Praying for Parker

New Sponsor: Hippie’s Bath and Body

Parker and I would like to welcome our new sponsor Hippie’s Bath and Body! Cause Even Hippies Need a Bath Sometimes! Owned by Petra Monaco who’s shop is nestled next in the beautiful James River Region in Central Virginia, each item is handcrafted...

Published Fri, Feb 10 2012 9:53 PM by Praying For Parker

Filed under: Stuff We LOVE!, giveaway

Communicating with my non-verbal kid.

I’ve changed things up with Parker’s communication invitations lately. They aren’t the the perfectly set up displays I once created. Instead I have a basket of toys that change every few days. They stay the way Parker last left them...

Published Wed, Feb 15 2012 7:22 PM by Praying For Parker

Filed under: Special Needs Homeschooling, down syndrome, Life With Special Needs, Ipad Apps, communication skills

Right Now

Right now I’m listening to the nurse as she suctions terrifying crud from Parker’s trach. Again. Right now I’m wondering what to put into Parker’s blenderized diet that would be compatible with another round of antibiotics. Right...

Published Wed, Mar 14 2012 10:39 AM by Praying For Parker

Filed under: down syndrome, Special Needs, home health care, gardening, Life With Special Needs, Victory Garden, Family and Friends, Barnes and Noble

My First Utah County Republican Caucus

I can’t believe how nervous I was last night. All I could imagine was that a caucus meeting would be a lot like politics on Facebook, where I’ve been accused of everything from holding a gun to a person’s head and robbing them via the...

Published Fri, Mar 16 2012 12:14 PM by Praying For Parker

Filed under: Advocacy, Politics of Special Needs

Where you’ll find my kid.

Before I get to far into this post, I wanted to comment on Parker’s hair. I was hoping that maybe, just maybe 7 would be the magic age during which to grow out the Brave Hero’s hair. I imagined thick hair cut in the style of cool. Alas, Parker’s...

Published Thu, Mar 22 2012 6:47 PM by Praying For Parker

Filed under: down syndrome, Special Needs, brave hero, Life With Special Needs

Zombies, generators and my electricity dependent kid.

It’s begun. A drawer by drawer, closet by closet, room by room Spring Cleaning Excavation to amass a huge mountain of treasures for our yard sale. This is only a wee part of the beginning. Less than two rooms. It’s amazing how much stuff you...

Published Tue, Mar 27 2012 8:36 AM by Praying For Parker

Filed under: Life With Special Needs, generators

A Lacing Activity For Fine Motor Skills!

We are on our way up to Primary Childrens Hospital today. It’s the after the Nissen follow up appointment. I don’t mind these appointments so much. No stress. Just making sure all has healed as it should. (insert sigh of relief here) But I...

Published Tue, Jan 19 2010 9:24 AM by Praying For Parker

Filed under: A Day In Our Life, Special Needs Homeschooling, Fantabulous-ness, homeschooling, sewing cards, home school

Taking Your Child Out of State to See a Specialist

It seems like it was just yesterday I was killing myself trying to find a way to take Parker out of state to have his pull down surgery performed by someone who knew what they were doing. Yes, the scars of frustration are still that fresh. We got lucky...

Published Tue, Feb 08 2011 8:37 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, The HIGH Cost of Health Care, A Day In Our Life

Take a Stand. Change the World.

The other day, my almost 20 year old, McCall, received a Facebook friendship request. It was from a former seminary teacher from several years ago. McCall remembered this teacher fondly and so accepted the request. Not too long after, this teacher sent...

Published Mon, Feb 07 2011 8:40 AM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, People I Love

Medical Bills and The Pantry Principal

If there was one thing I’ve been so thankful for while trying to be able to afford Parker, is the fact that I’ve always been a HUGE believer in the The Pantry Principal, the brain child of Amy Dacyczyn, author of The Tightwad Gazette Series...

Published Mon, Jan 10 2011 9:00 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, Cheap and Easy

I can’t smell skunk, but apparently I can smell Klebsiella Pneumoniae in my son’s pee.

I can’t smell skunk. Seriously. Oh, if we were to run over one and it stuck to the bottom of our car I might be able to make the scent out while everyone else was hurling their donuts. But apparently I can smell Klebsiella Pneumoniae in Parker’s...

Published Thu, Feb 20 2014 7:12 AM by Praying For Parker

Filed under: Life With Special Needs, Frequent Flyin' ar the PCMC, special needs parenting, easy button, fistula, klebsiella pneumoniae, uti, imperforate anus

Special needs student raped in school bathroom.

A Jackson, Mississippi mother claims that her daughter was raped in a Callaway High School bathroom stall while classes were in session. A special needs student raped in a school bathroom. What is wrong with this world? “She said she screamed. She...

Published Thu, Oct 17 2013 3:47 PM by Praying For Parker

Filed under: Advocacy, Special Needs, Life With Special Needs, special needs parenting, sexual abuse of children with special needs, rape of student with special needs

His personality isn’t disabled.

I look over and watch as Reed tickles and blows raspberries on Parker’s stomach. Yeah, he’s got to be careful not to muck with the g-tube, but that’s no big deal. Parker still laughs with delight, lifting up his pajama top hoping for...

Published Wed, Nov 06 2013 9:07 AM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, special needs parenting

You know you’re getting old when….

You know you’re getting old when….. you would totally forget your birthday if it wasn’t for the Facebook reminders. you would totally forget your birthday if it wasn’t for your husband and kids reminding you. when you have to stop...

Published Sun, Jul 14 2013 1:58 PM by Praying For Parker

Filed under: blessings, Life With Special Needs, special needs parenting, celebrations, Birthdays, Happy birthday

Buying toys for my kid with special needs.

We celebrated Parker’s birthday on Sunday. His actual birthday isn’t until Thursday, but Sunday was the only day everyone could be here. The cake was white, trimmed with blue frosting. Since Parker is allowed small (very small) bites of frosting...

Published Mon, Nov 16 2015 9:46 PM by Praying For Parker

Filed under: Life With Special Needs, kids with special needs, toys for kids with special needs, learning how to play

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