Praying for Parker

Lunch with Utah Legislators and YOU’RE invited!

Parents of medically fragile kids with special needs have been invited to have lunch with Senator Dan and Representative Holly Richardson after the Appropriations sub-committee meeting on July 21 in American Fork. What: Lunch with a couple of Utah...

Published Fri, Jul 08 2011 9:32 PM by Praying For Parker

Filed under: A Day In Our Life, Utah Legislature, Utah Legislators, Senator Dan Liljenquist, Mediciaid, Representative Holly Richardson

Things I’ve learned being a special needs Mama.

Becoming the parent of a medically fragile child with special needs sets you on a journey of discovery. You unearth everything you possibly can about your child’s diagnosis. You work to establish the best doctors and therapists for your child. Eventually...

Published Thu, Jun 09 2011 9:39 AM by Praying For Parker

Filed under: A Day In Our Life

Finding common ground between your kid and mine.

I took Parker for a walk yesterday. Gone are the days when this kid can survive indoors all the time. Like his older brothers, Parker wants OUT. Like his other siblings, the doorbell rings and Parker makes a mad dash for the door. Okay, as mad of a dash...

Published Fri, May 20 2011 5:03 PM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, down syndrome, Special Needs, Make A Wish

How to save for a vacation using Savings.com

Everybody’s talking about them. Vacations, that is. If you are like most people I know, vacation planning begins long before summer starts. First you have to come to a family decision about where to go. And how you are going to get there. Then there...

Published Fri, Jun 17 2011 4:30 PM by Praying For Parker

Filed under: Fantabulous-ness, Stuff We LOVE!, travel, savings.com, saving for travel

It takes a bit of patience sometimes….

It started with a yell: Mom! Help! It was the blue eyed girl beseeching me for rescue. Apparently Parker had decided that his big sister had slept long enough. It was time to play….now. It takes a bit of patience to be the big sister sometimes....

Published Mon, Jun 13 2011 6:29 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, down syndrome, Special Needs, People I Love, family life, big sisters, big families

Cheerfully Living on Even Less.

I came home stunned. I do a ‘big’ grocery shopping trip once a month. Then I try to save back a bit of cash to cherry pick the sales for the rest of the month. My big grocery shopping usually happens at Costco where I get the same things each...

Published Mon, Jun 06 2011 7:04 PM by Praying For Parker

Filed under: A Day In Our Life, Garden Goddess, From Scratch, high cost of groceries, frugal grocery shopping, saving money on groceries

She’s going to the Temple……

And she’s going to get married……. Actually, in the LDS faith we believe that Temple marriages are for not only time, but for all eternity. Looking outside, the day is gorgeous. It’s a perfect day to begin an eternity with the love...

Published Thu, May 12 2011 7:22 AM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, People I Love, Families are Forever, Temple Wedding

Mini Balloon Button: G-Tube Request

I won’t deny it. Parker is hard on g-tubes. He’s very active and often this winds up springing a leak in the Mini Button he uses to receive his nutrition through. Usually, with our old supply company they would allow me to order three buttons…...

Published Mon, May 16 2011 10:10 AM by Praying For Parker

Filed under: A Day In Our Life, Mini Balloon Button, Applied Medical Technology

Glowing in the Dark

Last night, after talking to Parker’s PCP, she asked me to take him in for another lung x-ray. Ready and waiting for that x-ray. Notice that as usual, Parker has taken off his left shoe only. Totally ignore the fact that he has his oxygen tubing...

Published Wed, Aug 17 2011 2:45 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, right heart cath, ear infections, cuffed trachs

Faith and a Right Heart Cath

For me, faith is a work in progress. There are some areas of faith that I am exceptionally strong in. These may be the same areas that others struggle in. I often read of Moms, who having reached a certain point, turn the matter over to God, in full faith...

Published Thu, Aug 04 2011 10:43 PM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, down syndrome, pulmonary hypertension, right heart caths, faith

Parker in his favorite Christmas toy

paying loans student extra In places where paying loans student extra noise would be disturbing. hard loans kentucky money commercial Around 80% of hard loans kentucky money commercial population enjoys hard loans kentucky money commercial coverage as...

Published Thu, Feb 23 2006 9:46 PM by Praying for Parker

Filed under: Uncategorized

Trying to calm my fears.

“There comes a time when you have to choose between turning the page and closing the book.” Yesterday I made the choice to close the book. I’ve been in a flux over the agency we’ve been going through for Parker’s nursing...

Published Wed, Oct 12 2011 8:17 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, down syndrome, Life With Special Needs

One tooth lost…..

I’d known that tooth was loose for over a week. The bottom tooth, front and left. The exact same tooth all of his siblings lost the very first time. It was different this time though. The big brothers and sisters would wiggle a tooth until it hung...

Published Tue, Oct 18 2011 4:41 PM by Praying For Parker

Filed under: Life With Special Needs, tooth fairy, first loss tooth

Rite of Passage…..

He’s been talking about this for years. It’s been one of those things that I’ve always kinda pushed to the back of my mind. But yesterday the undeniable proof arrived in the mail. Now all he needs to do is earn enough to be able to buy...

Published Sun, Oct 16 2011 11:07 AM by Praying For Parker

Filed under: frugal living

A year’s supply of peace of mind.

I’m still up to my chin in preserving our harvest. Reed just mentioned that maybe we should put up another load of our chunky, hot salsa. Luckily I still have some of the onions and peppers we grew in our garden this season. At the same time I’m...

Published Mon, Sep 12 2011 6:47 PM by Praying For Parker

Filed under: A Day In Our Life, Garden Goddess, From Scratch, food storage, gardening, preserving the harvest, lowering food costs, real food, food prices, putting food by

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