Praying for Parker

The Magic of a Fishy Kiss

I got in touch with our Pedi yesterday. I explained Parker’s symptoms with his heart rate in the bonkers zone and is increased (double!) oxygen needs. Her advice was to up the Albuterol to every four hours. Parker wiggling his ear as I sing “Wiggle...

Published Fri, Mar 18 2011 8:43 AM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, People I Love, fishey kisses

Medical Bills and The Pantry Principal

If there was one thing I’ve been so thankful for while trying to be able to afford Parker, is the fact that I’ve always been a HUGE believer in the The Pantry Principal, the brain child of Amy Dacyczyn, author of The Tightwad Gazette Series...

Published Mon, Jan 10 2011 9:00 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, Cheap and Easy

What’s ‘Ghouling’ On At YOUR House?

My plan today was to take Parker out and shoot some adorably cute Halloween pics. Alas, Parker’s plan was to take off as fast as he could as far as he could until he ran out of tubing. Hey. What’s a Brave Hero to do? Thinking about the pose...

Published Wed, Oct 13 2010 10:40 PM by Praying For Parker

Filed under: A Day In Our Life, Stuff We LOVE!, down syndrome, Scentsy, raffle, Halloween, giveaways

Please PRAY

Reed and our nurse just took Parker to American Fork ER. The idea is to get him stabilized and then most likely life flight him up to Primary Children’s Hospital. Parker really took a turn for the worse early this morning. You can hear his lungs...

Published Thu, Mar 18 2010 8:24 AM by Praying For Parker

Filed under: Uncategorized

Alternative Funding Sources for Special Needs

Let’s face it. Kids with special needs are expensive. It doesn’t matter if you have insurance or not. Cause you can pretty much bet that there’s going to be a lot of somethings that your insurance ain’t going to cover. Expensive...

Published Thu, Jan 02 2014 10:00 AM by Praying For Parker

Filed under: The HIGH Cost of Health Care, Advocacy, health care, Frequent Flyin' ar the PCMC, special needs parenting, grants for special needs, alternative funding sources, itaalk.org

You know you’re getting old when….

You know you’re getting old when….. you would totally forget your birthday if it wasn’t for the Facebook reminders. you would totally forget your birthday if it wasn’t for your husband and kids reminding you. when you have to stop...

Published Sun, Jul 14 2013 1:58 PM by Praying For Parker

Filed under: blessings, Life With Special Needs, special needs parenting, celebrations, Birthdays, Happy birthday

testing

The post testing appeared first on Praying For Parker . Read More...

Published Fri, Dec 19 2014 6:46 PM by Praying For Parker

Filed under: Life With Special Needs

Prepared

Each January I choose a word that is going to be my word for the next 12 months. I’ll write lists of them and then scratch through them as I try to find just the right one to make my focus of the new year. I almost decided on the word renaissance...

Published Fri, Jan 02 2015 10:44 AM by Praying For Parker

Filed under: Life With Special Needs, prepping for hard times, prepared, emergency preparedness, prepare for an emergency, prepared pantry

General Conference 2014: The Grand Poo-bah of all Mormon Meetings

My favorite weekend of the entire year is the Fall General Conference 2014 weekend. My second favorite? Spring General Conference weekend. From the time Reed and were first married I’ve tried to make this weekend a special one. One tradition that...

Published Mon, Oct 06 2014 9:50 AM by Praying For Parker

Filed under: From Scratch, Family and Friends, lds general conference, special needs parenting, cinnamon rolls, Meet the Mormons

I can’t smell skunk, but apparently I can smell Klebsiella Pneumoniae in my son’s pee.

I can’t smell skunk. Seriously. Oh, if we were to run over one and it stuck to the bottom of our car I might be able to make the scent out while everyone else was hurling their donuts. But apparently I can smell Klebsiella Pneumoniae in Parker’s...

Published Thu, Feb 20 2014 7:12 AM by Praying For Parker

Filed under: Life With Special Needs, Frequent Flyin' ar the PCMC, special needs parenting, easy button, fistula, klebsiella pneumoniae, uti, imperforate anus

Mountains to Climb

I came across this short video, Mountains to Climb, that touched my heart in ways I don’t even have the words to express. I believe that there are times when truths are put in such ways as to address our spirits and mere language is unable to do...

Published Sat, Feb 23 2013 8:05 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, faith, Mountains to Climb, Mormon Channel

How to Catch a Rainbow Trout

Parker went to his end of the year class party. The theme? How to Catch a Rainbow Trout. Okay, so that wasn’t really the theme, but fishing was the activity of the day. Just a few minutes from our house is a fantastic public park with a stocked...

Published Fri, May 10 2013 5:38 PM by Praying For Parker

Filed under: down syndrome, Special Needs, Life With Special Needs, Field Trips, fishing, field trip ideas, rainbow trout

How to survive a breathing treatment

Parker receives a breathing treatment 4 times a day, morning, afternoon, before bed, and once during the night. That’s a lot of sitting and waiting for a Brave Hero with better things to do! We often bring all the breathing treatment stuff into...

Published Wed, Oct 21 2015 8:37 AM by Praying For Parker

Filed under: Life With Special Needs, raising a child with special needs, breathing treatments, children and medical needs

Fundraising and my medically fragile child with special needs

I know I’ve told this story before. But I’m going to tell it again. It helps to give a bit of insight into what it is like to raise a medically fragile child with special needs. When Parker was being life flighted up to PCMC the first time...

Published Wed, Jun 05 2013 6:09 PM by Praying For Parker

Filed under: Advocacy, fundraising, Therapy, Life With Special Needs, special needs parenting, fundraising ideas

Self Worth

April hasn’t been the best of months so far. I don’t know why, but if it could go wrong, be exasperating, insulting, heart wrenching, or simply exhausting, this has been the month for it to happen. There’s still a couple of weeks left...

Published Thu, Apr 18 2013 1:18 PM by Praying For Parker

Filed under: Life With Special Needs, standing up for myself, loving myslef, having faith in myself

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