Praying for Parker

A Sensory Rich Christmas Tree Craft

The Christmas Tree Farm, by Ann Purmell, is one of the new holiday reads here at Praying For Parker. And with a great new book, comes some great new sensory rich Christmas Tree crafts. The supply list is simple: green felt, a star, fabric glue, and these...

Published Tue, Dec 11 2012 11:27 AM by Praying For Parker

Filed under: Special Needs Homeschooling, Reading Activities, Art Activities, FIAR, Christmas Tree Farm, Christmas Crafts

Santa Claus and my kid with special needs.

Does your child with special needs understand the concept of Santa Claus? It’s a question that has been weighing on me. When it’s your job to bring the world to a medically fragile kid with special needs, introducing Santa Claus can be hard...

Published Wed, Dec 12 2012 8:23 AM by Praying For Parker

Filed under: Life With Special Needs, Magic of Christmas, Santa Claus

Make it Do or Do Without.

The final test in frugality for many is the ability to make it do, or do without. When first beginning a frugal lifestyle, people tend to look at how much they save as their benchmark of success. As time goes on the reality hits that even at 90% off,...

Published Tue, Jan 29 2013 6:59 AM by Praying For Parker

Filed under: From Scratch, frugal living, simple living, thrifting, Coupons, a debt free lifestyle, Re-Purposing

Tracking Health Patterns

I have the medical binder for Parker, complete with pages of history, meds, vent settings and the like. Now I’m taking notes on a daily basis in my quest to keep Parker healthy. Tracking health patterns can help prevent problems before they get...

Published Fri, Jan 11 2013 8:00 AM by Praying For Parker

Filed under: Life With Special Needs, Frequent Flyin' ar the PCMC, medical binders, healthcare, tracking health patterns, managing health care

International Day of Acceptance

Acceptance. Such a beautiful word. A more beautiful reality. An International Day of Acceptance. Imagine. A world where everyone chose to embrace diversity. 3E Love is a social entrepreneurial experiment to change the perception of disability....

Published Mon, Jan 14 2013 7:54 AM by Praying For Parker

Filed under: Advocacy, Stuff We LOVE!, acceptance, Life With Special Needs, 3E Love, Anne Hopkins, International Day of Acceptance

The Little Boy Who Changed Christmas

Reed and I were just talking about how our celebration of Christmas has changed. It was after Parker joined our family that we began to apply the idea of less is more to our spending this time of year. It was different buying less and less. We made the...

Published Mon, Dec 17 2012 9:02 PM by Praying For Parker

Filed under: Life With Special Needs, true meaning of Christmas, making Christmas memories

Lies Parents of Children with Special Needs Tell.

I’m normally a very honest person. Honest to a fault to tell you the truth. I offer up way more information that I really need to, just because it makes me feel……well, honest. Growing up, my Dad had this bizarre 6th sense where he could...

Published Mon, Dec 03 2012 6:43 AM by Praying For Parker

Filed under: Special Needs, Life With Special Needs, Frequent Flyin' ar the PCMC

One income living with a medically fragile child with special needs.

I’ve always been a stay at home Mom who is well versed in one income living. There have been times when I’ve worked at home to bring in extra money. With Parker’s intense needs, trying to work while keeping him alive just isn’t...

Published Sun, May 19 2013 6:59 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, down syndrome, frugal living, simple living, Life With Special Needs, special needs parenting, living on one income

Two Ingredient Playdough Recipe

I love me a quick and easy playdough recipe. This one meets all the requirements. Plus, it is simple to put together AND it’s cheap. How’s that for a perfect summer time activity? You’ll need: 1 can regular shaving cream. (not the gel...

Published Mon, May 20 2013 7:48 PM by Praying For Parker

Filed under: Special Needs Homeschooling, Art Activities, sensory activities, play dough, Meeting a kid's sensory needs., playdough, fine motor skills, play dough recipe

Living by the pulse oximeter

Several times a day and all night long Parker is hooked up to his pulse oximeter. This lets us know how high his oxygen concentrations are (needs to be over 95%), and where his heart rate is at. We’ve learned that by keeping a close eye on Parker’s...

Published Tue, Jun 04 2013 12:46 PM by Praying For Parker

Filed under: Life With Special Needs, Frequent Flyin' ar the PCMC, Hospital Frequent Flyer, pulse ox, Masimo, oxygen saturations, heart rate

Special Needs Mom Burnout

As I sit here typing Parker is walking around in mismatched jammies reversing one just cleaned up mess after another. Tired doesn’t begin to express how I’m feeling, as I attempt to plead with the universe to divert something exciting my way...

Published Thu, Apr 04 2013 9:14 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Life With Special Needs

Cake Mix Play Dough Recipe

I’m always looking for new sensory experiences for Parker. It has taken years, but the kid finally appreciates a good play dough recipe. Our latest adventure? A Cake Mix Play Dough Recipe. I only had plain yellow cake mixes downstairs, however they...

Published Wed, May 01 2013 7:59 PM by Praying For Parker

Filed under: Special Needs Homeschooling, alphabet activities, Art Activities, Meeting a kid's sensory needs., tactile activities, oogey gooey lady, cake mix play dough recipe, playdough recipe, special needs home schooling

Prom and a Prayer

It seems like just yesterday that this young man was just a kid. Deep down inside I think he still is. But shouldn’t there always be a little bit of a kid in all of us? Friday was Prom. He and the beautiful young lady next to him had a fantastic...

Published Sat, May 04 2013 5:03 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, medically fragile children, prayers, Life With Special Needs, special needs parenting, Prom 2013

Global Warming and Salsa Making

We are scrambling to get our salsa factory up and running. We don’t usually begin salsa making until the end of August or the beginning of September. I’m not sure if it is due to the fact that Utah just had the hottest July on record, or our...

Published Tue, Aug 06 2013 6:48 PM by Praying For Parker

Filed under: frugal living, Recipes, home canning, Victory Garden, Backyard Gardens, salsa recipe, salsa making, global warming

Now I Can Foundation

We had a HUGE yard sale. We received donations from family and friends. We sent up prayers and then more prayers after that. Today we are celebrating Parker’s first week at the Now I Can Foundation. Now I Can is a place of hope and dreams and a...

Published Wed, Sep 25 2013 7:50 AM by Praying For Parker

Filed under: down syndrome, miracles, Life With Special Needs, hope, special needs parenting, intense physical therapy

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