Praying for Parker

Superstitous Much?

I set the timer to go off each hour on the hour. This ensures that I never miss a bolus feeding or a dose of Parker’s medication. Our daily schedule makes nurses at the hospital look at me as though I’m missing more than just a few marbles...

Published Sun, Jul 11 2010 6:27 PM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, medically fragile children, chronic lung disease, asthma

What’s YOUR Austerity Plan?

Have you ever watched this video before? I know. There’s LOTS of controversy concerning it. But let’s look past the messenger and focus on the message for a moment. Let’s face it. America is addicted to cheap stuff. We are consumers...

Published Mon, Jun 28 2010 11:18 AM by Praying For Parker

Filed under: A Day In Our Life, yard sales, thrifting, austerity plan, stuff, gardening

So, I was talking to my therapist…

I have always been a pretty self sufficient kind of girl. I could handle it on my own, thankyouverymuch. Then came Parker. For the first few years I kept up with my ‘do it all myself’ determination. Until one day I realized it was killing...

Published Mon, Jun 28 2010 7:53 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, Therapy

WW and SEW: Are We Having Fun Yet?

It can get kinda boring waiting for your big brother to sleep off the night before so you two can FINALLY play. Read More...

Published Tue, Jun 08 2010 7:19 PM by Praying For Parker

Filed under: A Day In Our Life, People I Love, special exposure wednesday, Wordless Wednesday

Mom It Forward – Changing the World One Mom at a Time

Every Tuesday night #gno (Girls Night Out) hosts Twitter parties where women from all over the world join into on a topic of conversation right from their computer keyboards. Even after the actual party was over, women would still hang out tweeting under...

Published Wed, Nov 17 2010 11:14 AM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, down syndrome, Special Needs, Mom It Forward, #gno

Saying hello to my child with Down syndrome

I get it. People get nervous around kids with special needs. We don’t want to offend. We don’t want to feel awkward. Sometimes it’s just easier to keep our distance. It really isn’t hard though, this moving out of a personal safety...

Published Wed, Jan 07 2015 9:24 PM by Praying For Parker

Filed under: Advocacy, down syndrome, Life With Special Needs, special needs parenting

Aspiration Pneumonia

You know it’s going to be a day when the first thing you run for as your feet hit the floor is the phone so you can call your kid’s doctor. We’ve been battling an aspiration pneumonia along with an ear infection. Something still hasn’t...

Published Mon, Nov 10 2014 8:36 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, Advocacy, pulmonary hypertension, Life With Special Needs, Hospital Frequent Flyer, aspiration pnuemonia, special needs parenting

How to survive a breathing treatment

Parker receives a breathing treatment 4 times a day, morning, afternoon, before bed, and once during the night. That’s a lot of sitting and waiting for a Brave Hero with better things to do! We often bring all the breathing treatment stuff into...

Published Wed, Oct 21 2015 8:37 AM by Praying For Parker

Filed under: Life With Special Needs, raising a child with special needs, breathing treatments, children and medical needs

Cardiology Appointment or I hate Echoes

Tuesday is Parker’s cardiology appointment. We LOVE Dr. Day, but we don’t necessarily like having to actually see him, if you know what I mean. Dr. Day has taken excellent care of Parker when other doctor’s have shrugged their shoulders...

Published Fri, May 09 2014 10:52 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, pulmonary hypertension, Hospital Frequent Flyer, heart echo, ekg, Dr. Ronald Day, Cardiology

Dehydrating Bananas

Dehydrating bananas. It’s something I’ve been wanting to do for a long time and never got around to it until…..well, now. While at Costco yesterday I found bananas @.49 cents a pound. They aren’t organic, but that is okay. With...

Published Thu, Sep 04 2014 9:23 AM by Praying For Parker

Filed under: From Scratch, frugal living, food storage, dehydrated foods, prepping, prepping for hard times, special needs parenting, dehydrating bananas, preppers, Excalibur food dehydrator

Changing Christmas

Maybe it’s just me, but for the last several years Christmas has become stressful. It’s become a time where I feel as though I spend the month running around trying to pull miracles out of my armpit, the true meaning of Christmas lost as I...

Published Fri, Dec 20 2013 9:42 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, Christmas, Mary and Joseph, grace

Tamiflu, Puke and Fevers

It started when Reed told me Kenny was staying home from school because she had just puked. Awesome sauce. I can’t think of anything I love more than a day of praying everyone’s head winds up in the vicinity of the toilet when their guts come...

Published Mon, Dec 09 2013 9:24 PM by Praying For Parker

Filed under: frugal living, Life With Special Needs, special needs parenting, Puke, laundromats, flu, Tamiflu, H1N1

Love Is: Special Needs Edition

I recently read that in stressful situations, love has the power to heal. It heals those that receive it as well as those that give it. In our lives we’ll experience negative situations. But there are two truths to get us through the rough patches...

Published Tue, Dec 31 2013 11:40 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, The HIGH Cost of Health Care, Advocacy, down syndrome, Therapy, Life With Special Needs, Hospital Frequent Flyer, special needs parenting, love is, special needs community, ways of showing love

In the midst of the Common Core

With the extinction of intelligence as we know it reportedly contained in the midst of the Common Core, I find myself quietly putting together the monthly lesson plans for Parker’s 2013/2014 school year. Parker’s due for his 3 Year Evaluation...

Published Mon, Aug 12 2013 6:36 PM by Praying For Parker

Filed under: Special Needs Homeschooling, Advocacy, special needs parenting, special needs homescholing, common core, standardized testing

An Echocardiogram and other terrors.

I think I’m doing pretty damn good. Parker has a sedated echocardiogram on November 12th and I have yet to hyperventilate myself into an oblivion. That’s because I’m making Reed go up this time. Yeah. I wish. I know. An echocardiogram...

Published Thu, Nov 07 2013 8:33 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, pulmonary hypertension, Life With Special Needs, Hospital Frequent Flyer, medically fragile kids with special needs, speial needs parenting, echocardiogram

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