Praying for Parker

Halloween Counting and Math Activities!

Okay. Before you go any further, click here to enter our latest giveaway. Go ahead. We’ll wait. It will only take a minute! ______________________ One of my yard sale scores this summer was a box of little bats that you stick in the freezer to freeze...

Published Mon, Oct 25 2010 9:08 PM by Praying For Parker

Filed under: A Day In Our Life, Special Needs Homeschooling, homeschooling, special needs home school, Halloween

Amish White Bread: A Recipe

Am I the only one floored at the price of bread these days? The ‘on sale’ price of my kid’s favorite sandwich bread is $2.00 a loaf. It isn’t unusual for our family to chomp their way through 8 loaves a week. $16.00 a week for...

Published Thu, Nov 04 2010 7:50 AM by Praying For Parker

Filed under: Cheap and Easy, Totally Worth The Calories, amish white bread, bread making, how to make bread

What REALLY Matters

Today (Wednesday) at 10:20 a.m. MST, Parker is scheduled for both an ECHO and an EKG. There is a lot riding on these results and I’m a bit of a worried mess. Any and all prayers offered up in Parker’s behalf for this ECHO and EKG to reflect...

Published Tue, Oct 19 2010 9:45 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs

Tender Mercies

Update: THANK YOU for the love and prayers. I talked with Reed about an hour ago. They’ve got Parker up on the trach pod at Primary Children’s Hospital. Parker’s needing his vent 24/7 in order to keep his sats at a decent level. The...

Published Thu, Mar 18 2010 8:26 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, The HIGH Cost of Health Care, down syndrome, Special Needs, Primary Childrens Hospital, medically fragile children, rsv

A Turn for the Worse

I just spoke with Reed. Parker’s temp has spiked drastically. Parker isn’t able to maintain his oxygen levels even with the support of his vent. I’m pretty sure they will be sending him to the PICU. I’m for any and all to circle...

Published Sat, Mar 20 2010 9:37 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, rsv

The Worth of the Life of One Brave Hero

Today’s x-ray did indeed show signs of pneumonia. So IV antibiotics were started. Several hours later and the Brave Hero has perked up. And he’s still in his room on the trach pod. No PICU. Which are the sweetest words I’ve heard in...

Published Sat, Mar 20 2010 6:10 PM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, The HIGH Cost of Health Care, Advocacy, down syndrome, I'm The Mama: Hear Me Roar!, rsv, medicaid in Utah, snagis

We made it through the night……

barely. Up at Primary’s they had Parker on an oxygen mixer with about 70% oxygen. At home he’s back to the oxygen concentrator and at about 2:00 a.m. he was up to NINE LITERS. Which, shall we say, is kinda terrifying. The thought of taking...

Published Mon, Mar 22 2010 8:26 AM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, The HIGH Cost of Health Care, A Day In Our Life, Fantabulous-ness, down syndrome, rsv, pnemonia

Masimo SET LNCS Sensors

This is what I’m trying to find at prices less than $400.00 a box of disposables and $250.00 for a long lasting one. *faint* And the battery for this Masimo that we also need runs $375.00. All of this comes out of pocket for us because the unit...

Published Mon, Mar 22 2010 11:48 AM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, The HIGH Cost of Health Care, Masimo SET LNCS Sensors

Have Cape, Will Soar

Parker’s been working on mastering his shapes. We’ve identified. We’ve matched. We’ve traced. Colored and created. Now we are upping our game. We offer Parker two different shapes and ask him to hand us a specific one. This is...

Published Thu, Jan 21 2010 7:45 AM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Advocacy, down syndrome, Special Needs, People I Love, homeschooling

Emergency Preparedness and the Child with Special Needs.

One of my biggest worries is how to take care of my medically fragile son with special needs in case of an emergency. It’s taken awhile, but slowly I’ve been able to do a few things to prepare and plan in case of unexpected events. I have two Skip Hop...

Published Wed, Feb 03 2010 8:49 PM by Praying For Parker

Filed under: A Day In Our Life, shtf, 72 hour kits, emergency prepardedness

Immigrant Families, please move to the head of the Medicaid line.

It’s that time of year. The Utah legislature is in session. In all their glory. As usual, there are those who choose to focus on balancing the budget on the backs of our most vulnerable. Services for the disabled in the state of Utah are a relatively...

Published Wed, Feb 10 2010 9:32 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, A Day In Our Life, Advocacy, I'm The Mama: Hear Me Roar!, Utah Legislature 2010, speical needs services iin Utah, SB 44

Deep Dark Secrets: Special Needs Style

It’s no secret how much I hate the cardiologist appointments that involve echo’s and ekgs for Parker. I’ve also been very open about the handfuls of nerve meds necessary to get this Mama through a right heart cath. It’s a very...

Published Tue, Feb 23 2010 9:09 PM by Praying For Parker

Filed under: A Day In Our Life, Special Needs, blenderized diet, People I Love, weight gain, bolus feeding

Not in a Twilight Kind of Way

I went in for some surgery last week. I figured it would take me a few days but that I would be back up and running lickety split. Does anyone even say lickety split anymore? Must be the drugs. Had a couple of things happen that weren’t on the original...

Published Sun, Mar 07 2010 11:41 AM by Praying For Parker

Filed under: A Day In Our Life, surgery, blood transfusion, twilight

Save The Date(s)!

May 28th and 29th! I’ll be Right here: Okay. I know what you are thinking……that they must have been exceptionally desperate to invite HER to be on a panel at a blogging conference. But, nope. I mean just look at the awesome that will...

Published Wed, Jan 06 2010 7:58 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Advocacy, I'm The Mama: Hear Me Roar!, casual blogger conference

Update From Room 3071

Surgery went well. Parker was voted the recipient of Today’s Blue Plate Special here at PCMC. That’s cause he was worked on by three different doctors. He’s got new holes from the top of his trach stoma to the bottom of his belly. Life...

Published Thu, Dec 17 2009 8:41 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, A Day In Our Life, Primary Childrens Hospital, surgery, Nissen

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