Praying for Parker

Embracing a blessing when you get one…..

No big decisions have been made yet. Although we do have an OR date on October 3rd. Even though we don’t know what exactly will be happening. Trying to talk to talk to doctors individually is nuts. So I asked our most wonderful of Pedi’s to...

Published Wed, Sep 22 2010 1:06 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, A Day In Our Life, Fantabulous-ness, down syndrome, PH, blessings, PAH

KTVX Channel 4 Utah’s Kimberly Houk’s Interview

I was invited to be interviewed today by Kimberly Houck from KTVX Channel 4 here in Utah in regards to the new health care laws going into effect today. I’m not much of a being on television kinda gal, and declined. But I did spend a minute explaining...

Published Thu, Sep 23 2010 2:41 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, A Day In Our Life, Advocacy, down syndrome, Special Needs, I'm The Mama: Hear Me Roar!, medicaid, KTVX Channel 4, Kimberly Houck, Tea Party

A Scentsy Raffle for Parker’s Medical Fund!

Scroll down to read about Parker’s Scentsy Raffle! Can you believe that while we have an OR scheduled for Parker next Tuesday, I have YET to hear from TPTB as to what exactly they are thinking of doing? Seems as though Cardiology thinks Parker’s...

Published Mon, Sep 27 2010 3:00 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, Advocacy, Stuff We LOVE!, down syndrome, Scentsy, raffle

Who needs Medicaid…….just host a BBQ to keep your kid alive.

Go HERE for a chance to win a Scentsy Jack O’ Lantern Warmer during Parker’s Scentsy Raffle! Our local Legislative Representative is convinced that Parker’s Medicaid Waiver could be replaced with the charity of neighbors and friends...

Published Thu, Sep 30 2010 10:25 AM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, Advocacy, I'm The Mama: Hear Me Roar!, Utah Legislature, travis c. waiver, Mediciad, LTV Vent

A REALLY big Crayon Rocks.net Giveaway.

WHAT you’ve never heard of Crayon Rocks? Well, gather around as I share with you simply the best coloring tool for children. Crayon Rocks have vibrant colors and create beautiful textures. All natural SOY WAX crayons made from USA GROWN soybeans...

Published Thu, Sep 30 2010 12:18 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Stuff We LOVE!, down symdrome, giveaway, Reviews and Giveaways!, crayon rocks, soy crayons

A Plan, A Prada Bag, More Septra and Gratitude.

Parker’s procedure for tomorrow has been canceled. Instead he’s going on 10 more days of Septra. After a long and hard road, the decision has been made to start Parker off on Botox and a med to dry up secretions. Parker has a history of not...

Published Mon, Oct 04 2010 12:11 PM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, Advocacy, Special Needs, botox, Prada, septra

Dehydrating Pumpkins

We’ve harvested the winter squash and pumpkins. FIFTEEN Pumpkins to be exact. Not too shabby considering the teeny space my kids refer to as ‘the farm’ while rolling their eyes. Most years I have pureed my pumpkins and then frozen them...

Published Tue, Oct 05 2010 9:09 AM by Praying For Parker

Filed under: A Day In Our Life, Cheap and Easy, Garden Goddess, From Scratch, organic gardening, VitaMix, dehydrating pumpkins, excaliber dehydrator

The Best Post on Sensory Boxes EVER. (maybe)

I LOVE sensory boxes. When working in pre-schools I used to LOVE coming up with all kinds of exciting things to stick into the big sensory boxes they had. Teeny little frogs? With little fish nets? Snag one. Stare it down. Let it loose again. (Okay. True...

Published Wed, Oct 06 2010 10:10 AM by Praying For Parker

Filed under: Special Needs Homeschooling, Stuff We LOVE!, Special Needs, home school, sensory tables, sensory boxes

What the Representative from Utah District 27 DIDN’T Mention

When I first began blogging, my goal was to show the world that life with an extra chromosome truly is worth living. I shocked at the number (up to 90%) of terminations sought after a new mother was given a prenatal diagnosis of Down syndrome. One of...

Published Sun, Oct 10 2010 6:10 PM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, Advocacy, Special Needs, medicaid, travis c. waiver, Utah District 27

Crayon Rocks: WINNERS!

With the help of random.org, we have our TEN Crayon Rocks Winners! Kim Blondie Chell Annette Anderson Greta Krista Jennifer Nina Christine Carrie Janet Read More...

Published Tue, Oct 12 2010 8:10 AM by Praying For Parker

Filed under: Fantabulous-ness, Stuff We LOVE!, crayon rocks, reviews giveaways

Overshadowing My Joy

Yesterday’s list included the usual. With a couple of extras thrown in. Like my Mom and I making a stop at the Mt. Timpanogos Temple. We pulled into the Temple parking lot and each of us offered up a prayer from our hearts in behalf of our Brave...

Published Tue, Oct 12 2010 10:12 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, A Day In Our Life, Special Needs, faith, Praying For Parker, Mt. Timpanogos Temple

What’s ‘Ghouling’ On At YOUR House?

My plan today was to take Parker out and shoot some adorably cute Halloween pics. Alas, Parker’s plan was to take off as fast as he could as far as he could until he ran out of tubing. Hey. What’s a Brave Hero to do? Thinking about the pose...

Published Wed, Oct 13 2010 10:40 PM by Praying For Parker

Filed under: A Day In Our Life, Stuff We LOVE!, down syndrome, Scentsy, raffle, Halloween, giveaways

A Swag Bucks Tutorial

Christmas is officially on it’s way. I know this because right next to the Halloween stuff that showed up in August, stores around here are beginning to put out their Christmas stuff. ahem. For those of you looking for a way to help pay for your...

Published Mon, Oct 18 2010 10:12 AM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Cheap and Easy, Stuff We LOVE!, down syndrome, Special Needs, Tutorials, Swag Bucks

What REALLY Matters

Today (Wednesday) at 10:20 a.m. MST, Parker is scheduled for both an ECHO and an EKG. There is a lot riding on these results and I’m a bit of a worried mess. Any and all prayers offered up in Parker’s behalf for this ECHO and EKG to reflect...

Published Tue, Oct 19 2010 9:45 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs

Nova Natural Toys + Crafts Giveaway

The first time I came across Nova Natural Toys & Crafts, I’m pretty sure I drooled all over my computer screen. High quality, open ended toys made from natural products. Perfect for kids of all abilities. From houseplay, to castles, to crafts...

Published Fri, Oct 22 2010 8:43 AM by Praying For Parker

Filed under: A Day In Our Life, Stuff We LOVE!, Reviews and Giveaways!, contests, giveaways, Nova Natural Toys + Crafts, prayingforparker

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