Praying for Parker

A video of Parker’s heart rate ‘cycling’.

I’ve written before about how strange Parker’s heart rate can be……and what an indicator it is of an upcoming illness or aspiration issue. Last night Parker sleeping heart rate was beee-u-tiful. Today his napping heart rate is ‘cycling’...

Published Tue, Aug 02 2011 3:43 PM by Praying For Parker

Filed under: Prayer. We need lots of it.

Thirty-six and a Half

Those of us who have kids with special needs tend to celebrate milestones a little differently than our peers raising only typical kids. I’ll never forget when Parker started walking. He was 3.5 years old. We were still celebrating months later...

Published Wed, Jul 27 2011 5:14 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, down syndrome, blenderized diets, right heart cath

Sleep and the kid with special needs.

Where’s the Sandman when you really need him? Don’t let this peaceful little face fool you. He woke up this morning at 4:00 a.m…. a total wild man. After only 6 hours of sleep, Parker’s eyeballs popped open and all hell broke loose...

Published Thu, Aug 11 2011 8:18 AM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, weird sleep patterns, sleep, insomnia

How Could This Happen? The Story of Abbie Dorn

Four years ago Abbie Dorn gave birth to triplets. Shortly afterwards, medical mistakes were made that left Abbie severely brain damaged, unable to speak or eat or even move. A year later her husband divorced Abbie and stopped bringing the triplets to...

Published Mon, Apr 11 2011 7:36 PM by Praying For Parker

Filed under: Advocacy, Abbie Dorn

How a Little Blue Wonder Saved My Life

Let’s be honest. A parent of a medically fragile child with special needs has enough to deal with without having to spend time cussing at, crying over, taking a sledge hammer to …uh….eternally trouble shooting their kids medical equipment...

Published Thu, Apr 21 2011 7:48 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, g-tubes, feeding pumps, Kagaroo Joey Feeding Pump, contiunuous feeds

Parker and his Gam

car loan va credit bad An interactive menu accessible through car loan va credit bad Internet browser notifies the company if the user is safe or in distress. atlanta georgia interest mortgage loan only By using atlanta georgia interest mortgage loan...

Published Thu, Feb 23 2006 9:43 PM by Praying for Parker

Filed under: Uncategorized

Because this boy is mine..

Even with all the mayhem that has defined our life the last few years, I wouldn’t trade a minute of it as long as I can still say: This beautiful, beautiful, beautiful boy is mine. Can you believe that in two weeks Parker will be SEVEN? So...

Published Sun, Nov 06 2011 5:18 PM by Praying For Parker

Filed under: down syndrome, Special Needs, family, Life With Special Needs, Family and Friends

Worrying about zebras: Medically fragile children and special needs

It was a heart breaking sight. A Brave Hero with coban and a cotton ball snugly wedged inside each elbow cranny. Twice they poked him. Twice they failed. The kid simply refused to bleed. We walked out of the hospital Reed, Parker and I,...

Published Sat, Sep 15 2012 9:35 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, brave hero, Frequent Flyin' ar the PCMC, Parker Hodson

People first language…..or the day my head exploded.

We took Parker to his first visit with an audiologist. We talked hearing aids. Did you know that they are now taking little bitty hearing aids, attaching them to a cute little headband and placing that over a kid’s head instead of putting...

Published Wed, Sep 12 2012 6:53 PM by Praying For Parker

Filed under: Advocacy, pocketalker, people first language

A Local Community College for People with Disabilities.

One major concern for parents of children with disabilities is what will life hold for them after they leave the public school system It’s the stuff that late night worry is made of. Lehi City, in Lehi, Utah has begun something beautiful. A Community...

Published Fri, Nov 09 2012 7:50 AM by Praying For Parker

Filed under: Advocacy, Life With Special Needs, Lehi Community College

A Tale of Futility….. and Portable Oxygen Concentrators

I knew it wasn’t likely. Seeing as I had just yesterday been contacted by a friend with the same exact optimism. She, too, learned the hard way. You know what they say about hope. It springs. Eternal. Unfortunately it makes no promises about actually...

Published Thu, Feb 23 2012 8:36 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, Life With Special Needs, portable oxygen concentrators, health insurance

Learning When Enough is Enough

You can learn a lot from planning a yard sale. As I’ve been going through all of my ‘stuff’ and my kids have been going through all of their ‘stuff’ we keep making the same comment over and over and over again: “How...

Published Sun, Apr 15 2012 7:12 PM by Praying For Parker

Filed under: frugal living, selective materialism

Discount School Supply: A Giveaway!

It’s no secret. I love the stuff I get from Discount School Supply. And now, thanks to the great folks over at DSS, I can give one of you the opportunity to see exactly what I’m talking about! But first the the legal-eze: I did NOT receive...

Published Fri, Jan 15 2010 8:19 AM by Praying For Parker

Filed under: Uncategorized

The Fight of Alex Fitzgerald

I lived in Turkey for 3 years while I was growing up. Not on a military base, mind you, but in an apartment building where most of our neighbors were Turks. Living on the economy in Turkey is much different than living anywhere in the US. Not that I’ve...

Published Wed, Apr 07 2010 8:33 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, A Day In Our Life, Advocacy, fundraising, alex fitzgerald, t-mobile, health care

A GummyLump.com Giveaway!

We love puzzles at our house. They provide a great way to work on pre-reading skills. The offer a fun way to review old skills. Puzzles are a good way to introduce new vocabulary. GummyLump offers a fantastic assortment of puzzles. Including our favorite...

Published Thu, Apr 01 2010 6:25 PM by Praying For Parker

Filed under: Special Needs Homeschooling, Stuff We LOVE!, Melissa and Doug, GummyLump.com, Melissa and Doug Puzzles, GummyLump

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