Praying for Parker

Friendships and this special needs Mama.

Friendships and this special needs Mama. When I first became a special needs mom, one of my friends, one that I was sure I would grow old with, simply wasn’t able to understand why I couldn’t just ‘let Parker go.’ In her defense...

Published Tue, Oct 29 2013 10:53 PM by Praying For Parker

Filed under: Life With Special Needs, Family and Friends, special needs parenting, friendship, special needs friendship

September Sight Words

Let’s not talk about how it is almost the end of September. It’s been a month, but I finally put together Parker’s September Sight Words. Parker’s sight words don’t fall under the same definition of typical site words. Instead...

Published Fri, Sep 20 2013 9:06 AM by Praying For Parker

Filed under: Special Needs Homeschooling, Reading Activities, sight words, Sight Word Flash Cards, Sight Word Games

Inversion

When I look out any of my windows I see what looks like fog, but is actually smog….winters in Utah often mean weather inversions. A weather inversion basically means that there is a ‘lid’ over the mountains that refuses to let anything...

Published Tue, Jan 08 2013 9:27 AM by Praying For Parker

Filed under: chronic lung disease, Life With Special Needs, Hospital Frequent Flyer, Judy Sierra, Born to Read, weather inversion

Stove Popped Popcorn: A Tutorial

We eat a lot of popcorn around this joint. It’s cheap. It’s healthy (if you don’t drown it in butter….). It’s quick and easy to make. Yup, stove popped popcorn You would be surprised how many people, when they see a big pan...

Published Thu, Jan 17 2013 6:26 PM by Praying For Parker

Filed under: Stuff We LOVE!, frugal living, Recipes, stove popped popcorn, whole grains, healthy treats

Learning Shape Words

Parker knows his colors. He knows his shapes. What we’re working on now is learning shape words. I decided to put together an activity that would review shapes and colors with learning shape words. Nothing fancy here. Just some foam...

Published Wed, Jan 23 2013 7:16 PM by Praying For Parker

Filed under: Special Needs Homeschooling, Life With Special Needs, Math Activities, homeschooling activities, shape word activities

What you don’t know can sometimes serve you well.

They rushed to get Parker’s genetic testing back to us before the long Thanksgiving weekend. Even though I repeatedly told them that I already knew Parker had Down syndrome, they felt that it was important we had it on paper signed by someone at...

Published Sun, Jan 27 2013 8:00 PM by Praying For Parker

Filed under: Advocacy, Special Needs, Life With Special Needs, Trisomy 21, The potential of a child with Down syndrome.

Sleep Study Nightmares

In the mood for some good old fashioned misery? Then a Sleep Study is just the ticket! Packed with frustration, pleadings, and prayers that all the funky stuff you’ve witnessed while your kid sleeps shows up during the night someone is actually...

Published Sun, Jan 06 2013 5:11 PM by Praying For Parker

Filed under: Primary Childrens Hospital, Life With Special Needs, Frequent Flyin' ar the PCMC, sleep study, obstructive sleep apnea, sleep apnea

A Sensory Rich Christmas Tree Craft and the Christmas Tree Farm

The Christmas Tree Farm, by Ann Purmell, is one of the new holiday reads here at Praying For Parker. And with a great new book, comes some great new sensory rich Christmas Tree crafts. The supply list is simple: green felt, a star, fabric glue, and these...

Published Tue, Dec 11 2012 11:27 AM by Praying For Parker

Filed under: Special Needs Homeschooling, Reading Activities, Art Activities, FIAR, Christmas Tree Farm, Christmas Crafts

G-tube Feeding

When a kid aspirates to the point that Parker does, they put a hole in their belly, a button in the whole, and teach you how to put their food directly in their stomachs. Other wise known as g-tube feeding. It’s not as bad as it sounds. I know I’m...

Published Tue, Mar 05 2013 10:50 AM by Praying For Parker

Filed under: blenderized diet, aspiration, I love a tubie, g-tube, bolus feeds, tube feeds

When your child can’t communicate.

I just got word that we’ll be losing another speech therapist. I’ve been really struggling with Parker’s lack of progress in communicating, and finding this out just added to my internal angst. What do you do when your child can’t...

Published Wed, Mar 06 2013 5:16 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Signing Time, AAC, speech therapy, Proloquo2GO, tap to talk, Life With Special Needs, non-verbal kids, talk tools

Yard Sale Scores

It’s finally turned yard sale season around here. I have my list and I’ve been out a couple of times. I’m being very picky. Just because something is a great deal doesn’t mean you uh…..I….. need it. Now on to this week’s...

Published Mon, May 27 2013 6:19 PM by Praying For Parker

Filed under: frugal living, thrifting, Re-Purposing, thrifty living, yard sale prices, yard sale tips

The VIPs

It was the first thing my Mom said to me when she walked through the door Thursday evening. This, she said. Read it. Now. It was an article in the Daily Herald, our local Utah County newspaper. The VIPs: Sports league for special needs children wraps...

Published Sun, Jul 07 2013 10:37 AM by Praying For Parker

Filed under: Therapy, Life With Special Needs, special needs parenting, bankruptcy, yard sale fund raiser

Brothers

These two are so very close. Two peas, one pod. Parker blows me off without a second thought in order to make his way to Rigel. It won’t be long until Rigel leaves on his mission to Seattle. I know it is going to be hard for Parker to not have this...

Published Fri, Jun 07 2013 9:17 AM by Praying For Parker

Filed under: Advocacy, down syndrome, brothers, Life With Special Needs, Family and Friends, more alike than different

Yard Sale Prices

I hit a few yard sales Saturday as I ran a few errands. I wasn’t able to get out until about noon, but often times hitting the yard sales later makes for better deals as people are ready to pack up and just want to get rid of what hasn’t sold...

Published Mon, Jun 10 2013 1:38 PM by Praying For Parker

Filed under: frugal living, thrifting, yard sale prices

Believe

We’ve had to drag out the big guns. The output of Parker’s nose has become dire and wiping simply isn’t going to take care of it. We attach this seemingly innocent little piece of plastic to Parker’s regular suction machine that...

Published Sun, Apr 28 2013 8:20 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, pulmonary hypertension, Believe, Life With Special Needs, baby booger grabber

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