Praying for Parker

The Down syndrome is the easy part.

We took Parker to a new doctor in Provo yesterday. The doctor asked me to tell him about Parker, so I ran down the list…..tethered spinal cord, trach, g-tube…. I listed all the regular stuff. The doctor listened, taking a few notes here and...

Published Mon, Aug 02 2010 8:25 PM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, down syndrome, Special Needs

Bouncin’

Hi, it’s Parker, your favorite Brave Hero. Yeah, I know that my Mom usually does all the blogging. But today she says it’s kind of hard to write when she is looking at the world through the fog of yet another sleepless night. Seems as if when...

Published Tue, Feb 16 2010 8:47 AM by Praying For Parker

Filed under: A Day In Our Life, It's a dang good think I'm cute.

He’s a GENUINE Hodson Boy……..

I’ve given birth to a few athletes. Which is interesting considering my lack of all things uh…..coordinated. Ahem. We often joke at our house that the way you know our boys are gen-u-ine Hodson is by their love of all things accompanied by...

Published Mon, Jan 25 2010 8:57 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, down syndrome, Special Needs, bowling

A Frugal Lifestyle: Used is good, but free is best!

When our first child, Bailey, was born Reed told me to be sure and save the outfits she outgrew so that they could be passed on to the next kid to come our way. Me, being who I was then, replied that I wasn’t about to hand down anything. Why, it...

Published Sun, Feb 07 2010 7:35 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, A Day In Our Life, Fantabulous-ness, hand me downs, frugal, yard sales

Unfaltering Gratitude

Today our ward/neighborhood is having a day of fasting and prayer for Parker. A friend, and a former Stake Patriarch, (but once a Patriarch, aren’t you pretty much always a Patriarch?) was going to give Parker a blessing today. But since our Brave...

Published Sun, Oct 11 2009 9:34 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, A Day In Our Life, Advocacy

How to color pumpkin seeds.

Our garden was quite the squash producing machine this year. From Pumpkins to Hubbards to Spaghetti to Butternut. I’ve got squash coming out of my ears. As I was cleaning out what felt like my 300th pumpkin, I had an idea hit me. What...

Published Wed, Oct 17 2012 9:23 PM by Praying For Parker

Filed under: Life With Special Needs, how to color pumpkin seeds

Mark Ewing, Alaska’s kids with SN deserve so much better than you.

Mark Ewing, an Alaska State House hopeful, and self proclaimed torch carrier of conservative common sense, described one way to help a strapped state budget: ” the state should consider moves to stop providing education to “children that...

Published Tue, Aug 07 2012 7:50 AM by Praying For Parker

Filed under: Politics of Special Needs, Mark Ewing sucks.

Hold the pity. Please.

I love showing off the awesome that is Parker. There are days where I could swear this kid glows with his love of life. The joy he radiates is not just contagious, it engulfs you, sweeping you up in a happiness hard to find in this world.. This is one...

Published Wed, Feb 22 2012 7:28 PM by Praying For Parker

Filed under: Advocacy, down syndrome, World Down Syndrome Day, Life With Special Needs

Even if the rest never follows.

Sometimes the once upon a time me sneaks up and reminds the me in the present of goals set and dreams once dreamt. She reminds me that debt and doctors and pulmonary hypertension were never supposed to be part of our future, and that when my kids finally...

Published Tue, Jan 24 2012 8:14 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, down syndrome, family, faith, Life With Special Needs

Why I hate cardiology appointments.

Yesterday was the day. One of the 4 days a year I dread the most. Parker’s cardiology appointment. Don’t get me wrong. We love our cardiologist. We just hate what he has to say. Then there is the pesky fact that I often find myself trying...

Published Tue, Jun 28 2011 10:31 AM by Praying For Parker

Filed under: A Day In Our Life, chronic lung disease, atelectasis, asthma, right heart caths, oreck air purifiers, peri bronchial thickening

Spring Cleaning and Bridal Showers

It was as good a reason to get serious as any about my Spring cleaning. My oldest baby, Bailey Ann, is getting married. And my Mom wanted to host Bailey’s ‘old lady’ bridal shower here at my house. ( ‘Old Lady‘ shower verses...

Published Sun, Apr 17 2011 2:27 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, People I Love, spring cleaning, bridal showers

You KNOW you’re a Special Needs Mama when…

We are home from the hospital. Brave Hero is still sick, but we are (knock on wood) managing it all at home. I’ll update on Parker a little bit later today. But first……. Recently my Twitter stream was overcome with truths...

Published Sun, Nov 27 2011 8:12 PM by Praying For Parker

Filed under: Advocacy, Life With Special Needs, parents of kids with special needs

Parents.com Best Special Needs Blog Nominee

We’ve been nominated! Yup. Us. The Brave Hero and I. We received a notice yesterday that Parker’s blog was nominated for Best Special Needs Blog on Parents.com. The competition is pretty stiff. Other blogs have been nominated longer, and thus...

Published Wed, Aug 17 2011 6:49 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, parents.com, Parents magazine

How to store potatoes for the winter.

We eat a lot of spuds around here. Homemade (baked) fries, mashed, smashed, twice baked too. Luckily we are entering the cheap(er) priced potato season. At least compared to the prices being asked at a local grocery store around here. Yikes! My parents...

Published Tue, Oct 25 2011 5:54 PM by Praying For Parker

Filed under: From Scratch, Victory Garden, how to store potatoes, potato storage, how to store potatoes for the winter

What makes Down syndrome so terrifying?

Obviously I missed the memo stating that effective immediately, the most important prerequisite of giving birth to a child is perfection. Oh, I know of Denmark’s Copenhagen Post projection that by the not too distant future Denmark could be a country...

Published Wed, Oct 26 2011 8:30 PM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, Politics of Special Needs, aborting children with down syndrome, eugenics, prenatal testing

Syndication

Recent Posts

Tags

Archives