Praying for Parker

Things I’ve learned being a special needs Mama.

Becoming the parent of a medically fragile child with special needs sets you on a journey of discovery. You unearth everything you possibly can about your child’s diagnosis. You work to establish the best doctors and therapists for your child. Eventually...

Published Thu, Jun 09 2011 9:39 AM by Praying For Parker

Filed under: A Day In Our Life

Coping with a diagnosis: Advice for a new Mom

Kendra left this comment on my post: Things I’ve learned from being a special needs Mama. Hi, I stumbled onto this and felt that I could relate to you the most… My daughter Livi just turned 4 weeks and I feel horrible because she doesn’t have any...

Published Sun, Jun 12 2011 8:49 PM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, down syndrome, Special Needs, diagnosis, how to cope with a new diagnosis

It takes a bit of patience sometimes….

It started with a yell: Mom! Help! It was the blue eyed girl beseeching me for rescue. Apparently Parker had decided that his big sister had slept long enough. It was time to play….now. It takes a bit of patience to be the big sister sometimes....

Published Mon, Jun 13 2011 6:29 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, down syndrome, Special Needs, People I Love, family life, big sisters, big families

Because I couldn’t have said it better myself.

The 19 year old blogs. Just like her Mama. She’s also one of Parker’s biggest advocates. I’m going to link you to McCall’s blog today. She’s written a post on ending the r word. And you know what? I couldn’t have said...

Published Wed, Jun 15 2011 8:16 AM by Praying For Parker

Filed under: Advocacy, down syndrome, Special Needs, end the r word

How to save for a vacation using Savings.com

Everybody’s talking about them. Vacations, that is. If you are like most people I know, vacation planning begins long before summer starts. First you have to come to a family decision about where to go. And how you are going to get there. Then there...

Published Fri, Jun 17 2011 4:30 PM by Praying For Parker

Filed under: Fantabulous-ness, Stuff We LOVE!, travel, savings.com, saving for travel

AbleNet Inc.2011 Fall Product Giveaway

Details Enter Sweepstakes Invite Friends About Official Rules Privacy AbleNet 2011 Fall Giveaway Enter Sweepstakes Invite Friends Prize Details Like Us to enter the drawing! Winner will be announced August 8, 2011 AT Prize Package includes: PowerLink...

Published Sun, Jun 19 2011 11:19 AM by Praying For Parker

Filed under: Stuff We LOVE!, ablenet

Outfitting a homeschool room by shopping yard sales.

We took the plunge and created an actual homeschooling room for Parker. There are still things I’d love to be able to stock this fabulous space with. One of them was a light table. My friend over at Teach Preschool came up with a way to make her...

Published Sun, Jun 19 2011 7:53 PM by Praying For Parker

Filed under: Fantabulous-ness, special needs homeschooling, yard sales, homeschool, light boxes

To The Moon and Back

I spent today on the phone. Arguing with insurance companies. And trying to get a new med for Parker worked out while STILL waiting for his Flovent prescription to be pre-authed. Just as the pressure was building Parker’s g-tube failed. Again. I...

Published Mon, Jun 20 2011 7:35 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, People I Love, love of family

Asthma and the medically fragile kid with special needs.

It starts out slowly. Instead of staying within it’s normal parameters it begins to cycle. From the 60′s to the 70′s. That’s all it takes to get my attention. Parker’s sleeping heart rate always foreshadows an upcoming concern...

Published Wed, Jun 22 2011 9:01 AM by Praying For Parker

Filed under: The HIGH Cost of Health Care, A Day In Our Life, down syndrome, Special Needs, chronic lung disease, asthma, brave hero

Why I hate cardiology appointments.

Yesterday was the day. One of the 4 days a year I dread the most. Parker’s cardiology appointment. Don’t get me wrong. We love our cardiologist. We just hate what he has to say. Then there is the pesky fact that I often find myself trying...

Published Tue, Jun 28 2011 10:31 AM by Praying For Parker

Filed under: A Day In Our Life, chronic lung disease, atelectasis, asthma, right heart caths, oreck air purifiers, peri bronchial thickening

Shinning up my countenance

The other day I was talking with a neighbor about a mutual friend. This neighbor made the comment that our mutual friend had totally turned around her countenance after many of the worries she had been facing were beginning to work themselves out. My...

Published Wed, Jun 29 2011 2:30 PM by Praying For Parker

Filed under: A Day In Our Life, Special Needs, medically fragile children, faith, right heart cath, happiness

Lunch with Utah Legislators and YOU’RE invited!

Parents of medically fragile kids with special needs have been invited to have lunch with Senator Dan and Representative Holly Richardson after the Appropriations sub-committee meeting on July 21 in American Fork. What: Lunch with a couple of Utah...

Published Fri, Jul 08 2011 9:32 PM by Praying For Parker

Filed under: A Day In Our Life, Utah Legislature, Utah Legislators, Senator Dan Liljenquist, Mediciaid, Representative Holly Richardson

Summer…..so far.

Summer time at the Hodson House has been full of doctor appointments. It’s much better to take Parker up to Primary’s in the summer rather than RSV season. Lately it seems as though there is always some kind of scary going around up there...

Published Wed, Jul 13 2011 9:19 AM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, asthma, right heart caths, FEES study, RTC

Hope

Trying to do a lot of this today. Tomorrow I turn 50. I’m not quite sure how that happened. I’m not quite sure how much I like it. But I guess it is better than the alternative, eh? The great thing about black and white photos is that it hides...

Published Thu, Jul 14 2011 8:35 PM by Praying For Parker

Filed under: A Day In Our Life

This just in…..

Parker’s heart cath has been changed from July 26th to some time in August. The anesthesiologist I requested won’t be available until August. I wanted the best in on Parker’s next heart cath, so if that means waiting a bit longer, so...

Published Fri, Jul 15 2011 10:21 AM by Praying For Parker

Filed under: A Day In Our Life

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Things I’ve learned being a special needs Mama.

Coping with a diagnosis: Advice for a new Mom

It takes a bit of patience sometimes….

Because I couldn’t have said it better myself.

How to save for a vacation using Savings.com

AbleNet Inc.2011 Fall Product Giveaway

Outfitting a homeschool room by shopping yard sales.

To The Moon and Back

Asthma and the medically fragile kid with special needs.

Why I hate cardiology appointments.

Shinning up my countenance

Lunch with Utah Legislators and YOU’RE invited!

Summer…..so far.

Hope

This just in…..