Praying for Parker

Where the big Happy Birthday post SHOULD be….

Parker hardly ever spikes a fever. But he sure did last night. 102 before the Moltrin finally kicked in….which was right about the time we had to crank his oxygen concentrator up to 6 liters per hours. That’s 3 times more than usual. ...

Published Sat, Nov 19 2011 7:26 PM by Praying For Parker

Filed under: Life With Special Needs, Hospital Frequent Flyer, 7th birthday, aspiration pnuemonia

Pneumonia Update: Sunday

The Update: So far, so good…….we’re managing at home. Fever is still spiking. The Moltrin helps some. The Tylenol does nothing. LOTS of sleeping. Except between the hours of 3 a.m. and 5 a.m. sigh. Between this and the tummy issues Parker’s...

Published Sun, Nov 20 2011 1:37 PM by Praying For Parker

Filed under: aspiration pneumonia, Life With Special Needs

A Homemade Pizza Recipe

Pizza is a staple around these joints. I’m always looking for new pizza dough recipes and ways to make my pizza taste like the take out variety. Or better yet, like the stuff you pay primo prices for in the restaurants. Ah…….the sweet...

Published Sun, Nov 20 2011 9:23 PM by Praying For Parker

Filed under: From Scratch, frugal living, homemade pitas, pizza dough recipe, homemade pizza

An early morning ambulance ride.

My morning began around 2:45 a.m. It’s amazing how seeing your kid in respiratory distress can wake a girl right up. Kinda like a shot of Red Bull straight into your veins. When we couldn’t maintain Parker’s O2 levels on the highest...

Published Tue, Nov 22 2011 3:21 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, Life With Special Needs, Hospital Frequent Flyer, asperation pneumonia, adenovirus

When Pseudomonas comes to visit.

For about 30 seconds yesterday Reed and I held on to the hope of being able to have Parker home for Thanksgiving. Alas, reality reared it’s busybody head and we resigned ourselves to Parker spending Thanksgiving in the hospital for the 4th time...

Published Wed, Nov 23 2011 1:28 PM by Praying For Parker

Filed under: Hospital Frequent Flyer, Pseudomonas

You KNOW you’re a Special Needs Mama when…

We are home from the hospital. Brave Hero is still sick, but we are (knock on wood) managing it all at home. I’ll update on Parker a little bit later today. But first……. Recently my Twitter stream was overcome with truths...

Published Sun, Nov 27 2011 8:12 PM by Praying For Parker

Filed under: Advocacy, Life With Special Needs, parents of kids with special needs

Let’s hope we’re not starting a trend here…..

My poor kid. First he’s too sick to celebrate his birthday, and then he’s too sick to be home for Thanksgiving. I hope we’re not starting a trend here. Birthday cards from some of Parker’s favorite buddies! We’ve had years...

Published Mon, Nov 28 2011 9:37 PM by Praying For Parker

Filed under: Family and Friends, Hospital Frequent Flyer, medically fragile kids with down syndrome

Why you should advertise on Praying For Parker

One of the perks of having your own blog……and sweet readers old and new…..is that you are given the opportunity to advertise on that blog. The revenue of these ads helps to provide funds to purchase out of pocket supplies, like the g...

Published Tue, Nov 29 2011 6:10 PM by Praying For Parker

Filed under: Life With Special Needs, advertising on praying for parker

A December Sensory Box

I’ve posted before on how to color rice and noodles. It’s a great way to bring color into a child’s sensory experiences. For Parker’s sensory box in December I’m going to be coloring his rice using a different medium. I’ll...

Published Tue, Nov 29 2011 8:40 PM by Praying For Parker

Filed under: Special Needs Homeschooling, sensory boxes, Sensory Tubs

It’s a Wonderful Journey

It’s been hard. At times it has hurt. It’s been scary. It’s been bittersweet. At the same time the life that the birth of our youngest son has introduced our family to has become the most remarkable of journeys. Mothering Parker has...

Published Fri, Dec 02 2011 8:43 AM by Praying For Parker

Filed under: down syndrome, Life With Special Needs

‘Cause Parker Loves Books…..we need your help!

I spent many of my growing up years living in countries that had no *gasp* American television. When we lived in Turkey my Dad always had the television on ……he liked the different test patterns we received from Cyprus. Hey, some of us have...

Published Sun, Dec 04 2011 2:29 PM by Praying For Parker

Filed under: Stuff We LOVE!, Family and Friends, Desert Book Christmas Photo contest, literature basked learning

The Freedom To Tell It Like It Is: Special Needs Style

I once heard of a woman, who after years of taking care of her disabled sister, made the following confession: “I hate having to cut her toenails. ” You could have heard a pin drop in the room after that simple sentence had been uttered. Because...

Published Mon, Dec 05 2011 8:49 AM by Praying For Parker

Filed under: The HIGH Cost of Health Care, down syndrome, Life With Special Needs, Frequent Flyin' ar the PCMC, special needs caregivers, medically fragile children with special needs

How we are teaching Parker to read.

The program I’m sharing today isn’t my original idea. It was taught to me by a spec ed teacher. I have seen it show up in various parts of other reading programs. I’ve taken the wheel, and instead of reinventing it, honed it to meet...

Published Mon, Dec 05 2011 7:59 PM by Praying For Parker

Filed under: Special Needs Homeschooling, special needs home school, homeschool, Reading Activities, learning to read

Post Traumatic Stress Disorder and the Special Needs Parent

I’m a huge believer that many special needs parents suffer from Post Traumatic Stress Disorder. My beliefs are backed up by both my therapist AND my GP. (Did I just admit to working with a therapist? What can I say? There are somethings a girl can’t...

Published Wed, Dec 07 2011 9:30 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, Life With Special Needs, post traumatic stress disorder, ptsd

A Santa Craft!

I’m all about the texture crafts to help meet Parker’s sensory seeking nature. There some though that I tend to shy away from because of the trach. Like anything with cotton balls. I can just see me trying to explain to Parker’s surgeon...

Published Fri, Dec 09 2011 1:54 PM by Praying For Parker

Filed under: Special Needs Homeschooling, homeschooling, Santa crafts, Art, Art Activities

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