Praying for Parker

When the cute wears thin..

Sometimes your kid picks up a habit (or fifty) that no amount of cuteness makes up for. For Parker it’s his never ending desire to throw things. What can I say? I have a hard time seeing the cute while dodging projectiles that have lately provided...

Published Wed, Jul 21 2010 8:28 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs

Why We LOVE Betty Crocker!

Remember last year and Parker’s Make a Wish that came true? The one that Betty Crocker helped to grant? Parker’s adaptive swing set has brought him more joy than I can even express. Parker can make his own way up the Pirate plank. We use time...

Published Fri, Jul 23 2010 3:56 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Betty Crocker, Make A Wish

Giving Away GREAT Stuff from Discount School Supply!

I’ve blogged many times about my insane love for all things Discount School Supply. And the love just keeps growing. Have you seen Discount School Supply’s Special Needs section? Or their Common-Allergen-Free Products section? How about Discount...

Published Sun, Jul 25 2010 3:46 PM by Praying For Parker

Filed under: Fantabulous-ness, Stuff We LOVE!, home school, Discount School Supply, Reviews and Giveaways!, school supplies, BioColor Paints

Milestones! Cognitive Milestones!

Have you entered out Discount School Supply Giveaway yet? _______________________ I don’t know about you, but I’m always looking, watching and waiting to see if all the effort we put into Parker’s developmental needs is paying off. Sometimes...

Published Mon, Jul 26 2010 8:55 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, down syndrome, Special Needs

And there they go!

Have you entered out Discount School Supply Giveaway yet? When my big kids were little they loved to accompany their Dad over to the school to check on the sprinklers, or the fish, or the birds that often needed attention over the weekend. It made my...

Published Tue, Jul 27 2010 7:17 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, down syndrome, Special Needs

We are ALL beggars in God’s sight.

Back when I was a kid, and dinosaurs roamed the world, my Dad was in the military, we lived in Turkey. Whenever we lived overseas my Dad insisted we live on the economy. My Dad felt strongly that in order to really experience a country, you needed to...

Published Sun, Aug 01 2010 7:40 PM by Praying For Parker

Filed under: Advocacy, down syndrome, Special Needs, medically fragile children

The Down syndrome is the easy part.

We took Parker to a new doctor in Provo yesterday. The doctor asked me to tell him about Parker, so I ran down the list…..tethered spinal cord, trach, g-tube…. I listed all the regular stuff. The doctor listened, taking a few notes here and...

Published Mon, Aug 02 2010 8:25 PM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, down syndrome, Special Needs

And we have a WiNNeR!

Debbie from Northwest Florida Family’s of Down syndrome come on down! Random.org has chosen YOU as the winner of our Discount School Supply giveaway! Parker and I have NO doubt that you will love Discount School Supply every bit as much as we do...

Published Sun, Aug 08 2010 8:54 PM by Praying For Parker

Filed under: Fantabulous-ness, Discount School Supply, giveaway, Reviews and Giveaways!, contests

Go Ahead. Make My day.

Mom’s of kids with special needs are worth getting to know. We’re tough. We’re supportive. We love our kids. We know that we are often unique. Sometimes we find ourselves lacing up our combat boots as we take on the system. And we’ll...

Published Mon, Aug 09 2010 10:32 AM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, down syndrome, Special Needs, I'm The Mama: Hear Me Roar!, advocay

From the files of WTH?

I’m over at 5 Minutes for Special Needs today. If you have a kid with Down syndrome, or ANY other disability, you NEED to read this. Seriously. Read More...

Published Tue, Aug 10 2010 8:45 AM by Praying For Parker

Filed under: Advocacy, 5 Minutes For Special Needs

Busy

We’re still here. Just busy. Getting ready for another year of homeschool. I’ve been turning lots of stuff like this and this: into this: lots and lots of bottles of dehydrated fruits and veggies! Today I’ll be picking tomatoes to make...

Published Wed, Aug 25 2010 7:46 AM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Garden Goddess, homeschool, dehydrating foods, organic gardening

Christmas……..in September.

Yeah, I know. It’s September and here I am thinking about Christmas. About re-evaluating it. I thought now would be a good time to begin thinking about entering into the holiday season with a new mindset this year. Let’s face it. Times are...

Published Tue, Aug 31 2010 10:01 PM by Praying For Parker

Filed under: A Day In Our Life, Christmas, simple living, living simply

Everything Parker Knows He Learned at Home: Kindergarten

I’ve received many emails asking about information on how to home school a kid with special needs. I’m going to try to do a better job sharing ideas and a general curriculum on Parker’s blog. I don’t have a store purchased curriculum...

Published Thu, Sep 09 2010 9:07 AM by Praying For Parker

Filed under: A Day In Our Life, Special Needs Homeschooling, special needs homeschooling, homeschooling, homeschool

Help me sort this out?

One of the hardest things about being the Mom of a medically fragile child (besides trying to convince your local Legislative Representative that more cuts to Medicaid Waivers will wind up killing your kid) is trying to discern the path to follow and...

Published Mon, Sep 13 2010 8:59 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, A Day In Our Life, down syndrome, Special Needs, apiration, aspiration pneumonia, botox

And just like THAT the light goes out..

We had an amazing appointment with Second Opinion Pulmo. She pointed out that Parker is trached for his severely obstructive sleep apnea. Parker’s trachea collapses when he sleeps. If this hasn’t gotten better by now, it isn’t likely...

Published Fri, Sep 17 2010 3:10 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, pulmonary hypertension, Pulmo, right heart caths, lungs, ENT

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