Praying for Parker

Weight Gain and the Child with Special Needs

Parker was almost up to 37 pounds. So very close. The weight gain happy dancing was in full force. Then he got sick. Pneumonia. Pseudomonas. That damn Adenovirus that came with a 12 days of diarreha and zofran just to keep the meds down. Before we we...

Published Sun, Dec 11 2011 6:02 PM by Praying For Parker

Filed under: blenderized diet, Life With Special Needs, Frequent Flyin' ar the PCMC, weight loss

Where I put the Bah in my Humbug.

I’ve come to a major realization this Christmas season. I’m tired. Really, really tired. Being the designated Hodson Family gift purchaser, wrapper, decorator and maid has brought out the real Scrooge in me. I’ve lost that Holiday feeling...

Published Thu, Dec 15 2011 4:46 PM by Praying For Parker

Filed under: Christmas, Life With Special Needs

There’s No Such Thing as a Defective Child

It came across my Facebook stream. The sadness. The hurt. The unbelievable-ness of it all. An almost Mother. A pre-natal diagnosis. The decision to abort already made. Because this child, the same child that yesterday held hopes and dreams and...

Published Sun, Dec 18 2011 4:17 PM by Praying For Parker

Filed under: Advocacy, choose life

Gluten Free Joy With Udi’s Gluten Free Foods!

Did you know that many people with Down syndrome also have a secondary diagnosis of celiac disease? True story. I remember when a friend child was diagnosed with celiac disease and we searched high and low for anything…….anything……...

Published Tue, Dec 27 2011 10:12 AM by Praying For Parker

Filed under: Life With Special Needs, Udi's Gluten free food

The Most Wonderful Time of the Year…

Come on. You know you feel the same way. The Johnny’s catalog comes and automatically it’s Spring. Even if it’s really only the beginning of January. What are you planting this year? Read More...

Published Mon, Jan 02 2012 12:12 PM by Praying For Parker

Filed under: Victory Garden, growing your own food, gardens

Dear Target, I love you.

I get it. Brands may not be sure how to reach out to the special needs community. They may be afraid unintentionally stumbling, or engaging in a verbal misstep. A lot of people are. Some kids have extra chromosomes. Some kids are missing a bit of one……or...

Published Mon, Jan 02 2012 10:09 PM by Praying For Parker

Filed under: Advocacy, special needs models, Target

A Literature Based Learning Activity: The Story of Ferdinand

“They called him Ferdinand the Fierce and all the Banderilleros were afraid of him and the Picadores were afraid of him and the Matador was scared stiff.” from The Story of Ferdinand by Munro Leaf The Story of Ferdinand is based on a very...

Published Tue, Jan 03 2012 9:04 PM by Praying For Parker

Filed under: Reading Activities, Art Activities, Ferdinand, FIAR

Sometimes it’s okay to ask for less.

Reed and I aren’t great at answering the phone. If there isn’t a kid around to answer it for us we’ll often just pretend we don’t hear it ringing, unless we are pretty much sitting right on top of it. Guess where I was sitting...

Published Thu, Jan 05 2012 9:05 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, down syndrome, Family and Friends, visiting teaching

Utah’s Representative Holly Richardson Resigned Today

Former Representative Richardson resigned today in order to work work full time on former Senator Dan Liljenquist’s bid against Senator Orin Hatch’s congressional seat. That makes not one, but two desperately needed, former level headed legislators...

Published Fri, Jan 06 2012 12:20 PM by Praying For Parker

Filed under: Life With Special Needs

Connor Boyack and the life of my son.

Many times I’ve been tempted to write the Utah tourism association and explain that they should change their slogan from ‘Greatest Snow on Earth’ to ‘As long as it’s YOUR kid that has to die then it’s all good.’...

Published Sun, Jan 08 2012 8:56 PM by Praying For Parker

Filed under: Advocacy, Special Needs, Life With Special Needs, Politics of Special Needs, connor boyack, jerks in general, social safety nets

Just the way you are…..

And the sick came back.

Pneumonia. Adenovirus. Aspiration Issues. Finally healthy. Then two week later, sick again. Stomach flu sick. Diaper change sick. Wide open windows sick. Contemplating gas mask sick. Can we keep him hydrated at home sick. Time to...

Published Tue, Jan 10 2012 8:37 PM by Praying For Parker

Filed under: down syndrome, Special Needs, Life With Special Needs, stomach flu

She said yes…..

Save the date: May 5th, 2012 Mt. Timpanogos Temple Two Down. Several more to go. (Bailey and my Mom) Read More...

Published Wed, Jan 11 2012 12:04 PM by Praying For Parker

Filed under: Family and Friends, Brant's engaged

Looking for a Nursing Company……Again.

Parker’s nurse called off today. Again. Which in and of it’s self is no big deal, I guess. Nurses get sick. That is why there are on call nurses. Ever heard of ‘em? The rate that it happens at this agency has become a major issue in...

Published Thu, Jan 12 2012 10:57 AM by Praying For Parker

Filed under: Advocacy, medically fragile kids, home nursing

Learning how to spell your name…

I should have named him Bill. Not only less letters, but easier to write too. But we’re working on it. Let me show you how. I printed Parker’s name in watercolor chalks. Then Parker took a watercolor brush and ‘painted’ over his...

Published Thu, Jan 12 2012 6:54 PM by Praying For Parker

Filed under: Special Needs Homeschooling, home school, Reading Activities, name spelling activities, name writing activities, sensory activities

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