.

90% of all prenatally diagnosed unborn children with Down syndrome are aborted. NINETY percent. That leaves only 10 percent given the opportunity to take their first breaths. Perhaps it has to do with the way the diagnosis is delivered. Misinformation...

Published Mon, Apr 09 2012 9:44 AM by Praying For Parker

Filed under: Advocacy, down syndrome, Special Needs, Life With Special Needs, T21

An unexpected revelation on my kid’s extra chromosome.

It came across my FB stream via my friend Michelle. I’ve always known that language shapes perception. That is why I fight so hard against the use of the r-word. But this, this never even made my radar. Maybe it’s because I don’t focus...

Published Wed, Mar 28 2012 5:12 PM by Praying For Parker

Filed under: Advocacy, World Down Syndrome Day

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