Praying for Parker

Glowing in the Dark

Last night, after talking to Parker’s PCP, she asked me to take him in for another lung x-ray. Ready and waiting for that x-ray. Notice that as usual, Parker has taken off his left shoe only. Totally ignore the fact that he has his oxygen tubing...

Published Wed, Aug 17 2011 2:45 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, right heart cath, ear infections, cuffed trachs

September’s Sensory Tub

There’s a lot of learning that can go on in a sensory tub. Unfortunately, many teachers see sensory tubs as only a preschool/kindergarten activity. You many remember my post on making your own Sensory Tubs on the Cheap. Sensory tables don’t...

Published Thu, Sep 22 2011 8:42 AM by Praying For Parker

Filed under: Special Needs Homeschooling, special needs homeschooling, sensory tables, Sensory Tubs

Buying Artwork at Yard Sales

I love yard sales. I keep a list all year long of items to look for during the next yard sale season. This summer my list included artwork for my walls. I scored and scored big. woot! Most of the 5 items I purchased I only needed to clean up some. But...

Published Sun, Oct 23 2011 4:52 PM by Praying For Parker

Filed under: frugal living, yard sales, thrifting, spray painting picture mats, cheap artwork, decorating frugally

And the WINNER of the AbleNet Switch Adapted Toy is……

I’ve hosted a LOT of giveaways. NONE of them have ever been as hard as this one was. Why? Because with this one I can see the NEED. Parents wanting to provide a way to engage their child and bring a smile to the face of someone they love. I’ve...

Published Thu, Nov 17 2011 4:05 PM by Praying For Parker

Filed under: down syndrome, Special Needs, ablenet, Life With Special Needs, switch adaptive toys

Where the big Happy Birthday post SHOULD be….

Parker hardly ever spikes a fever. But he sure did last night. 102 before the Moltrin finally kicked in….which was right about the time we had to crank his oxygen concentrator up to 6 liters per hours. That’s 3 times more than usual. ...

Published Sat, Nov 19 2011 7:26 PM by Praying For Parker

Filed under: Life With Special Needs, Hospital Frequent Flyer, 7th birthday, aspiration pnuemonia

Thank You

Reed called me a few hours ago and said that the docs up at Primary’s thought Parker could go ahead and come home. So Rigel and I drove up to PCMC and brought them home. Home. Parker is still one very sick kid. But now he is healthy enough to be...

Published Sun, Mar 21 2010 5:43 PM by Praying For Parker

Filed under: Fantabulous-ness, down syndrome, rsv, pneumonia

Sometimes I’m Afraid

If you were to ask me whether or not Parker has made my marriage stronger or more stressful, I’d have to hesitate before I answered you. Not because I don’t know the answer, but because I’m not sure how you would react to it. If I told...

Published Mon, Mar 29 2010 7:28 AM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, I'm The Mama: Hear Me Roar!, acceptance, trust

The Fight of Alex Fitzgerald

I lived in Turkey for 3 years while I was growing up. Not on a military base, mind you, but in an apartment building where most of our neighbors were Turks. Living on the economy in Turkey is much different than living anywhere in the US. Not that I’ve...

Published Wed, Apr 07 2010 8:33 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, A Day In Our Life, Advocacy, fundraising, alex fitzgerald, t-mobile, health care

What twenty bucks and a ton of elbow grease will get ya…

Remember THIS post? The one where I share how we are trying to open up enough space in Parker’s safe room so we can fit a twin sized bed in? Cause the whole mattress on the floor thing does not a good night’s sleep make. After MONTHS of looking...

Published Mon, May 17 2010 5:46 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Cheap and Easy, down syndrome, Special Needs, yard sales, furniture make over

A Provident Pantry: One staple of a frugal life.

Reed e-filed our taxes on Saturday. BP (before Parker) this was a time of great anticipation. Kind of like a Christmas Eve just for Mom and Dad, we entertained visions of fun stuff about to become ours. We felt pretty responsible by putting half into...

Published Sun, Jan 24 2010 8:57 PM by Praying For Parker

Filed under: A Day In Our Life, Cheap and Easy, From Scratch, frugal living, pantry challange, food storage, stockpiling

This….That….. and Whatever

By the time you read this I will most likely be out. of. the. house. Just typing this is causing me to hyperventilate with excitement. To add to the awesome, I received an invitation for our family to be included in Sharon Astyk’s new book, Making...

Published Wed, Jan 27 2010 10:09 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Stuff We LOVE!, From Scratch, Voice4u, sharon astyk, Discount School Supply, making yogurt at home, adapting in place

And The Voice4u Winner Is……..

Heather! woot! Winner chosen by random.org Heather, email me at hods 5 mom (at) aol (dot) com! Read More...

Published Fri, Feb 05 2010 8:09 AM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Voice4u

Not in a Twilight Kind of Way

I went in for some surgery last week. I figured it would take me a few days but that I would be back up and running lickety split. Does anyone even say lickety split anymore? Must be the drugs. Had a couple of things happen that weren’t on the original...

Published Sun, Mar 07 2010 11:41 AM by Praying For Parker

Filed under: A Day In Our Life, surgery, blood transfusion, twilight

Why I would never ‘cure’ my kid with special needs.

Every once in a while I’ll come across a conversation were parents are waxing philosophical about whether or not they would ‘cure’ their child if they could. My answer to this question may raise some eyebrows. (And offend anyone who...

Published Sun, Jan 17 2010 5:12 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, A Day In Our Life, Advocacy, Special Needs, People I Love, advocay, a cure for down syndrome?, what I velieve

Technology and the Child with Special Needs

I’ll admit it. When it comes to new technology I’m a little slow on the uptake. My usual game plan includes handing any and all tech issues over to one of my kids and offering up a really pathetic “pretty please?” Ahem. We all...

Published Wed, Jan 13 2010 8:50 AM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Stuff We LOVE!, iPod Touch, Voice4u, augmentative and alternate communication applications

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