Praying for Parker

Fifty-one……

It’s funny how when I woke up today a brand new fifty-one, I didn’t really feel that much different than I did at twenty-one. Okay, so my left knee is giving me fits and I don’t sleep as well as I used to, but you get my...

Published Sun, Jul 15 2012 10:54 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, miracles, faith, Family and Friends, birthday

Dehydrated Fruit for a Blenderized Diet

I love creating a blenderized diet each morning for Parker. I try to go organic as much as I can, using as high quality foods as possible. It can be a challenge to do this on a modest food budget. But it can be done. One strategy I use is gleaning. Gleaning...

Published Sun, Oct 16 2011 7:45 PM by Praying For Parker

Filed under: From Scratch, blenderized diet, blenderized diets, frugal living, g-tubes, Recipes, g-tube feeding, I love a tubie, kids with g-tubes

Because Leaving a Child to Rot in the System is Always Better….

A friend of mine, a smart, politically active Mama of many kids with special needs (both by birth and adoption) felt the claws of ignorance yesterday on her Facebook page. This Mama, who is looking at running for local office, was accused of having adopted...

Published Thu, Jan 20 2011 8:25 PM by Praying For Parker

Filed under: Advocacy, I'm The Mama: Hear Me Roar!

Trach-Vent Clinic

Guess where we are off to today? Yup. Trach-Vent clinic. Which is almost as nervous making as a cardiology appointment. Almost. It’ll be a long day. Any and all wishes for a successful visit and being able to leave feeling hopeful are greatly appreciated...

Published Wed, Jul 14 2010 7:56 AM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, The HIGH Cost of Health Care, trach, vent

You Could Learn A Lot From A Muppet

Parker’s favorite DVD these days is Sesame Street’s Monster Hits! One of the songs on this DVD is “We’re All Monsters” We’re all different, but we’re the same….. I am blue. I am green. I am red. I am gray...

Published Tue, Jul 20 2010 7:35 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, Muppets

A Plan, A Prada Bag, More Septra and Gratitude.

Parker’s procedure for tomorrow has been canceled. Instead he’s going on 10 more days of Septra. After a long and hard road, the decision has been made to start Parker off on Botox and a med to dry up secretions. Parker has a history of not...

Published Mon, Oct 04 2010 12:11 PM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, Advocacy, Special Needs, botox, Prada, septra

Save The Date(s)!

May 28th and 29th! I’ll be Right here: Okay. I know what you are thinking……that they must have been exceptionally desperate to invite HER to be on a panel at a blogging conference. But, nope. I mean just look at the awesome that will...

Published Wed, Jan 06 2010 7:58 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Advocacy, I'm The Mama: Hear Me Roar!, casual blogger conference

A Brave Hero and his AmTryke!

It’s official. We received word today that Parker will be getting his adaptive bike! Yeeee-Haw! He’ll be getting the AmTryke ProSeries 1512 with Rear Steering Control. Over the Moon. That’s how we feel. Over the Moon with excitement...

Published Tue, Jun 04 2013 8:38 PM by Praying For Parker

Filed under: Stuff We LOVE!, Life With Special Needs, adaptive bikes, AmTryke, ambucs

College and the Kid with Special Needs

McCall is my 3rd kid. She is beautiful, intelligent and feisty. Emphasis on the feisty. I have no idea where she got that quality from. (ahem) McCall switched from majoring in nursing to majoring in special ed. I won’t lie, Reed and I have tried...

Published Tue, Oct 08 2013 10:15 AM by Praying For Parker

Filed under: Advocacy, Life With Special Needs, special needs parenting, continuing education, BYU, UVU, special education

Anxiety Conference

Last week I was able to attend an anxiety conference at UVU with a sweet friend. It was very serendipitous how it all played out, and for that I am grateful. Cause me and anxiety? BFFs, baby. BFFs. There are several things I’d like to share with...

Published Tue, Apr 08 2014 10:24 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, down syndrome, Life With Special Needs, ptsd, special needs parenting, anxiety

doTERRA Frankincense Essential Oil

I wanted to share a bit of information for ways to use doTERRA Frankincense Essential Oil. There’s a reason why it’s called the’ King’ of essential oils! My favorite use? Anxiety! I simply put a drop of this beautiful Frankincense...

Published Wed, Dec 03 2014 5:30 PM by Praying For Parker

Filed under: doTerra Essential Oils, essential oils, doTerera, frankincense essential oil

Advocating againt the R-Word.

Parker’s big sister, McCall has always been a huge advocate for ending the use of the R-word. It hasn’t been easy. Take for example, when on her high school softball team she asked a team mate to please not say the r-word. She was polite,...

Published Sun, Dec 09 2012 7:52 PM by Praying For Parker

Filed under: Advocacy, spread the word to end the word, end the r-word, the r-word

The Very Best Adventure.

It’s been a wild few days. Days filled with puke, fevers, and decisions as to whether we should make a run up to Primary Children’s hospital, or whether the storm at home. We’ve turned a corner. Things are looking better. Home turned...

Published Sun, Nov 04 2012 9:48 AM by Praying For Parker

Filed under: down syndrome, Life With Special Needs

Wrinkled sheets and time management.

I don’t iron my sheets any more. Yes, I know there are those of you who think that ironing sheets is a symptom of a deeper issue, but my mom ironed her sheets and well, the cleaning gene doesn’t fall far from the ironing board. As I’ve...

Published Fri, May 31 2013 9:34 AM by Praying For Parker

Filed under: frugal living, Life With Special Needs, time management

Bring on the Hope: World Down Syndrome Day

Today is World Down Syndrome Day. 3:21 is a day of awareness and gratitude for the progress made in recognizing that a life with an extra chromosome is indeed worth living. It’s a day of bringing on the hope for the not so distant day my child and...

Published Wed, Mar 20 2013 9:45 PM by Praying For Parker

Filed under: Stuff We LOVE!, World Down Syndrome Day, Life With Special Needs, hope, Lots of Socks, 3:21

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