Praying for Parker

Producing More While Consuming Less: A Frugal Lifestyle

If I could, I’d turn all of my lawn into garden. Reed, however, not so much. I’d love a few chickens running around my backyard. Parker’s Pulmonologist shot that idea down in a flash. Something about chicken dust and trachs and trashed...

Published Tue, Apr 06 2010 11:48 AM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Cheap and Easy, Uncategorized, Stuff We LOVE!, frugal living, consumerism, fruality

Please PRAY

Reed and our nurse just took Parker to American Fork ER. The idea is to get him stabilized and then most likely life flight him up to Primary Children’s Hospital. Parker really took a turn for the worse early this morning. You can hear his lungs...

Published Thu, Mar 18 2010 8:24 AM by Praying For Parker

Filed under: Uncategorized

Why We LOVE Betty Crocker!

Remember last year and Parker’s Make a Wish that came true? The one that Betty Crocker helped to grant? Parker’s adaptive swing set has brought him more joy than I can even express. Parker can make his own way up the Pirate plank. We use time...

Published Fri, Jul 23 2010 3:56 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Betty Crocker, Make A Wish

Overshadowing My Joy

Yesterday’s list included the usual. With a couple of extras thrown in. Like my Mom and I making a stop at the Mt. Timpanogos Temple. We pulled into the Temple parking lot and each of us offered up a prayer from our hearts in behalf of our Brave...

Published Tue, Oct 12 2010 10:12 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, A Day In Our Life, Special Needs, faith, Praying For Parker, Mt. Timpanogos Temple

The Magic of a Fishy Kiss

I got in touch with our Pedi yesterday. I explained Parker’s symptoms with his heart rate in the bonkers zone and is increased (double!) oxygen needs. Her advice was to up the Albuterol to every four hours. Parker wiggling his ear as I sing “Wiggle...

Published Fri, Mar 18 2011 8:43 AM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, People I Love, fishey kisses

Hallmark Recordable Storybook Giveaway Winners!

Krista from Welcome To Married Life and….. Sue Mayer from Sue Mayer – Special Needs Mom Enjoy! Read More...

Published Thu, Dec 09 2010 5:07 PM by Praying For Parker

Filed under: Stuff We LOVE!

Using Sticker Books to Increase Reading Vocabulary Words

Using sticker books to increase reading vocabulary words is brilliant. Seriously. Parker loves sticker books. He needs help with his fine motor skills. Kids with Down syndrome rely on repetition in their learning technique. With a little bit of prep,...

Published Sun, Nov 15 2015 8:47 PM by Praying For Parker

Filed under: Special Needs Homeschooling, homeschooling, Life With Special Needs, SN Homeschooling, reading skills, vocabluary words

Fine motor skill activities on the light table.

Parker’s first learning session each morning rolls in at 7:30 a.m. with his teacher. They work for a half an hour and then it’s time for Parker’s cares. TWO hours of cares later and Parker is ready for more time in his little classroom...

Published Tue, Dec 17 2013 7:16 PM by Praying For Parker

Filed under: Special Needs Homeschooling, Therapy, Life With Special Needs, sensory activities, homeschooling kids with special needs, special needs parenting, Meeting a kid's sensory needs., fine motor skills, light table activities

Down syndrome

I’ve taken a lot of pot shots about how I look at having a son with Down syndrome. Seems as though I see the whole thing through glasses too rosy for comfort for some of my peers. They don’t realize when your child is born with a disease that...

Published Fri, Oct 04 2013 10:05 AM by Praying For Parker

Filed under: Advocacy, Life With Special Needs, special needs parenting, down syndrome facts, Down syndrome awareness

A Brave Hero and his AmTryke!

It’s official. We received word today that Parker will be getting his adaptive bike! Yeeee-Haw! He’ll be getting the AmTryke ProSeries 1512 with Rear Steering Control. Over the Moon. That’s how we feel. Over the Moon with excitement...

Published Tue, Jun 04 2013 8:38 PM by Praying For Parker

Filed under: Stuff We LOVE!, Life With Special Needs, adaptive bikes, AmTryke, ambucs

Fireworks Craft and Fine Motor Activity

Is it hot where you live? We are hitting 95 today, which for me translates into melting. Parker doesn’t do well in the heat, so on days like today we have to get him outside early. On today’s agenda? A Fireworks craft and fine motor activity...

Published Tue, Jun 18 2013 5:30 PM by Praying For Parker

Filed under: Special Needs Homeschooling, Art Activities, sensory activities, Montessori inspired activities, Meeting a kid's sensory needs., fine motor activity

Wrinkled sheets and time management.

I don’t iron my sheets any more. Yes, I know there are those of you who think that ironing sheets is a symptom of a deeper issue, but my mom ironed her sheets and well, the cleaning gene doesn’t fall far from the ironing board. As I’ve...

Published Fri, May 31 2013 9:34 AM by Praying For Parker

Filed under: frugal living, Life With Special Needs, time management

Advocating againt the R-Word.

Parker’s big sister, McCall has always been a huge advocate for ending the use of the R-word. It hasn’t been easy. Take for example, when on her high school softball team she asked a team mate to please not say the r-word. She was polite,...

Published Sun, Dec 09 2012 7:52 PM by Praying For Parker

Filed under: Advocacy, spread the word to end the word, end the r-word, the r-word

Asking for prayers on Tuesday

I can’t quite put my finger on it. The feeling I get right before any and every Cardiologist appointment. It’s like I’m preparing for disappointment just in case. I’m mourning in advance. Just in case. Always the very real possibility...

Published Mon, Nov 26 2012 8:30 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, down syndrome, pulmonary hypertension, faith, Frequent Flyin' ar the PCMC

Fire Station Field Trip

I don’t usually take Parker on the field trips with his class. Either he’s sick, just getting over being sick, the class has had something going around, or there’s a chance something’s might be going around. Today I took a chance...

Published Wed, Feb 20 2013 6:03 PM by Praying For Parker

Filed under: Advocacy, down syndrome, Special Needs, homeschooling a child with special needs, Fire Station, Field Trip, Field Trips

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