Praying for Parker

Sensory Schedule Benefits

We’ve been doing the sensory schedule for a few weeks now. And you know what? We are seeing results. Not the wow! we did this once and the sensory stuff is solved results. But results none the same. Case in point. Haircuts. You would think we were...

Published Sun, Apr 21 2013 9:49 PM by Praying For Parker

Filed under: Life With Special Needs, special needs parenting, OT, Meeting a kid's sensory needs., sensory schedule, occupational therapy at home, haircuts and the kid with special needs

Just another kid on the block: World Down Syndrome Day

A year ago I woke up to the sound of my back door neighbor cutting down all the trees between his fence line and the stream that runs between our homes. Even though the trees were mainly scrubs, and even though they were on his property I had a few not...

Published Tue, Mar 19 2013 8:23 PM by Praying For Parker

Filed under: Advocacy, World Down Syndrome Day, Life With Special Needs, T21, Trisomy 21, National Down Syndrome Society, ndss, March 21

Asking for prayers on Tuesday

I can’t quite put my finger on it. The feeling I get right before any and every Cardiologist appointment. It’s like I’m preparing for disappointment just in case. I’m mourning in advance. Just in case. Always the very real possibility...

Published Mon, Nov 26 2012 8:30 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, down syndrome, pulmonary hypertension, faith, Frequent Flyin' ar the PCMC

Take THAT Pulmonary Hypertension

A certain Hero of the Brave kind has been driving us a bit nuts the last few days. Maybe it’s the weather, or the phase of the moon, but Parker has been moving at the speed of light with a never ending quarter added. In my mind I can almost hear...

Published Tue, Feb 19 2013 6:04 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, down syndrome, pulmonary hypertension, Life With Special Needs, medical miracles

I’ll take a trach change to go, please.

There was a time when a trach change was no big deal around these parts. Then in April Parker underwent a trach stoma revision and tracheostomy changes became a really big deal. Like hold your breath and pray you don’t have to call 911 deal. Parker...

Published Mon, Oct 05 2015 9:19 AM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, Frequent Flyin' ar the PCMC, special needs parenting, tracheostomy, trach changes

Increasing Vocabulary Words for Non-Verbal Students

It is interesting, this journey to teach a non-verbal child how to read. Add in the fact that Parker spends so much of his time secluded because of his health and, well, this challenge becomes an even bigger one. Thankfully, I am fully secure in my knowledge...

Published Tue, Oct 07 2014 10:30 AM by Praying For Parker

Filed under: Life With Special Needs, special needs parenting, activities for non-verbal children, teaching a child with special needs how to read

Fine motor skill activities on the light table.

Parker’s first learning session each morning rolls in at 7:30 a.m. with his teacher. They work for a half an hour and then it’s time for Parker’s cares. TWO hours of cares later and Parker is ready for more time in his little classroom...

Published Tue, Dec 17 2013 7:16 PM by Praying For Parker

Filed under: Special Needs Homeschooling, Therapy, Life With Special Needs, sensory activities, homeschooling kids with special needs, special needs parenting, Meeting a kid's sensory needs., fine motor skills, light table activities

Fireworks Craft and Fine Motor Activity

Is it hot where you live? We are hitting 95 today, which for me translates into melting. Parker doesn’t do well in the heat, so on days like today we have to get him outside early. On today’s agenda? A Fireworks craft and fine motor activity...

Published Tue, Jun 18 2013 5:30 PM by Praying For Parker

Filed under: Special Needs Homeschooling, Art Activities, sensory activities, Montessori inspired activities, Meeting a kid's sensory needs., fine motor activity

The First Swing of Spring

It was almost warm enough to swing last week. In swinging, as in horseshoes, almost is close enough. Is there something your kid loves, an activity that makes their heart sing? And for those of you who may be interested, Parker weighed in at an all time...

Published Tue, Mar 09 2010 8:30 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Special Needs, homeschool, swing, spring

Winter: A Preschool Unit

Some days preschool just doesn’t go as well as this Mama would like. Case in Point: When a certain little Brave Hero decides to ignore everything and just turn his back on me. Parker is still working off his anger from the surgery and that FEES...

Published Thu, Jan 14 2010 10:07 AM by Praying For Parker

Filed under: A Day In Our Life, Special Needs Homeschooling, preschool unit, speical needs homeschooling, winter

A Lentil Soup Recipe

It simply wouldn’t be New Year’s Day without making a huge pot of Lentil Soup. Lentils are a big part of Parker’s blenderized diet, so I always have at least 20 pounds on hand. The ingredients are simple. And cheap. And you know how...

Published Sun, Jan 02 2011 10:12 PM by Praying For Parker

Filed under: Totally Worth The Calories, Recipes

Thirty-six and a Half

Those of us who have kids with special needs tend to celebrate milestones a little differently than our peers raising only typical kids. I’ll never forget when Parker started walking. He was 3.5 years old. We were still celebrating months later...

Published Wed, Jul 27 2011 5:14 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, down syndrome, blenderized diets, right heart cath

Potatoes: Buried Treasure for Frugal Families

I was able to pick up 140 pounds of potatoes for .29 cents a pound. These potatoes were dug up only a few days before I purchased them, and weren’t sprayed with any growth inhibitors to prevent sprouting. I know many families...

Published Tue, Oct 02 2012 8:33 AM by Praying For Parker

Filed under: frugal living, Recipes, bake the perfect potato, frugal foods

Weighted Vests: Experiences Wanted

There are days when trying to get Parker to focus and pay attention to the task at hand is a huge experience in futility. I teasingly refer to it as ‘Goofball Mode’ It’s when Parker simply starts…well, acting like a Goofball. Twisting...

Published Tue, Feb 21 2012 7:57 AM by Praying For Parker

Filed under: Life With Special Needs, compression shirts, weighted vests, senory issues

What makes Down syndrome so terrifying?

Obviously I missed the memo stating that effective immediately, the most important prerequisite of giving birth to a child is perfection. Oh, I know of Denmark’s Copenhagen Post projection that by the not too distant future Denmark could be a country...

Published Wed, Oct 26 2011 8:30 PM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, Politics of Special Needs, aborting children with down syndrome, eugenics, prenatal testing

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